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Do you need biopsy to confirm LS

Posted , 13 users are following.

margaret80982
margaret80982

Just been seen by doctor who thinks I have LS and referred me to consultant and told me I will probably have a biopsy to confirm. I also suffer from interstitial cystitis which I try to manage myself so im beside myself wirh this new news. Apart from an irratating itch I dont seem to have any other symptoms, and after reading about it im beside myself as dealing with my other illness takes a lot of managenent

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  • Chive74
    Chive74 margaret80982

    Posted

    Hello.. New here...

    I have just been told I probably have LS. I'm confused as I have no other symptoms than a slightly sore vulva. No itching and no white patches or visible changes ( I check myself lots ).  wondering what the main signs real woman had to lead them to diagnosis.. worried about using steroid cream indefinitely if its not LS.

    Advice welcome x

    • Gillian1956
      Gillian1956 Chive74

      Posted

      Hi I have LS and I don't get the white patches but more sore red patches have you had a biopsy 

    • Chive74
      Chive74 Gillian1956

      Posted

      Hey Gillian. Thanks for replying. Yes same. Just one tiny red patch about the size of half a fingertip. Hasn’t changed in a month and no itching. Just feels hot. Have betnovate for a month then back at the docs. Then I’ll ask for a biopsy. Was hoping it was contact dermatitis as it came after using a frangranced loo roll. 
    • Gillian1956
      Gillian1956 Chive74

      Posted

      Well that's interesting before I was diagnosed with SL I used some perfumed toilet roll that affected me so I would push for biopsy then you will know what you feel dealing with fully and what treatment to use 

    • Guest
      Guest Chive74

      Posted

      Hi Chive,

      The only symptoms I had was redness all over my vulva and my clitoris was very sensitive. No itching or burning. I only had white patches after about four months but that was because the gyn I had at that time was treating me for fungal infection. He finally did biopsy when white patches showed up. Since then I changed docs and have been on clobetasol (started twice a day for two weeks then twice a week for nine months and have been on once a week for two years) I will most likely be on this for rest of life. Am using only small amount and it has kept everything under control although I have had labia minora on right side flatten some. But I never had any itching or burning like a lot of ladies on this site have had. It affects all of us a little differently. The doc would not prescribe the clobetasol until biopsy was done. It is a good idea to ask to have one done just to confirm diagnosis. Good luck and let us know how you make out

       

    • Chive74
      Chive74 Guest

      Posted

      Thank you.  Sounds similar. I don’t have any kind of pain. The burning feeling came and went and now not it’s more of a sensation. Can’t say it’s ever causes me pain or discomfort. Sex is fine and it’s only a small red area. I think I need a biopsy. Don’t want to be using steroid cream indefinitely if it’s not LS. And if it is I want to know for sure. Also. When I wake I can’t feel it. It’s after being up a hour. Wondering if it’s become psychological. This forum is a great help and support x. 
    • sue162
      sue162 Guest

      Posted

      The more I read your post the more it sounds the same as me Dunkin girl. No itching either or burning but red raw and flattening of minora.  I use clob once a week to remember I use it Thursday evenings lol.  Has your redness been kept under control?  Mine seems still red but nowhere near as sore as pre clob. 
    • Guest
      Guest sue162

      Posted

      Sue162 it seems we may be more alike as I use clob on Wednesdays so to remember! Yes the redness has been kept under control. Once in awhile I get a little red but specialist said that is post menopausal  redness as it is not real bright red. She said the LS would be "Fire engine red"! But clob once a week seems to be working for me, hopefully it continues.

  • chicks
    chicks margaret80982

    Posted

    My gynie told me something interesting last week when I told him how Borax seems to help a lot of woman with LS. He said that Borax is used to treat women with Candida and  lot of woman think they have LS when in fact they have Candida and that is why the Borax helps.  I don't really know what to think of this to be quite honest. I recently ordered Borax and it arrived in the mail a couple of days ago. I am keen to try it as a lot of women on this forum have had great success with it. My itching has gone with the mixture of 4 Tablespoons of Organic Castor Oil, 2 DROPS of Lavender Essence oil and 1 DROP of Lemon Grass Essence oil. it is vitally important not to exceed the drops and to use a small dropper.

    • Metta
      Metta chicks

      Posted

      Hi Jan,

      That is very interesting. I have been wondering how borax, baking soda and coconut oil help LS.

      I just Googled Candida and came across the website of Amy Myers MD and read the section "10 Signs You Have Candida Overgrowth & How To Eliminate It". Although I do not know Dr. Myers and cannot vouch for her website, it does seem that she has a fair bit of experience in diagnosing Candida. One of the common symptoms she lists is "Autoimmune Diseases such as...". I, personally, have hypothyroidism which might be caused by Hashimoto's. Anyway, I am going to look into the possibility of Candida further. I am wondering if the ladies on this site who use Borax, Baking Soda and Coconut Oil might have Candida and LS simultaneously... or if these remedies specifically help with LS, even in the absence of Candida.

      One comment left by a reader on Dr. Myers' website had the following to say about coconut oil:

      "Just something I want to add to the article... and that's coconut oil can be very effective for some people. It contains Caprylic acid which is a potent antifungal and this helps kill excess candida yeast cells. Many people buy caprylic acid as a supplement, but I personally think it's better to buy a good quality organic coconut oil instead. It's also really worth checking out Linda Allen's 'Yeast Infection No More'. Her methods are extremely effective for overcoming candida quickly & naturally. You can find her video and guide at "the candida manual" (Google it) - Natural treatments are always better when possible."

      I would love to hear some feedback on this from all you wonderful ladies (and men?) with LS!

      Metta

    • chicks
      chicks Metta

      Posted

      Hi Metta

      Very interesting points you have brought up and thanks for posting an excerpt from Dr Myers article. I had a bath for the first time with Borax last night. I was a bit nervous to tell the truth but all went well. I am not expecting to get any kind of relief or have the fusing diminish over night or anything but I will persevere in the hope that it does some good. I think I will also try the Organic Castor oil. The Borax is very expensive to buy as I have to order it online and the postage costs the same as the Borax. If I use half a cup in my bath water every night then the container will only last me a week or so. I think I will buy a spray bottle and use that instead. I think I have to dissolve 1/8 tsp in 1 litre warm water. I ordered the Borax from Blants Wellbeing & Lifestyle in New South Wales, Australia

      Jan

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