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Do i possibly have ME/CFS???

Posted , 4 users are following.

tylor1989
tylor1989

For almost 2 years now i have had the following symptoms. I have good and bad days, but generally only 1 good(ish) out of every 7 rolleyes

*unrefreshing sleep

*muscle pain

*joint pain

*headaches (various types)

*difficulty concentrating

*slowness in thinking

*confusion/lightheadedness

*pale skin colour

*pounding/racing heart

*shortness of breath

*low body temp

*cold extremities/always freezing/change in temp i cant handle

*sweating

*recurring sore throat/swollen glands

*recurring fever (always worse after any exercise. )

1 like, 9 replies

9 Replies

  • sylvia17461
    sylvia17461 tylor1989

    Posted

    Hi tylor I had all of these symptoms and a few more I have hashimoto disease . I was misdiagnosed for years and told I had CFS . Best check it out ! You can get blood tests for it. If it comes back normal then you could go down the CFS route as it is a diagnosis of exclusion . Good luck Sylvia
    • tylor1989
      tylor1989 sylvia17461

      Posted

      Is that to do with hyperthyroidism? If so i've had tests recently and all came back clear, although my liver results were slightly raised, even though i hardly drink!
    • sylvia17461
      sylvia17461 tylor1989

      Posted

      Hmm! Hashimoto is an autoimmune disease there are specific blood tests for it . GP s very rarely ask the labs for them they seem to only do the run of the mill thyroid tests for hypothyroidism ( under active) and hyperthyroidism. ( over active)  it is more than likely these are the tests you have had. I know from personal experience it is easier said than done. I would certainly clear this up with your doctor . with two small children you need to be fit and well . 
  • andrew22534
    andrew22534 tylor1989

    Posted

    replace pale skin with IBS and we match.... interesting, will be watching other replies.... (i am currently awaiting lymes result...) but currently ME diagnosis. for me i have other heart issues now so...
    • tylor1989
      tylor1989 andrew22534

      Posted

      Oh i have ibs too haha! :P and also have a heart murmur which doesn't help rolleyes i hope you get answers for yours hun
    • andrew22534
      andrew22534 tylor1989

      Posted

      Hi Tylor, the answers i have are currently learn to live with it and manage your life a bit better... hmmmmmmmmm i have variant forms of angina (2) and intermittant arrhythmia...(the latter from previous being very fit athlete) I now have a daily rota of activeness, passiveness and resting which does help my day. Good luck with all yours...  
  • jackie00198
    jackie00198 tylor1989

    Posted

    Your symptoms sound spot on for ME/CFS. However, there's one symptom you don't mention that is pretty much the hallmark of the illness: postexertional fatigue. In other words, do you get exhausted after doing the most minor tasks, like showering, for instance? Assuming you do have the illness, it's important to get plenty of rest and not to push yourself, even on days when you feel better. Also, you might want to find a specialist who'll be in your corner and help you through this. An infectious disease specialist, for instance.
    • tylor1989
      tylor1989 jackie00198

      Posted

      Thank you for your reply. I do have postexertional fatigue. Its not as severe as from taking a shower, but today has hit me incredibly hard. I walked ten mins to wilkos and walked back with heavy bags. I've been in bed since 6pm unable to move. I ache all over and feel fluey and feverish. I get this very regurlarly. I feel terrible and like a useless mum. I have two small children and as soon as their dinner is finished i'm in bed for the night. I can sleep up to 16 hrs straight and still not enough! My mum had ME and she said its the same as what she gets. Put up with it all this time as i always assumed ME means you live in bed for years and cant do anything for yourself, and last time i mentioned it to docs they just said, oh thats odd! And left it at that. Its only through researching recently that i realised there is a lot more to it than that. As a single parent i try and ignore it as much as i can and get through the day so i can lie down all evening/night, but its got too hard to ignore now.
    • jackie00198
      jackie00198 tylor1989

      Posted

      Research has shown that there is a genetic component to ME/CFS, and I guess you and your mum are a perfect example of that. I'm so grateful for the Internet, because I originally suspected I had the illness after seeing the symptoms discussed there. I can't imagine raising two small children as a single parent while having this illness. We all really have to look out for ourselves, because the medical community is woefully ignorant and arrogant when it comes to ME/CFS. 
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