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I watched the programme, (This Morning) on 29th September with John Caudwell (Billionaire) highlighting awareness of Lyme disease in the UK – most of what he was talking about sounds very similar to what I have been experiencing over the last 2 years or so. I feel like I have been a nuisence to my GP and get looked at with suspicion like i'm pretending to be ill!
I saw a poster recently that quotes "I'm not pretending to be ill, you are mistaken because i'm pretending to be well". So ept.
After two years of going back and forth to GP with all sorts of symptoms, I got a blood test today to test for lyme disese -all thanks to John Caudwell's interview on This Morning programme. I kept a lot of symptoms back from my GP because even I thought I was going insane, my list of symptoms are endless and are as follows:-
Headaches at the base of the skull
Headaches at temples
Eye pain feels strained
- Watery eyes
Inflamed internal nostrils
- Neck stiffness and pain
- Severe shoulder pains with immobility
- Upper arm pains and weakness
Wrist pains and weakness
Inflamed hands – get very hot
Numbness of hands
Finger joint pains
Back pains between should blades with burning sensation.
Chest pains consistent with lungs not heart.
- Breathing difficulties
- Abdominal Pains with sickness and diarrhoea
Right pelvic/hip pain with electric type shock radiating down leg
Knee pain with stiffness
Ankle pains with stiffness
Top of foot pain
Side of foot pain either side
Under foot pains feels like no natural cushioning under the foot
- Strong Nausea
Muscle weakness with no muscle tone at all
- Flu-like symptoms
Tenderness to the touch of skin
- Loss of Appetite
and probably missed a few - but, by god I have never before since 2 maybe 3 years felt so ill.
The ones marked with a hyphen's are the only one's I highlighted to GP - I believed that I had an autoimmune disorder but bloods keep coming back negative which is why I was looked at with suspicion. Test have not come back obviously, for lyme's that should be next Wednesday! - Don't get me wrong I would rather have nothing wrong with me but, excuse the pun, I have been dying for diagnosis for so long, I have been in agony in not only in body but mind as well and just need answer's now. At times i thought i was dying many times over - I would not wish this on anyone.
I am expecting a negative result though from the research i have been reading, seems realtively normal depending on how long you have had the disease,
We live in SE England and have three dogs, I remember the days when I used to take them for a lovely walk through the local woodlands - I so miss those walks. There has been a few ocassions i the past that they have had a tick and so we use a well known dog repellent to get rid - but i'm wondering if the tick just decides to get off dog and onto human when using repellent, because I do not remember a tick on me but I do remember a bulls eye rash - but because I suffer with eczema and discoid lupus I didn't at the time (3 years ago) didn't go to GP - I had never heard about lyme back then - I certainly have now!
Going through NHS has been horrendous because you look ok on the outside soI have been treated as mental illness isssues and i know from what i have read it can cause mental illness not surprisingly! I would love to hear from anyone else who experienced the same.
Good luck to all dealing with this tortourous disease.
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