do you have debilitating symptoms of hypothyroidism that your doctor is ignoring long term?

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Many symptoms are popping up and no day is the same which means I can't control or manage my life and I am getting ignored constantly. G.P. surgery's are not equipped or interested in 'symptoms' and neither will they refer me so my life just deteriorates and they just let it. Help1

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  • Posted

    Hello, sorry you are having such a horrible time. Do you have your blood test results ? Are you on medication ? If you are feeling ill and no one's listening, write to your GP expressing your concerns, they are obliged to answer. Remember, its the squeeky wheel that gets oiled so go for it ! All the best, hope you feel better soon.

    Bess

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  • Posted

    Sorry to hear that you're having so much trouble with your GP. My symptoms were ignored for over 3 years (complicated by a bad infection during that time). Eventually I booked a double appointment with my GP and insisted on a blood test and referral. Try writing to the Practice Manager and complain to your local Health Board if they don't come through. Lots of people get these symptoms dismissed and it's not right - keep trying, hope you feel better soon. Remember - be persistent, they will have to listen to you!
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  • Posted

    I am so aware many people have these debilitaing symptoms constantly and it is disgustingly unethical they ignore people. People do spend much time researching, spending money and visiting the doctors and Drs sit there and do nothing. I have written three page letters. I had one reply which was only patronising and covered their back.

    I think some of the problems are caused by an underlying infection because my white blood cells are always low. I've asked for referrals time and time again. This is ignored constantly. I am too nice and respectful to them, but it gets you nowhere.

    I will try writing to the Health Board because they can't do this to people. They pose as the cornerstone of society. Thank you for this advice and hope you have no more problems.

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  • Posted

    My doctor put me through Hell never believing I had Hypothyroidism as my tsh was in the range smack bang in the middle .Not for me I am Underactive and have been for at least 10 years I think even longer.then a alternative heath practioner helped me ,as I said to her I am under active I know I am GP think we dont know our own bodies.She gave me Dr Skinners Number And I got a letter from my GP in Jan 2012 I felt so ill.He was wonderful I am Know on the mend I have a life back but still have a way to go I still get tired if I do to muchbut I couldnt do anything before.I went on my hols last month first time for 4 years came back tired and a bit achy I am getting over it know .It takes a while to fully recover.Go onto Dr skinners website.He is a fantastic man He listens to yous symptoms not just look at blood results Good luck Linda
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  • Posted

    Here is a website that may help.

    www.facebook.com/groups/pheoparasupportgroup/

    I have had hell for months. They just send me for stupid tests. Each Specialist, the Multi Discipline in the Eye Clinic, the Specialist in the Allergy Clinic, have all written and say they see something but do not know what they see. Last night was the worse crisis I have had in six months. My eyes look "terrified", Each time they say my bloods are normal. One doctor said, "Your bloods are too good" I asked did he mean that I was not ill, he said no, they are just too good to be true. I have been accused of drinking, not taking medication, etc. Told it is all in my mind. It is not. Professionally I know I do not have any mental disturbance or problems. It has been suggested that I contact Prof. Grossman but I doubt if my doctor will refer me. They won't even redo bloods after a Specialist has asked! What chance do I have. I need a 24hr blood pressure machine but I expect them to refuse. I do not lie, I do not fixate, I do not have Munchausen's! I do not like attention from being ill. This weekend I should have been in Paris with friends, instead I am at home having paid again for a holiday I cannot complete. In two weeks I have a Convention in Birmingham. Ambulance men have complained to their control when they find I am not as painted. Not one so called caring doctor has asked me how I feel. My symptoms go untreated, they can not manage them but will not admit that. Thank God for Agincare because without the love and support their carers have given me, I would have gone gaga before now. If they cannot see a blood report that tells them how to think, they don''t, full stop. I have just found out that I should have been in a Medical Specialist Clinic months ago but did not get there. My blood pressure is spiking out of control. A Specialist has asked that I get my BP medicine changed, what was the answer, they will not do it until they see a letter from the Specialist., why?, because I must be a liar. What a life of hell this has been. My mouth is plagued by abscess and ulcer, sore tongue and dryness that on their own make my life hell. It has taken nearly two years to get a few teeth out by anaesthetic. "Care"...you do not! Please do not give up golliwog, keep strong, because somewhere there is hope in the people that do care. My friends have been wonderful, and guess what?, they believe me, not a piece of paper.

    Emis moderator comment: I have had to remove a couple of specific details from the post as they may identify individuals which is against our Ts & Cs.

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