Do these symptoms sound familiar?
Posted , 13 users are following.
Hi. I was very recently diagnosed with Meniere's. I was having dizzy spells and nausea, along with a ringing in my ear, but was also experiencing what felt like pressure in my head and what I can only describe as a feeling of fluid pressing down inside my head, and a constant "brain fog" resulting in loss of concentration and severe anxiety. (MRI and ct scan were normal)
While I'm relieved that I finally have a diagnosis, I'm wondering if these symptoms are common for Meniere's, ot if perhaps there are other issues that gave not been diagnosed yet.
Any input would be much appreciated. Thank you...Scott
0 likes, 18 replies
michael98270 scott76968
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Willow4 scott76968
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michael98270 Willow4
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I'll second the allergies from willow4, also wearing a mask in dusty environments helps me loads.
scott76968 Willow4
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Dizzydaddy scott76968
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Scott,
Yes, they sound all to familiar. I was diagnosed over 15 yrs ago and it started out the way you have described. The dizzy spells unfortunately can be totally debilitating lasting for an hour to sometimes several. You mention it feels like "fluid pressing down", the usual feeling I get is pressure similar to when you fly and can't decompress your ears. Do you have any loss of hearing? You should have an auditory test done. If not loss of hearing certain sounds, usually low frequency are garbled or harder to hear. I've found that certain times of the year are worse for me, and am trying to understand if allergies may play as a trigger. My worse attacks happen around Spring. I've been on a diuretic for years and take everyday. My new specialist also has me taking a calcium blocker. Can't say for sure if either help, but I'll try anything at this point. I would definitely get several opinions from both ENT, and Neurotologist. There are lots of resources online.
Good luck!
Dizzydaddy
scott76968 Dizzydaddy
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Thanks for the reply, Dizzy. I'm going for a hearing test later this week. Hopefully I'll have more answers, but this whole feeling of "wooziness" and feeling off balance is just horrible
glennmorr scott76968
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Scott,
Sounds like the same symptoms as me. I keep to my low sodium diet and carry cbd drops from hemp (no THC) to calm anxiety and brain fog which also controls dizziness. I also take one or two 550mg potassium pills with each meal. It seems to keep sodium from building up quickly and causing pressure. The normal mdr for potassium is 4,700mg per day. Most people don't come close to that every day. A potato is about 600mg and a banana is about 450mg. As long as you don't have a health reason to keep your potassium low, it may help. Good luck.
scott76968 glennmorr
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christine_35821 scott76968
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janice68460 scott76968
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Have you experienced deafness?
scott76968 janice68460
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No, but I've had this feeling of "fullness" in my right ear for a couple of weeks now. I'm going for a hearing test on Thursday
paul757 scott76968
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Hi Scott,
Yes all those symptoms sound like Meniere's. I have had MD for 17 years now, been through every MRI, CAT Scan, balance tests, likes others have said low salt diet, try to keep allergies in control with allergy meds. The low potassium levels could have just been that way before you were diagnosed with MD. If you smoke you'll have low potassium levels also, or just not eating foods with enough potassium. My vertigo had gotten so bad I was having 3-4 sever vertigo attacks a day. I did finally get steroid injections in my ear that has MD, sounds a lot worst than it feels, really doesn't hurt much and it has lowered the amount of vertigo attacks I was getting tremendously. I actually went 8 months with only 5 or 6 vertigo attacks that whole time. They do come back just went a month ago and got another set of steroid injections. The only thing I can't seem to get any relief from is this God forsaken tinnitus. My hearing loss is pretty bad but mostly not because I can't hear well, I do have some hearing loss in both ears, but the tinnitus makes it hard to understand what people are saying, can't watch TV without closed captions. My opinion, and this is just my opinion, from 30 years of working in the medical field is, that if there was a lot of money to be made off helping people with MD there would be a lot more being done about it, that's just my opinion anyway. Best of luck to you, and try not to get to depressed about it, my ENT doctor had a good point, he said "at least it's not a disease that's going to kill you"
scott76968 paul757
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Thanks, Paul. Hopefully I'll have more answers when I go for the hearing tests later this week
anadi_77868 scott76968
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paul757 anadi_77868
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anadi has a good point here with this question. Vertigo attacks and dizzy are totally different. I always try to explain to people that "felling dizzy" as opposed to a Vertigo attack is like comparing a little paper cut on your finger (that would be felling dizzy) as opposed to severing an artery (that would be Vertigo). Vertigo is totally different, my vertigo attacks are totally debilitating, it so bad sometimes I can not stand, move or anything else and when they are over it leaves you totally worn out and exhausted.
christine_35821 paul757
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scott76968 anadi_77868
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Well, the room was spinning, but it was also sort of an "internal" type dizziness, almost as if I was drunk