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DOCTORS LAUGHED AT ME

Posted , 4 users are following.

kash61308
kash61308

IM ANXIOUS 24/7. hi guys im 21 years old i had epilepsy when i was 6 my doctors laught at me whenever i tell them about my disease hope someone can help me so whenever i hear sudden sounds or suddenly see someone i fall on ground like a tree and starts shaking for like 20 secs. so when i fall my muscle tone loses and i cant move the whole right side of my body (arm and leg). i dont lose consciousnes i even can talk while having the attack . when i walk i dont feel weight on my right leg and its weaker than the left .if im sitting on chair i still will fall my head drops towards the ground with whole of the body. i dont know in formal words what my epilepsy is (atonic,clonic etc) im having (carbamzepine 600,levetiracetam 500, eption 100, clobazam 10,) i feel like i cant get rid of this anymore. none of the MRI helped the doctors they say it normal. am i the only one living with this sound triggered epilepsy? someone please help i have lot dreams.

0 likes, 6 replies

6 Replies

  • shippy
    shippy kash61308

    Posted

    Sounds awful Kash not heard of this before, I completely pass out for couple of minutes and have no knowledge of what’s happened!!

    Really hope you get to the bottom of it

    Thinking of you❤️

    • kash61308
      kash61308 shippy

      Posted

      thanks for the reply mate. do you think im the only one who suffers from this kind of epilepsy? i read couple of threads which have indicated that losing muscle tone having anxiety triggered by sound head drop attacks are epilepsy.. awaiting for your response thanks smile
  • shippy
    shippy kash61308

    Posted

    I do have weakness in my legs and had counselling for anxiety, although still feel same

    Becoming very tired of it all now

    Just need answers been to Specialist but he has to run everything by Consultant which is so long winded x

    • kash61308
      kash61308 shippy

      Posted

      have you been diaognised in MRI? if yes whats in the reports and are you able to work? because i cant due to this epilepsy
  • shippy
    shippy kash61308

    Posted

    No MRI, just had EEG for epilepsy, I have always worked but left in July due to amount of sick time I had.

    Still waiting to hear from specialist emailed him to ask for urgent appointment with Consultant not due to see him till June but really can’t wait much longer, got shakes in hands now so going to finish xx

  • Bobzumba68
    Bobzumba68 kash61308

    Posted

    Living with some anxiety becomes normal, and manageable. Doctor sounds like a loser.  Some of the stuff you mentioned might be caused by other problems like panic attack and low blood pressure. Not sure of your meds, but most cause low blood pressure, which could give you leg problems.See if your doctor will talk with you on natural way to deal with anxiety and taking B12. Explore progressive relaxation to deal with negative chain reaction loud sounds are setting off. Best of luck.
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