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I am a 30yo female. I visited Australia in late August. I developed a cold my last few days there, but I pushed through the rest of the trip. When I came back, I felt odd (dizzy, nauseous), but my doctor brushed it off as jet lag. However a couple weeks later I developed more symptoms including intractable headache/migraine, low grade fever, continued nausea and dizziness, lack of appetite, malaise, fatigue, light sensitivity, eye strain, muscle weakness, neck pain, chest pain, insomnia, weight loss. At first the doctors told me I had a virus, but when my symptoms didn't improve after a few weeks, they began to doubt it. My Epstein Barr IGM lab was positive. All lab work was negative. CT scan, MRI, lumbar puncture all negative except my opening pressure on the LP was slightly elevated, so they diagnosed me with idiopathic intracranial hypertension (IIH) and began treating me for that. My infectious disease doctor then told me she believes I never had a virus, and only have the IIH. While I believe that can explain some of my symptoms, I believe it seems clear that I also have mono as well. Even my neurologists think so but won't confirm. In my own research, it even seems mono can cause IIH. I am just really confused and not sure how to proceed in my healing. I have missed over 7 weeks of work due to illness and I still feel horrible. Does this sound like mono? Has anyone else dealt with IIH?
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