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Doctor in NYC?

Posted , 6 users are following.

kris09489
kris09489

Hi everyone,

I was diagnosed with LS by a dermatologist 2 years ago. Since then, I've been seeing my gynocoloist for follow ups.

While I like my gyno, I'd really like to see someone who specializes in LS, so I can see a doctor who has the best knowledge of the condition.

Does anyone here see a specialist in New York City? I can't seem to find anyone online.

Thank you!

0 likes, 12 replies

12 Replies

  • mary09950
    mary09950 kris09489

    Posted

    There are different treatments approved such as PRP (I think) and few doctors do it in the US. I think it is experimental still. Other than that special treatment, the ideas you read here and the recommended treatment by doctors of Clobetasol or comparable is all there is.

    It would be a drag to travel long distance to see other specialists and they say the same thing.

    I think gynecologist are the best and they may know if any surgical options are advised.

    Good luck!

    I think I've read everything on the Internet.

    • kris09489
      kris09489 mary09950

      Posted

      Thank you for the info! I've been using Clobetasol with my treatment with my gynocologist. Glad to hear you think gynos are the best to go to! I wasn't sure if a dermatologist or gynocologist would be better.

  • mary09950
    mary09950 kris09489

    Posted

    I did see advertisements about gynecologist specializing in LS in Las Vegas but like I said I think they probably have the same knowledge and advise as my gynecologist.
  • Wlparadise
    Wlparadise kris09489

    Posted

    Many gynecologist are pap smears, breast exams and occasional yeast infection. I go to a specialty gynecologist in central Florida. She rarely delivers babies as her practice is mostly the unusual. She is an expert in her field, professor, surgeon. I would keep trying to find a specialty gynecologist.

    Have you joined the FB page for this? There is a list of specialists the moderator has collected from followers.

    • kris09489
      kris09489 Wlparadise

      Posted

      Thanks for your feedback! I didn't think to look up gynocologists who list it as their specialty. Maybe Zoc Doc might be helpful for that. I didn't know there was a Facebook page! I'll look that up too. Thank you!

    • Wlparadise
      Wlparadise kris09489

      Posted

      It's the one with a rainbow. Best info on that one. People are friendly and helpful with information on there. I have same name on FB

  • Wafinance
    Wafinance kris09489

    Posted

    Dr Rogerio Lobo at Columbia Doctors, Women's Reproductive Health. 

    • freejack6466
      freejack6466 Wafinance

      Posted

      Called Dr Rogerio Lobo office to make an appointment, the receptionist stated they only see patients with fertility isssues, she asked me to " explain what Lichen Sclerosus is, I have never heard of it".  So evidentally it is not this Dr's specialty.  

  • charlotte95599
    charlotte95599 kris09489

    Posted

    I think there are a few Vulva specialists and that would be better than a gyno. I found one in Florida where I live but he doesnt take insurance so I havnt bothered. There arent many around but Im sure there is one in NY area.
    • Wlparadise
      Wlparadise charlotte95599

      Posted

      If you are near central Florida Dr Aileen Caceras is a specialty gynecologist. She is also a college professor.
    • charlotte95599
      charlotte95599 Wlparadise

      Posted

      No I am South Florida close to Miami. Darn. For sure this disease needs more study and Drs to specialize in. Its very frustrating.
  • Wlparadise
    Wlparadise kris09489

    Posted

    Try the FB group for LS. They have a list. Their page has a rainbow logo.
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