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Hi everyone, as I have stated in previous posts, I have been ill for over 2 years now. My main symptoms have been a permenant 24/7 flu type headache, which is worse in the morning, also a strange dizziness. Plus several other symptoms.
Although I have suffered from occasional fatigue it has not until recently been a major problem. But since I had food poisoning in early November I have had it every day. My limbs feel as though they have had every bit of energy drained out of them, but I do not feel mentaly fatigued. I find it it seems to come in waves and lasts for between 2-6 hours and then recedes, this can happen more than once in one day, but not always.
Is this typical, I am still not sure that what I am suffering from is ME, although I agree it could be. If I had to list the most debilitating symptoms I have I would still say the permanent flu like head and dizziness, although the fatige is becoming more of a problem.
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If I push it more then I have collapsed unable to walk and I have to retreat to my bed. It works out that the longer I push myself, then the longer I need to recouperate. An hour of gentle work, say wiring a plug, then I am looking at 2 to 3 days in bed. I find it difficult to eat, often I cannot speak, I am so exhausted.
So exercise does the opposite to what you would expect. . However my specialist calls gentle exercise getting up and making a cup of tea thenback to bed.
Early on in my ME, I could do a normal day helping do the shopping or putting up a shelf. Then rest in bed completely for a day to make up for it. Now it is only a matter of an hour or so , and I am oftem writhing in pain and have difficluty breahting ( liquid morphine helps with this a lot ) The pain can get to screaming inside and sometimes my painkillers make me vomit.
ME is nasty. You need to find a specialist, but there are few about. There is good support at the George Elliot Hospital in Nuneaton.
Again I think everyone who thinks they may have ME must read The Hummingbird Report, it is online. Stonebird site is also very imformative.
Best of luck. Mit.
Thanks for your reply. I am guessing that you are in the US, as Melatonin is not allowed to be sold over the counter in the UK (as far as I am aware). What dose do you take and how long did it take to start helping?
Hi Robert. Your symptoms seem to match up with that of Lyme Disease. The disease causes flu-like symptoms such as unexplained fatigue, muscle soreness, headaches and fever. It's caused by tick bites and if you have it, you may have a bite that looks like a 'bulls eye' somewhere on your body. It may be worth Googling Lyme Disease and if you suspect you have it, consulting a physician. Remember, the bite could be in a very inconspicuous place such as underneath the hair on your head. Best of luck!
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