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Hello, I've had the globus senseation for over 4 years. I am from the US, and unlike many people here, I can't seem to find any reason for why my symptoms started. The tightness/lump in the throat seems to get worse with stress, but not necessarily reading. Sometimes when I'm sitting on the couch with my head leaning back I'll notice it a little more, but there really aren't that many indicators for me. Maybe I've just gotten used to it.
I didn't take any antibiotics, never had any traumatic experiences. The only thing I can really point to is that, one time, as I was preparing for a college cross country race in the fall of 2010, I had a slight cold. I ran anyway, and I noticed that my breathing seemed to be shallower. Of course, I didn't think anything of it since I had just had a cold, but shortly afterward, for some reason, these weird symptoms popped up randomly and haven't gone away for over 4 years. I started getting the lump in my throat, which never went away. Sometimes, I also experience muscle stiffness and if I tense my muscles, I can't seem to relax them. It's annoying because even my face does this and sometimes it feels really weird smiling because I can't undo the smile immediately.
This is my first time posting here, so I'm not sure what I'm going to get from it, but I guess I just really want to find any answers I can. I have only gone to the doctor once (I don't trust mainstream medicine) and he did some tests and told me I had chronic EBV (Epstein Barr Virus), which is like mono and told me that there's nothing I can do about it except wait (I knew he would say that). Now I'm not so sure because I've tried treatments for EBV and nothing really seems to work, at least not permanently. There have been times where I've gotten my symptoms to recede for a couple of weeks by eating a raw vegan diet and taking supplements, but it never goes away for more than a week or two. I've tried massive amounts of Vitamin C which seems to help somewhat with the muscle stiffness, but that's it'. It never actually goes away. I'm supposed to be moving to China early next year and I just want to find a way to deal with this so I'm not constantly miserable.
Maybe I should try the raw food diet for longer. It's just so hard to do in modern society, as I'm sure you know, and I don't want to have to do it the rest of my life. Does this sound like anyone else here? None of the usual causes seem to apply to me. I've tried GERD/acid reflux treatments, vitamins. I've been tested for thyroid problems and a number of other things, but nothing seems to match it. I know it's not cancer and I don't have any other medical conditions that I know of beside these strange symptoms. It started for seemingly no reason. I just need to know that I'm not crazy and that it's not all in my head.
Has anyone else experienced the muscle stiffness? To describe it a little better, I can clench my fist, but then I have a very hard time relaxing it. It feels like someone is physically trying to keep my fist clenched. This kind of stiffness sensation happens all overy my body and sometimes it will keep me from doing erratic movements like bounding up stairs because my legs will tense up and make me fall down. I can still run, but it's sometimes accompanied by the worst fatigue I've ever experienced, unlike the usual fatigue of exercise with a severe burning sensation in my leg muscles so bad that I have to stop. The fatigue seems to have gotten better with vitamins, but that's it. Nothing else has really improved much as far as the strange muscle stiffness and globus sensation.
Please let me know if this sounds like you or if you know anything about it.
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