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My 10 year old son has been diagnosed twice this year with GS. Both Paediatrician's have said it's psychological and he needs to see a dietician. Never mind that my son can hardly walk, is fatigued, suffers severe stomach pain 24/7, nausea, muscle pain, breathing difficulty and forgetfulness. He has had 3 months off of school and missed out on several Jujitsu comps.
We have done many blood and stool tests, ultrasound and an MRI. Only thing the doctors could find was, mesenteric adenitis(inflamed lymph nodes), high bilirubin, high white cell count due to either allergies or parecites and slightly fatty liver.
There needs to be more research and education on this condition. There are far too many GS sufferers who seem to be treated like it's nothing and to get over it. Something needs to be done. While nothing is being done, I am going to try everything I can to improve my son's symptoms. The first thing eliminating dairy and then fructose etc.
Thank god I got onto this forum, now I know this is a serious condition that has a huge impact on everyday life for so many people.
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