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Doctor says Im fine but ....

Posted , 4 users are following.

courtnay26
courtnay26

Well I did the acth stim test

Odd thing is my blood pressure before test

Was highest it has ever been

And I feel like I need a good doctor

Stat.

I dont know , the doctors wont give me an mri

0 likes, 19 replies

19 Replies

  • maureen07
    maureen07 courtnay26

    Posted

    Can’t imagine why they won’t allow an MRI. Where are you located?  I’m in PA   I sometimes have to insist on certain tests if my Dr doesn’t mention them. I’m lucky and my drs will allow whatever tests I ask for if they are contested to my issues I’m having.  Is it just your blood pressure they are working on or have they mentioned anything about a pituitary issue?  Or a thyroid issue?  Are you having headaches. Any of these issues might get you an MRI. But if it’s just BP it probably won’t.  My BP used to be elevated before dr visits but now it’s high due to chronic pain and some of my medications. Let me know if there’s anything else going on.  Don’t panic.

    Maureen

    • courtnay26
      courtnay26 maureen07

      Posted

      Hi Maureen

      Im in Canada

      The thing is here, you are sort of

      At your doctor's whim so if they dont know what they are doing , then what

      I have a very complicated pituitary issue

      But our endocrine doctors here arent

      Always knowledgeable of rare diseases

    • courtnay26
      courtnay26 kim22986

      Posted

      Hi Kim

      Right now I'm in PEI

      I'll probably move soon though

  • courtnay26
    courtnay26

    Posted

    I do have a long list of symptoms

    And each day it is becoming more difficult to do simple things like walking up stairs

    Which I can do

    I just get more winded each day

  • courtnay26
    courtnay26

    Posted

    Luckily they are checking out one more possibility of acromegaly

    So well see

    Thanks

  • chutney123
    chutney123 courtnay26

    Posted

    Hi Courtney,

    Were you worried about having the test? That could up your blood pressure. When do you find out the results?

    Chutney

    • courtnay26
      courtnay26 chutney123

      Posted

      Hi Chutney

      When the nurses were doing the test they told me

      My blood pressure

      I was surprised by my first reading

      165/90 , really high for me

      After the test it was normal like

      127/90

    • courtnay26
      courtnay26 chutney123

      Posted

      Well I sort of found ojt the results of cortisol

      Doctor's office called and said it was normal

    • chutney123
      chutney123 courtnay26

      Posted

      Well, that's good I suppose. Must just be frustrating that you still don't have any answers. Are you waiting for any more results? Or do they need more tests?

    • courtnay26
      courtnay26 chutney123

      Posted

      Yes , heard back

      Igf was fairly normal

      But my basal cortisol was in intermediate range

      Which could still mean

      Central adrenal insufficiency

      Except the doctor

      Doesnt really care about that ( i don't think)

    • chutney123
      chutney123 courtnay26

      Posted

      Hi Courtney,

      Good to hear your igf was normal. I thought that the ACTH stimulation test you had tests adrenal function, so even if your basal cortisol was intermediate or low if your ACTH stim results are normal it means you have sufficient adrenal reserve. So I think it would be unlikely you had adrenal insufficiency.

      So what did they suggest to do next?

      Chutney

    • courtnay26
      courtnay26 chutney123

      Posted

      Hi Chutney

      Yes the tests have good results

      but it still could mean I have secondary or tertiary adrenal insufficiency

      The main reason I wanted to find out is

      Because I think I may have a pituitary tumor

      But my doctor said he doesnt want to do an mri

      Even though I've pleeded with them

      So, Basically it is have enough money to see the best experts in the world or just try to live with a brain tumor

    • courtnay26
      courtnay26

      Posted

      Also you may not know but

      Ive had previous mri's that said

      I possibly had a lesion so

      For now I will just take natural medicine

    • courtnay26
      courtnay26 chutney123

      Posted

      Hi Chutney

      Well, I'm in Canada

      Probably similar to UK

      don't have to pay for healthcare

      But there are gaps where the

      Doctors may not know too much

      About pituitary disease, etc...

      You are right about SAI

      But you can respond normally too

      To ACTH test

      Anyhow, We'll see

      I feel okay and I just found out

      I can get an MRI in a neighboring province

      So it might be a nice road trip

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