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I struggled for six years prior to getting diagnosed with hypothyroidism. I found an endocrinologist in 2009 who has been treating me and I have felt wonderful until the last few months.
In 2009, I started at 175mcg synthroid and .025 cytomel. I have fluctuated a bit over the last nine years but always felt good when she changed my dosage. She has always been great at listening to my symptoms and has told me that I am super sensitive to the slightest change in meds.
I was recently on 100mcg synthroid and .025 cytomel. I felt great. I had routine labs early July and was to follow up late July with the doctor. They called stating the dr wanted to lower my synthroid a bit stating my TSH was low. She had me take 100mcg synthroid 6 days a week and 50mcg one day a week. Not a huge change. But, four weeks after changing, I noticed my hair started falling out and I started having hot flashes.
I had an appt late July and mentioned my hair but she felt it was too early to run new labs and that the change in meds would help. By late September I was (and still am) loosing handfuls of hair. I called and had labs re ran thinking they would move me back up. But, instead, they called saying my TSH was way too low and lowered my dose to 75mcg synthroid and .025mg Cytomel. Thinking she was correct, I started the new dose on September 24th. I feel horrible, almost as bad as I did when this mess first started in 2003. I am irritable, my blood sugar is fluctuating, I am having hot flashes. my hair is still falling out, I feel shaky on the inside and weak.
Do you feel like this is because she dropped my meds? Or, is it because I am hyper as the TSH is indicating. I don't have my labs to post .. I can get them Monday. I used to get a copy but after years of feeling good I got lazy and stopped.
If my TSH is low due to being suppressed by the synthroid, how low can it be?? She mentioned it being close to zero.
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