Do I have RA?

Posted , 6 users are following.

Hi

Thanks in advance for anyone who reads this, and can offer me some guidance - I'm really struggling this weekend and feeling very down about my current state. Nonetheless will try to be as factual as I can.

My current situation is that I'm really struggling with my hands. They are not in pain per se, but they are in a constant state of weakness and I really feel like it's getting worse. As I right this with my arthritis gloves on, I can feel the tingling around the base of my fingers and palms. If I was to stop and gently place my fingers opposite each other in a prayer position, they would shake against each other nervously until enough pressure is applied. Today I have resisted from the necessity (was previously a temptation) to stretch the joints and exercise the hands - I have a couple of exercisers for this, but I'm not sure if it's making them better or worse. This usually provides a sound show which is only matched by the cracking of my elbow and shoulder - another addition which has seems to intensified over the past six months. Whether this is linked in any way to the upper back pain I've had for the past half year, I don't know. But what started as a pull from tennis, and worsened by my own ergonomic disaster when writing reports for my job, has now manifested into a dull pain right in the centre of my back, inbetween the shoulder blades. I've seen the GP and physio about this - they suggest it's muscular, but to me it feels to be right on the spine, which is obviously a worry.

My hand situation is not helped by a number of other factors. Ever since I was diagnosed with a trigger finger 16 years ago, I've sported a nice little scar on my left hand from the resultant surgery. Unfortunately the scar has now manifested into a deformity which looks like two bumps, which in my attempts to remain positive have nicknamed Larry and Barry. The doctor thinks it's the start of Dupruyten's contracture, and I must confess the stretch on my skin is starting to make my hand look a lot older than it should. Aesthetically, this is not the only thing - I have a bump on the base of my left hand (upperside) directly opposite the surgery, my knuckles and finger joints seem to be a lot bonier than they were.

Not that my left hand is worse than my right. No, if anything I struggle with that one even worse. Part of the issue with that one is the tiredness I get in my right wrist, a result of an injury I sustained a few years ago. The doctor thinks I've probably got scar tissue around the wrist - certainly not great when you're right handed, and play tennis and golf. Or at least I did - haven't played either in quite a while now (tried playing golf the other week and struggled to lift or feel the club).

So as I type this - albeit ergonomically in a better position - I'm bothered greatly by my lack of current lack of dexterity, cold and tingling hands, and twitchy forearms. Last night was the worse night I've had for pins and needles, which I can get from even just cupping my hands at night. I have managed to type this with a few breaks, but absolutely dreading the new year, when I start a new job in my profession as a primary school teacher. I am fearful that I won't be able to do the marking and planning - it was hard enough making a sandwich for lunch. And I don't know what to do, except keep waiting for the referral to come through to see the hand specialist on the NHS - still pending, two weeks and counting from my previous consultation. I've read the info online, and got lost in confusion at the amount of things that could be causing my condition, or indeed what it might be. Any help in this regard would be greatly appreciated as I try to manage this problem in the meantime.

Thanks

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  • Posted

    Thank you everyone once again for your help, advice and support. I really appreciate the opportunity to have been able to communicate about these issues and learn about the approach I need to take. All of your advice has been very helpful and at the very least given me some tools to self-manage my symptoms before I get a full diagnosis.

    I had a fantastic weekend by the way, and although it was difficult to manage at times I kept pretty positive about it all. Feeling very shaky today but that was to be expected!

    I did come back to some really good news, in that my referral letter has come through. I'm booked in for my initial assessment in four weeks time, so going to see the physio in the meantime to ensure i'm doing the right things in terms of exercises and stretches. Of course I will be starting the new job in the meantime so just going have to be very disciplined in looking after the body whilst it's going through these problems...or changes even. I know this is obviously down to me to look after myself and adapt to these changes - I'm certainly willing to make the sacrifices if it means I can have a degree of dexterity back.

    Anyway I will keep posting on here as and when and I'm sure I'll be an active member of the community whether it be that I have CTS, RA or whatever else. In the meantime have a Merry Christmas everyone and happy new year! 

    • Posted

      Merry Christmas to you too!

      Ans keep us posted as to how you make out in the new job.

  • Posted

    Hello everyone

    I wanted to update you on my current condition, seen as it's been a couple of months since I initially posted.

    In many ways I have good news and bad news.

    The good news is undoubtedly an improvement in my hands. Although they're still not great, there's definitely been a big improvement since Christmas. I remained disciplined with the things I was doing and as a result have had less pins and needles and less weakness. I eventually got to see the 'hand doctor' who agreed that I should keep on doing what I was doing and try not to worry too much about it for the time being - he does believe I have Dupruyten's Contracture (which will eventually need surgery) but feels that the range in motion in my hands means it's unnecessary at the present time.

    The bad news is my back problems have worsened. Despite the exercises I've been doing - a combination of those suggested by the physio and pilates strengtheners - my neck and upper back pain has got really bad recently, culminating in today's pain which not even massage, hot/cold therapy and anti-inflammatories can solve. I'm really concerned that this long term problem - it's been nearly 8 months now - has developed into something more serious, and I'm massively confused what to do about it. I don't feel the physio i'm seeing truly understands the depth of the problem, but I'm dubious about seeing an osteopath or chiropractor privately. The main exercise he gave me to do forces the neck one way whilst turning the body the other, and chin tucks - the latter are painful as they feel like they're putting pressure on the spine. To be honest, I'm extremely concerned I've given myself myofascial pain syndrome, as a lot of the effects of this seem to be in play - including the increased popping of my joints.

    I don't suppose any of you have any advice or thoughts on what I should do? Once again, I'm pretty desperate - sport aside, it's becoming more and more difficult to do everyday things such as strum the guitar or even pick clothes off the rail.

  • Posted

    Spoke too soon. Woke up at 4am with the dull aches and knots characteristic of my back issues - dozed off a couple of times only to wake up with the dreaded pins and needles again in my hands. Ugh :-(

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