1. Community
  2. Brain and nerves
  3. Neuropathic Pain

Does anyone else have these small fiber neuropathy symptoms??

Posted , 3 users are following.

Hayhue
Hayhue

Does anyone else experience this with their small fiber neuropathy?

Twitching mainly in my legs (thighs, calves) but can come and go elsewhere. It is NOT in my tongue or eyeballs. I also experience joint pain in the knees and elbows. My legs feel stiff a lot and heavy. Makes it hard to walk at times.

I have some bilateral numbness that comes and goes in my shins, forearms, & face. *My main complaint is the heavy legs (sometimes arms) and not being able to walk for a long time without legs stiffening.*

Anyone else?

I had a nerve conduction test. MRI/CT of brain. Blood work, etc. - all good.

0 likes, 3 replies

3 Replies

  • al35091
    al35091 Hayhue

    Posted

    To conclusively prove small fiver N, a tissue biophy is needed, where the small fiber nerves are compared against a healthy, known amount.  I takes a week or two for the wound "holes" to heal.  But it is the diffentive answer.  From there, its up to the neuroligist to decide the meds. There is no cure, the best I have found is R Alpha Lipotic Acid pills.  Check it out at Linus Paling Institute, Univ. of Oregon.

    • Hayhue
      Hayhue al35091

      Posted

      That's what I heard as well.

      I'm wondering, though, if these symptoms are unusual for SFN as I fear I may have been misdiagnosed.

  • marshall71
    marshall71 Hayhue

    Posted

    Having a skin biospy soon I have everything you have said leg spasm

    In both legs they feel heavly arms the same pain in knees joints

Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.