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Does anyone else get fatigue that comes and goes in waves

Posted , 6 users are following.

robert45780
robert45780

Hi everyone, as I have stated in previous posts, I have been ill for over 2 years now. My main symptoms have been a permenant 24/7 flu type headache, which is worse in the morning, also a strange dizziness. Plus several other symptoms.

Although I have suffered from occasional fatigue it has not until recently been a major problem. But since I had food poisoning in early November I have had it every day. My limbs  feel as though they have had every bit of energy drained out of them, but I do not feel  mentaly fatigued. I find it  it seems to come in waves and lasts for between 2-6 hours and then recedes, this can happen more than once in one day, but not always.

Is this typical, I am still not sure that what I am suffering from is ME, although I agree it could be. If I had to list the most debilitating symptoms I have I would still say the permanent flu like head and dizziness, although the fatige is becoming more of a problem.

Regards Robert

0 likes, 9 replies

9 Replies

  • mitty999
    mitty999 robert45780

    Posted

    Hi, I get bad headaches. Nearly always starting at the back of the head and then to the front behind my eyes. Actually when I am bad I feel like I have constant flu with aches all over. As for the fatigue, yes it comes and goes but I find it is very much connected with what I have done before.So , if I do anything at all out of bed then I get about an hour , then I am hit by blurred vision and aches and pains.

    If I push it more then I have collapsed unable to walk and I have to retreat to my bed. It works out that the longer I push myself, then the longer I need to recouperate. An hour of gentle work, say wiring a plug, then I am looking at 2 to 3 days in bed. I find it difficult to eat, often I cannot speak, I am so exhausted.

    So exercise does the opposite to what you would expect. . However my specialist calls gentle exercise getting up and making a cup of tea thenback to bed.

    Early on in my ME, I could do a normal day helping do the shopping or putting up a shelf. Then rest in bed completely for a day to make up for it. Now it is only a matter of an hour or so , and I am oftem writhing in pain and have difficluty breahting ( liquid morphine helps with this a lot ) The pain can get to screaming inside and sometimes my painkillers make me vomit.

    ME is nasty. You need to find a specialist, but there are few about. There is good support at the George Elliot Hospital in Nuneaton.

    Again I think everyone who thinks they may have ME must read The Hummingbird  Report, it is online. Stonebird site is also very imformative.

    Best of luck.  Mit.

    • robert45780
      robert45780 mitty999

      Posted

      Hi Mit thanks for your reply. Your fatigue does seem a lot worse than mine is at present, although I do suffer badly from the constant flu like symptoms. What I hate about this is that I have a "better" day, and allow myself to think I may be improving - then wham the next day I am back to hell again. 

      Rob

  • nichola99319
    nichola99319 robert45780

    Posted

    i do find that mornings are worse, then i seem to come round a bit at lunch time, when i get up i need to sit at table and i just go on internet for abpout 30-45 mins to help come round a bit.
    • robert45780
      robert45780 nichola99319

      Posted

      Hi Nichola, thanks for your reply. I can identify with the mornings being worse. I feel almost drugged in the morning even though I have not taken any medication. If I have an early appointment I have to give myself a good couple of hours after getting up, in order to come round.

      Rob

  • nichola99319
    nichola99319 robert45780

    Posted

    thats exactly right, i feel drugged at times, touch wood i have been great for a month since i serioulsy cut down activity. but before that i actually had no go in me in the mornings, i take anxiety meds at night and even reduced them thinking it was them, but obviously not
    • bronwyn97278
      bronwyn97278 nichola99319

      Posted

      Hi Nichola and Rob;  I ?think I may have sorted out the "morning fog" problem......after researching and finding that what we all have in common, is that we Do Not get the REM part of our sleep, as we don't produce enough Melatonin.  Therefore I have been taking a supplement of same (and only one brand actually works for me.......private email if you want the brand)............but have been taking same for over 4 months now, and do not wake up feeling "drugged out", anymore.....I, too, used to have to give myself a couple of hours to get going mentally, but that has ceased, although still have the body tiredness....and it is true that the more we push ourselves, the worse we are............example for me has been xmas...........as all others of family still want to enjoy the family time, I tried to keep up, but 2 weeks later, still just want to sleep....I, too, recommend the Hummingbird website for helping to understand our condition/s.............good luck................Bron
    • robert45780
      robert45780 bronwyn97278

      Posted

      Hi Bron

      Thanks for your reply. I am guessing that you are in the US, as Melatonin is not allowed to be sold over the counter  in the UK  (as far as I am aware). What dose do you take and how long did it take to start helping?

      Regards Rob

  • lottie79644
    lottie79644 robert45780

    Posted

    Hi Robert. Your symptoms seem to match up with that of Lyme Disease. The disease causes flu-like symptoms such as unexplained fatigue, muscle soreness, headaches and fever. It's caused by tick bites and if you have it, you may have a bite that looks like a 'bulls eye' somewhere on your body. It may be worth Googling Lyme Disease and if you suspect you have it, consulting a physician. Remember, the bite could be in a very inconspicuous place such as underneath the hair on your head. Best of luck!

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