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DOC APPOINTMENT UPDATE

Posted , 6 users are following.

sadie1980
sadie1980

So after gabapentin sent me in to a different world I waited until I saw the doc who took another load of bloods last week everything norm except my low iron again !!! Don't no what's going on ther as I've already had a 3 month course of iron ! Anyway at last she has sent a referral to see the rheumatologist at bloody last but after the gabapentin I didn't want to try anything else but she has given me pregablin to try so wish me luck !!!

Gentle hugs to u allxxx

1 like, 15 replies

15 Replies

  • erykah71
    erykah71 sadie1980

    Posted

    Aww Sadie, hope things start looking up soon hun.

    I have tried so many tabs over the last 6 months I'm begining to wonder if the NHS is secretly using me as a guinea pig to trial stuff lol. I'm on Lyrica at the mo, but not seen much difference to be honest.

    Hope your rheumy referral is speedy, I was referred about three months ago and have my appointment in Nov.

    Anyway good luck with the new tabs, hope they help

    Gentle hugs hun x

    • sadie1980
      sadie1980 erykah71

      Posted

      Hi Hun there the same tabs as your on but to be honest I haven't felt anything yet ! Still have the pain and I've been told not to take my ametriptolin so not sure what I'm going to be like in the morning!! The gabapentin worked straight away so not sure really what mg are u on ??

      Hugs

    • erykah71
      erykah71 sadie1980

      Posted

      I'm on 75mg twice a day. Doc told me to wean off of the ametriptaline when I started the Lyrica, so reduced the dose over 2 weeks. I don't see any difference but doc says it's trial and error - Just frustrating that you have to give tabs a couple of weeks to work and then do it all over again when they don't work and are changed. 

      Let us know how you get on

      xx

    • sadie1980
      sadie1980 erykah71

      Posted

      I'm on 75mg a day so hopefully it works !! Doubt it though can I ask how much ametriptolin u were on ?
    • sadie1980
      sadie1980 erykah71

      Posted

      Yeh me to X well I've woken in pain and have work today not sure weather to call docs as I can't be in pain all day and be at work !
  • Angel2116
    Angel2116 sadie1980

    Posted

    Hi Sadie,

    I was put on gabapentin and it did nothing for me at all, I have now been put on lyrica and it works sooo much better especially with the burning type muscle pain, I am also on amitriptlyn and still works good for me, I think it's trial and error what works for one does not always work with others!

    I hope you find a combination that works for you! Xx

    • Angel2116
      Angel2116

      Posted

      Forgot to say I am on 100mg x3 daily of lyrica and 100mg X1 at night of amitriptlyn, among other meds and they help me a lot!! I'm not pain free but they def take the edge off!! Best of luck Hun! Xx
    • sadie1980
      sadie1980 Angel2116

      Posted

      Thanks Hun well I've just woke and all my pain is back but she told me to stop the ametriptolin! That first tab did nothing not even making me feel tired so unsure if it will work for me ! I'm calling docs today as I can't be in pain all day and unsure if I can take anything else xx
    • Angel2116
      Angel2116 sadie1980

      Posted

      Hi Sadie, it's so hard isn't it, I was given the amitripilyn first as a muscle relaxant at night as the pain was waking me throughout the night 😞 but I also take cocodamol or tramadol at night too, I think it's the combination that works for me! I wonder why your Dr took you off it? If I were you I wld go back to your gp and see if he/she will try you on something else, best of luck Hun xx
    • sadie1980
      sadie1980 Angel2116

      Posted

      I'm calling this morning as I'm out of tramadol and ametriptolin so have nothing and I'm in pain really bad 😔😔😔😔
  • Malarose
    Malarose sadie1980

    Posted

    Hi that's interesting as I have low iron as well. Three months course. Has anyone else on our site found they have low iron? Could account for some of the tiredness. 

    Good luck with the rheumatologist I've got my appointment December21st. 

    Rosie

    • sadie1980
      sadie1980 Malarose

      Posted

      I have noticed lots of fibro sufferers have low iron very strange x
  • Bee70
    Bee70 sadie1980

    Posted

    Hi Sadie

    Thanks for the update.......

    Hopefully the rheumatologist can give you some answers.  Stay calm and focused and remember we are all here for you.  Pls keep us posted.

    Take care and gentle hugs from ME to YOU....wink xx

  • martinarvelo
    martinarvelo sadie1980

    Posted

    Gabapetin did the same to me and my husband. . I've now just started on a very low dose of Lyrica.  think I'm feeling more dizzy, but so far no wild experiences!  Pregablin is the same thing as Lyrica . . my doc said to start with a very low dose and work up to a higher one. . .so I'm taking 25 mg for five days, then doubling every five days up to 150 a day 
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