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I take Asacol and it just gives me more symptoms like nausea and diaherria and frequent trips to the toilet like every 5 mins they have tried me on 2 dif types of the oral meds and the side effects just aren't worth the trouble of taking them.
I stopped months worth of steroids 21/10/15 and exactly 3 weeks after I finished the course my flare up has come back with avengence the cramps in having are worse then labour contractions everytime I have cramps I feel physically sick from the pain and have to keep getting up to go to toilet last night it's was 11.30, 12.30, 2.30, 5 and 6.30 I can't sleep for long cause pain wakes me up and I have to sleep dead still laying on my back or else the pain locks off as soon as I creep back into bed.
I sat in doctors sugary waiting room today and burst into tears cause I felt so ill so much pain dizzy nausea it can't be right to be in the much pain when all I keep hearing is proctitis is the milder form of colitis yet my brother has colitis and the pain I'm in now is what he was in when he first got diagnosed and now he has it under control.
I'm constantly bleeding constantly on the toilet constantly gagging or getting acid reflux I haven't eating in 2 days cause I just feel sick or I am sick.
I was I diagnosed Jan 2014 yet 2015 was when I've had my worst flare ups within 3 mths of each other and only steroids or ibs meds help calm it down.
I can't stand up move drive I have 2 children under 6 and 2 young dogs to are for and I leave by myself and this disease is ruining my life cause I barely have one.
I'm dreading even attempting to go to bed tonight cause last night didn't go well and today all I've been is in pain I drink water it makes me feel sick I can't eat and I just drink some squash and I've thrown it up so now back to sipping at water but getting very dry mouth which is making me feel sick again.
IS ALL THIS NORMAL FOR PROCTITUS ???
My doctor is useless my consultant I see every 3-6mths just palms me off with yet new stuff to try and nothing is working I can't live like this anymore I have kids to take care of and the only help o have is from my mum but I can't move her in I wish I could how am I supposed to function being this ill is this how it will always be from one month to the next being in so much pain losing so much blood being unable to eat ?
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