Do these symptoms sound familiar?

Posted , 13 users are following.

Hi. I was very recently diagnosed with Meniere's. I was having dizzy spells and nausea, along with a ringing in my ear, but was also experiencing what felt like pressure in my head and what I can only describe as a feeling of fluid pressing down inside my head, and a constant "brain fog" resulting in loss of concentration and severe anxiety. (MRI and ct scan were normal)

 While I'm relieved that I finally have a diagnosis, I'm wondering if these symptoms are common for Meniere's, ot if perhaps there are other issues that gave not been diagnosed yet.

Any input would be much appreciated. Thank you...Scott

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  • Posted

    Sounds like MD to me.  Diet helped a lot of that for me, and learning how to cope helps a lot with the anxiety
  • Posted

    Scott,

    Yes, they sound all to familiar. I was diagnosed over 15 yrs ago and it started out the way you have described. The dizzy spells unfortunately can be totally debilitating lasting for an hour to sometimes several. You mention it feels like "fluid pressing down", the usual feeling I get is pressure similar to when you fly and can't decompress your ears. Do you have any loss of hearing? You should have an auditory test done. If not loss of hearing certain sounds, usually low frequency are garbled or harder to hear. I've found that certain times of the year are worse for me, and am trying to understand if allergies may play as a trigger. My worse attacks happen around Spring. I've been on a diuretic for years and take everyday. My new specialist also has me taking a calcium blocker. Can't say for sure if either help, but I'll try anything at this point. I would definitely get several opinions from both ENT, and Neurotologist. There are lots of resources online.

    Good luck!

    Dizzydaddy

    • Posted

      Thanks for the reply, Dizzy. I'm going for a hearing test later this week. Hopefully I'll have more answers, but this whole feeling of "wooziness" and feeling off balance is just horrible

  • Posted

    Scott,

    Sounds like the same symptoms as me. I keep to my low sodium diet and carry cbd drops from hemp (no THC) to calm anxiety and brain fog which also controls dizziness. I also take one or two 550mg potassium pills with each meal. It seems to keep sodium from building up quickly and causing pressure. The normal mdr for potassium is 4,700mg per day. Most people don't come close to that every day. A potato is about 600mg and a banana is about 450mg. As long as you don't have a health reason to keep your potassium low, it may help. Good luck.

    • Posted

      I take a multivitamin and mineral every day and also use my allergy spray when needed. This seems to help with tinnitus which fluctuates and seems to coincide with sinus issues. I’m in U.K. so am prescribed betahistine for vertigo and sickness. I’ve had no vertigo since I started taking this and mostly no ear pressure or tinnitus thankfully. I already had hearing loss so am keen to avoid further loss. 
  • Posted

    It’s Menieres alright!

    Have you experienced deafness?

    • Posted

      No, but I've had this feeling of "fullness" in my right ear for a couple of weeks now. I'm going for a hearing test on Thursday

  • Posted

    Hi Scott,

    Yes all those symptoms sound like Meniere's. I have had MD for 17 years now, been through every MRI, CAT Scan, balance tests, likes others have said low salt diet, try to keep allergies in control with allergy meds. The low potassium levels could have just been that way before you were diagnosed with MD. If you smoke you'll have low potassium levels also, or just not eating foods with enough potassium. My vertigo had gotten so bad I was having 3-4 sever vertigo attacks a day. I did finally get steroid injections in my ear that has MD, sounds a lot worst than it feels, really doesn't hurt much and it has lowered the amount of vertigo attacks I was getting tremendously. I actually went 8 months with only 5 or 6 vertigo attacks that whole time. They do come back just went a month ago and got another set of steroid injections. The only thing I can't seem to get any relief from is this God forsaken tinnitus. My hearing loss is pretty bad but mostly not because I can't hear well, I do have some hearing loss in both ears, but the tinnitus makes it hard to understand what people are saying, can't watch TV without closed captions. My opinion, and this is just my opinion, from 30 years of working in the medical field is, that if there was a lot of money to be made off helping people with MD there would be a lot more being done about it, that's just my opinion anyway. Best of luck to you, and try not to get to depressed about it, my ENT doctor had a good point, he said "at least it's not a disease that's going to kill you" smile

  • Posted

    Hi Scott, what is your dizzy feeling. Is it like spinning or whirling around you or f feeling dull and light headedness.
    • Posted

      anadi has a good point here with this question. Vertigo attacks and dizzy are totally different. I always try to explain to people that "felling dizzy" as opposed to a Vertigo attack is like comparing a little paper cut on your finger (that would be felling dizzy) as opposed to severing an artery (that would be Vertigo). Vertigo is totally different, my vertigo attacks are totally debilitating, it so bad sometimes I can not stand, move or anything else and when they are over it leaves you totally worn out and exhausted.

    • Posted

      I agree. Before the betahistine stabilised me I would spin and vomit for hours and was hospitalised on one occasion as I vomited continuously for 6 hours. Horrendous. The hearing distortion and tinnitus were off the scale too and lurching out of the office to the ladies toilet praying there was no one in there was excruciatingly embarrassing. It looked as if I was drunk. 
    • Posted

      Well, the room was spinning, but it was also sort of an "internal" type dizziness, almost as if I was drunk

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