Doctor patient trust
Posted , 2 users are following.
So in the last two years I have had two scope procedures. One was a full colonoscopy that so many biopsies were taken that I bled for weeks after and the pad they put below you to catch stuff was soaked in blood and goo. It made me sick and I felt like I was butchered. I then had a sigmoidoscopy to get done as my Crohn's disease is still bad and the doctor convinced me that it would be a good idea. I told her before the test that the only reason I am going through with it is I want to know how bad things are looking. I told her that 6 months ago I had many biopsies taken and I don't want any more of them done as I don't heal well after. She talked me into having two taken of bad areas. I said ok, but no more than that. So I get the results of the biopsies and they are all good no cancer. I doubt that that would have been missed 6 months ago when I was destroyed by my last doctor. When I looked at the lab results it stated I had 8 samples taken, I thought, how can that be when she said she was only taking two. How on earth can a person trust their doctor when they say one thing and do something else. I told her no more than two. I guess the point is I need to be able to trust that she will listen and do what I asked. Had she told me no way we need at least 12 then I would have canceled my appointment. So here I am bleeding badly again for weeks after. I do feel the need to get a new doctor as I am still upset about it months latter. I also need to have yet another scope done to see if the medication is working properly and this time I want no biopsies. My IBD is severe and they can see visually if it looks better than before or if there is no sign of disease. There is no need to chop me up again. I need to be able to trust my doctor and that is a huge deal for me, some don't care and want their doctor to do what ever they think is right. That is their choice, but I like to have some say in what is being done and I also want to know what is being done to me after I am put under. Trust is important. I need to feel I am in good hands when I am out. Not sure what I need to do to get that small amount of control I desire to make myself comfortable when I undergo these kinds of invasive tests. What can I do to get my doctor to understand how important that is for me. Any good ideas would be great or has anyone had a similar issue and fixed it? If so how? You would think I can just say hey doc no biopsies and we are good right and that would be all that is needed, but I tried that one and it didn't work.
0 likes, 3 replies
Hollaka79 craig84609
Posted
Hey. I’m with you over on the Crohns group & assuming you have CD? Just checking that you’re aware that you’ve posted in the cervical smear group? Unless you meant colposcopy instead of colonoscopy? Both are equally as yukky 😕 Either way me personally would make a statement on the consent form before any treatment went ahead... Good luck which ever bit you’re getting looked at ??
craig84609 Hollaka79
Posted
I don't understand how it was posted to the wrong group. I chose Colonoscopy and have no way of fixing it. It was supposed to be in Colonoscopy.
Hollaka79 craig84609
Posted