Do you EVER feel OK?

Hi rob, sorry to hear your so unwell! I've had ME for 2 years now since developing glandular fever and I don't think I've had a day symptom free. I have better days where my symptoms are minimal and I feel good although I think I'm just so use to feeling unwell it's kind of the norm now. I do go through really bad flare ups quite often where I literally feel like I am dying so it all varies.

Have you been checked for vitamin D deficiency? I only found out I am vitamin D deficient a couple of weeks back but apparently it's common in people with CFS/ME. Acupuncture is also really good for ME and yoga x

Hi Rob,

I've not really recovered from Christmas and became very unwell with the cfs/me in January. I've not had a feeling of being ok since July last year. I feel I am more aware of my condition and rest better now. I think that rest is a huge part of this condition and cutting back on activity as much as possible. At present I feel shattered most of the time. Hope is what I focus on and trying not to over do things. Thus, I cancelled my dentists and my cfs clinic appointments this week after an awful symptomatic weekend. I d be a fool to add the extra pressure (a filling at dentists and long jrney to clinic)

Be kind to yourself in however you can. Eat as well as you can and keep your fluids up. Its hard with this condition because extra pressure has such a huge impact. Thus, you're still recovering from November It seems.

Best wishes

Beverley

Yes, this is the new normal.  It is important to identify coexisting conditions that might be contributing, like allergies, exposure to mould, heavy metals.

You could also be having what's known as a flare, you can feel worse and better for several months within the overall un wellness of CFS.  THIS CAN SEEM DEVASTATING IF YOU DONT KNOW THAT ITS POSSIBLE.  I HAD A FLARE STARTING IN DECEMBER AND IM NOT COMPLETELY RECOVERED YET, ALTHOUGH I CONTINUE TO GRADUALLY IMPROVE.

Hey Robert, there are a few times, for an hour or so, every few months or so, that I feel good. It is rare, and I look forward to it all the time. But I'm sorry to say that most of the time I don't feel good at all. I hurt almost constantly. I have weird gastro problems, bladder problems, anxiety and depression problems, flu like symptoms all the time. I don't know what to tell you. I know it sounds depressing. It is depressing. But if you find a set of medication, meditation, and a good support network, you will find that most of the time you can cope. I hope this helps. Take care.

Hi Rob i did try and reply but its been withheld!  

Sue