Do you have AS and a THP? Please reply
Posted , 5 users are following.
I have AS and am having a mother of a flare. Literally can not use my arms which is very difficult with the crutches. Chest compressions and the usual. I wonder if it is the pressure of the operation causing such a terrible one? Did you find this?
Hospital is now pushing to start ANTI TNF biologics next week... Feeling quite daunted starting them so soon. If you are on biologics did they help?
Got through the hip replacement relatively unscathed, and now being flattened by the AS. If you have any tips or advice please let know. I used to have three hour hot baths and massages when it was bad, as well as the usual cocktail of drugs, but can't do either at the moment
0 likes, 10 replies
linnet2015 rose0000
Posted
Please excuse my ignorance but what is AS, THP and Anti TNF?
Linnet x
rose0000 linnet2015
Posted
Anti tnf are specialist live drugs injected into patients used to try and treat it
THP is just a mistake I meant to type THR!!!!
susie74530 rose0000
Posted
rose0000 susie74530
Posted
susie74530 rose0000
Posted
I have posted on a simple relief on the night sweats issue. I am looking for other remedies.
linnet2015 rose0000
Posted
Im afraid I cant offer any practical experienced advice only to say just do the absolute minimum day to day. The children will manage as long as they are safe, warm, and have food nothing else matters except for you and your well being.
Love and hugs
Linnet xx
linnet2015
Posted
You are doing amazingly well so take no notice of Cruella de ville!
Linnet x
rose0000 linnet2015
Posted
I am so relieved they are happy and well, and have had a surprising amount of fun making a house out of cereal boxes!!
I didn't think I could cope but I did, hip is sore as hell but I did it Linnet! Tears and all. Thanks to people like you I actually feel someone somewhere cares.
linnet2015 rose0000
Posted
and of course spending time with their mum. They sound lovely children and a credit to you.
Hope you get a reasonable rest tonight
Linnet x
ps hope your husband is enjoying his new job
dennisb rose0000
Posted
What other drugs were you taking for the AS that you have stopped?
I didn't stop any of the oral drugs for the AS before the operation.