Does anyone else lose their voice

Posted , 8 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

Hi I was recently diagnosed with CF...every time I crash My voice goes hoarse (like having laryngitis) this can happen for days or weeks accompanied by tense aching shoulder and neck...hard when I am a teacher. Does anyone else experience this?

0 likes, 5 replies

Report

5 Replies

  • Posted

    Hi Carol

    I do loose my voice alot but it is not solely associated with the ME for me.

    Although having said that ME does cause me to have a sore throat. It could just be you suffer more in this area than others. I do however find i have excruciating neck and shoulder pain which I will often ease with a sports massage. This causes me to have increased migraines and at times I can't turn my head.

    Hope you find relief xx

    Report
  • Posted

    Hi - I have a friend with M.E. who can totally lose her voice for weeks at a time. This seems to happen when she's done to much. I have M.E. too and sometimes feel my voice gets weaker and hardly have the energy to speak when I've overdone it. You could possible try listening to a relaxation CD during breaks when you are working as they can be really helpful to help you switch off and regain some energy. Also make you drink plenty of fluids or have some fruit to keep your throat moist. For your shoulders you could try shoulder shrugs. Let your arms drop down by your side and lift your shoulders up towards your ears then let them drop down. Do this a few times and you feel feel the tension coming out of them. Hope you find something that works for you.

    Report
  • Posted

    Hi Carol,

    I too was a teacher and that used to happen to me every few weeks, at first I thought it was just my job taking its toll on my throat, I later learned that it was a very unusual quirk of CFS. Sadly due to CFS and Fibromyalgia I can no longer work...I hope you are luckier.

    Report
  • Posted

    Yes same here.. sore throat comes and goes and my voice goes if i talk too much or have a viral infection etc.  Also the neck pain that goes down into your shoulders i get that alot too and yes mine also contributes to headaches and migraines.  I think the throat thing is to do with localised inflamation in that area... i can also get a cough too if i talk too much. Te neck and head pain again is linked to low grade inflamation in the brain.. a bit like a mild menengitis, which is why the pain goes into you neck and it becomes stiff... All the joys of CFS im afraid.. it does not leave any system untouched sadly.

     

    Report
    • Posted

      Thank  you for sharing why the neck and head pain occurs.  I was just miserable from this last night.  Somehow it helps to know the WHY of it , and also that I am not the only one who experiences it.  I was getting so many migraines that I now receive Botox treatment.
      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up