Does anyone else feel like their legs have poor circulation at night?
Posted , 7 users are following.
Hi Everyone,
I enjoy this forum so much. I'm in the U.S., but we all suffer the same from TKRs..
I'm 13 weeks out from 2nd TKR, though getting better little by little. My nights are still awful. I get this feeling in my legs besides the deep ache, of not getting proper blood circulation. I usually end up worrying I'm going to get a clot, so I get up and pace the room. I also still have the overly sensitive soft tissue that hurts when a pillow or sheet touches it. I am awake all night and then can't wake up in the morning. My sleep pattern is all off. I'm so thankful I am not working at the moment. I have been trying to cut down on my pain meds, but tonight I ended up taking an OxyContin and a Percocet. Still awake and it's 3:40 AM. I do my stretches and physical therapy exercises but I'm so frustrated it's taking so long to feel normal again. My first TKR was in 12/14 and went much smoother than my right knee.
Thank you for any advice. I read this TKR forum daily. So helpful to know I'm not alone! What's up with the doctors not understanding the sleep issues we have? It seems worldwide!
Warmest wishes to you all.
Ginger
2 likes, 10 replies
sarah87162 ginger23077
Posted
I had TKR 3 years ago.
Even now (3 years later) I still do not sleep as well as I used to although I do not actually wake up in pain and discomfort anymore and usually get back to sleep fairly quickly.
I hardly ever used to wake during thte night and now it is almost every night withut fail.
This was a real shock to me as i have always been such a good sleeper.
I anticipated all the other things, pain, discomfort, swelling,stiffness having to do lots of physio exercises but did not think I would not be able to sleep.
Hope you are able to get some decent sleep soon.
Take care and keep in touch
Love Sarah xxx
Oldfatguy1 ginger23077
Posted
joeyroe ginger23077
Posted
joyce_61477 ginger23077
Posted
I'm also from the U.S., Rhode Is. I'm 57, post op 22 weeks, bilateral TKR's. I hear what your saying. The medical community doesn't really want to hear about the sleep issues. I still take 5 milligrams if ambien on most nights. But even when u took that, if I was able to sleep it was for no more than 2/3 hours at a time. I never really thought about the circulation issue, but knows maybe that had something to do with it. I am happy to say, however, that week 20 everything changed! I could all of the dudden sleep through the night! At most one bathroom break. Last night I never got got till it was light out! At 13 weeks U was still in the throes of it. No pain or sleeping med would do the trick. Also, I have been perplexed at how much easier might right was from my Left. From what I hear every knee is different in how it heels. It doesn't mean anything is wrong. I have to say my left is only now starting to catch up with my right. So don't worry. Things will get better. At 13 weeks I wasn't so sure, but u am becoming a believer! Good luck!
ginger23077 joyce_61477
Posted
My surgeon had me try capsaicin ointment for the sensitivity. It's fine until the burn of the hot peppers in it kick in a week later when you least expect it. Ice has many uses this time around. Lol it's either laugh or cry! I know I'm dating myself, but I walk like Artie Johnson FYI a Laugh In or the tin man in the morning. 😃
Thank you all again,
Ginger
cheryl90571 ginger23077
Posted
I have "faulty valve" issues due to varicose veins IN ADDITION to my TKR surgery done five weeks ago.the "faulty valves" cause blood to leak and settle in my ankles and feet and will cause swelling, throbbing, and, YES, a deep ache that will keep me awake.
I get relief from wrapping my legs with compression bandages from foot to just below each knee. I wrap them around 10:00pm and leave them on until morning.
The compression bandages work MUCH BETTER than any stocking COULD. They always fit and are quite helpful in eliminating pain and ache.
susan33930 ginger23077
Posted
I too am so frustrated that it's not recovering as quick as I think it should be and with no sleep, a hurting leg and due back at work next week I am just in floods of tears all the time.
in the night, my calf feels abit heavy but the worst thing I feel is when I'm on my side the joint feels really heavy and like it could slip sideways (like my muscles aren't strong enough to hold it in place) - I know it won't but that's what it feels like.
sorry I'm not giving you any advice here, but it's just nice to have someone else with similar feelings at a similar number of weeks as me.
I'm sure we're gonna get there in the end, but I'm really fed up now and even told my husband yesterday that I wished I'd never had it done!
best wishes Ginger x
ginger23077 susan33930
Posted
Yes!! I feel the exact way! Tomorrow will be 15 weeks, but holy moly my calves and kneed hurt! Laying in bed right now praying for a normal nights sleep. I'm on vacation too, thanks to my boyfriend (Sea Ranch, CA) as a bday gift. Just a darn little hike outside to the cliff - maybe 50 ft from the house, gave me that jarring pain feeling which I haven't Fuad since surgery. I'm waiting for that magical week disappears. So glad I'm not suffering alone! I want to be normal again and not walk like a Igor with a leg dragging. Hang in there! We are not alone!!!
joyce_61477 ginger23077
Posted
I hear both of you! I am now 22 weeks post op bilateral TKR and 57 years old. At 12 weeks I was feeling the same way! I couldn't sleep more than an hour or two at a time and had to go back to work at 13 weeks. I was crying several times a day and still in a lot of pain....and had a bad limp. Was difficult to go back to work, but I did it. Around week 18ish the pain was less and amazingly I started sleeping through the night. Wow!!👏🏻. Amazing! Also I stopped limping. I'm not saying that everything is perfect now. I do have a fair amount of stiffness, though it goes away quicker now. I regretted at 12 weeks too, now I know I did the right thing. Though I do believe as many have told me, that it takes a year to fully recover. I'm ok with that now. You both will get through this. It's very hard, I know....and the weeks will pass. I gage my progress monthly now rather than weekly. Good Luck!
susan33930 joyce_61477
Posted
I'm 49 and someways I walk and feel like an 89 year old (apologies to those who are 89!). You have reassured me there is light at the end of the tunnel - it's just that sometimes that tunnel seems to get longer!