Doctor doesn't recognise fibromyalgia

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I am so depressed and have finally put a formal complaint in about my doctor, for fybromyalgia,athritist,headaches diverticular I am allowed 4 dyohydrocodeine per day, he won't increase them or even add anything in, I am in despair as this doesn't even touch the pain, I've been down numerous times and he flat out refuses, I am waiting to discuss my complaint , anyone else have a doctor like mine?

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6 Replies

  • Posted

    Hi Trisha, my name is Kathy. I haven't been on this site in a while, but your message caught my eye. I didn't think there were any doctors that still did not recognize Fibromyalgia as a real condition. I was diagnosed with fibro about 12 years ago and my doctor knew what it was right away. I hadn't heard of it before, but I learned pretty quick. Maybe it's the medication that this doctor doesn't like to prescribe. I take prescription strength ibuprofen and if it's really bad, arthritis strength Tylenol with it. I have my blood checked every 6 months to make sure the meds aren't causing any damage. A good hot epsom salt bath is always a good thing. My recommendation is to find another doctor. Is he/she a specialist? I had to see a rheumatologist to give me the final diagnosis.

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    • Posted

      Hi Kathy, yes I saw a rheumatologist years ago and it was diagnosed then, it's just all symptoms are linked but the doctor is always going on about pain medication, and how he doesn't want to make my fybromyalgia worse by giving painkillers, I still don't recognise the logic in that one, my muscles ache, I have painful headaches I have pain in my abdomen and especially my right side, I feel as if he just doesn't listen, all I want is a proper consultation, oh and the athritist is bad isn't it?

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  • Posted

    Hiya.

    My doctor was similar. I don’t think some doctors take fibromyalgia seriously, they don’t understand what day to day in pain is like for us. I was lucky I seen another doctor at my surgery one time. He said it had been going on long enough with all the different tablets I was on that  make  me feel so tired. So now this doctor has sent me to have a mri scan also made an appointment with rheumatology doctor. Also I think some doctors surgery’s don’t like to spend money on tests X-rays etc.

    Good luck hope all goes well.

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    • Posted

      I agree carol, I think it all comes down to money, I've also been diagnosed with epilepsy and it was my neurologist who told my doctor to refer me for an MRI, so still waiting. Good luck

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  • Posted

    That is the problem. Docs get paid lots but fail to recognise symptoms. I'd had the pain for a few years, doc tried me on a lot of different things, and then as always physio is the answer. It was my physio who picked up on issues, but sent me to the pain management specialist to diagnose. I had seen the physio a handful of times, gp almost every other week for two years and they picked nothing. But yes docs don't want to prescribe anything, or send you for tests for fear of costs. My gp has a sign up in the surgery saying to see them with one problem per appointment, appointments which you struggle to get in the first place, and with fibromygia it's not just one problem. The joys huh?

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    • Posted

      Physio didn't really help me, I feel like you are just left to get on with it yourself, I make most of enquiries via specialists myself, because it's the only way I get anything sometimes, and yes I believe it's down to money, and we are left to suffer, hopefully fybromyalgia will get more recognised soon as it's a debilitating condition x

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