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Does anyone else lose their voice

Posted , 9 users are following.

carol66175
carol66175

Hi I was recently diagnosed with CF...every time I crash My voice goes hoarse (like having laryngitis) this can happen for days or weeks accompanied by tense aching shoulder and neck...hard when I am a teacher. Does anyone else experience this?

1 like, 6 replies

6 Replies

  • agentdove
    agentdove carol66175

    Posted

    Hi Carol

    I do loose my voice alot but it is not solely associated with the ME for me.

    Although having said that ME does cause me to have a sore throat. It could just be you suffer more in this area than others. I do however find i have excruciating neck and shoulder pain which I will often ease with a sports massage. This causes me to have increased migraines and at times I can't turn my head.

    Hope you find relief xx

  • elaine62759
    elaine62759 carol66175

    Posted

    Hi - I have a friend with M.E. who can totally lose her voice for weeks at a time. This seems to happen when she's done to much. I have M.E. too and sometimes feel my voice gets weaker and hardly have the energy to speak when I've overdone it. You could possible try listening to a relaxation CD during breaks when you are working as they can be really helpful to help you switch off and regain some energy. Also make you drink plenty of fluids or have some fruit to keep your throat moist. For your shoulders you could try shoulder shrugs. Let your arms drop down by your side and lift your shoulders up towards your ears then let them drop down. Do this a few times and you feel feel the tension coming out of them. Hope you find something that works for you.

  • millie88144
    millie88144 carol66175

    Posted

    Hi Carol,

    I too was a teacher and that used to happen to me every few weeks, at first I thought it was just my job taking its toll on my throat, I later learned that it was a very unusual quirk of CFS. Sadly due to CFS and Fibromyalgia I can no longer work...I hope you are luckier.

  • littleme1969
    littleme1969 carol66175

    Posted

    Yes same here.. sore throat comes and goes and my voice goes if i talk too much or have a viral infection etc.  Also the neck pain that goes down into your shoulders i get that alot too and yes mine also contributes to headaches and migraines.  I think the throat thing is to do with localised inflamation in that area... i can also get a cough too if i talk too much. Te neck and head pain again is linked to low grade inflamation in the brain.. a bit like a mild menengitis, which is why the pain goes into you neck and it becomes stiff... All the joys of CFS im afraid.. it does not leave any system untouched sadly.

     

    • dawn94288
      dawn94288 littleme1969

      Posted

      Thank  you for sharing why the neck and head pain occurs.  I was just miserable from this last night.  Somehow it helps to know the WHY of it , and also that I am not the only one who experiences it.  I was getting so many migraines that I now receive Botox treatment.
  • Jersey76
    Jersey76 carol66175

    Posted

    How interesting ! I have been looking fir others who have this problem . I always lose my voice completely when I have an ME slump from over exerting . No sore throat just silent but with a fuzzy foggy head . Can last a couple of days . I was told by an ME specialist many years ago that it was neurological . Only cure is rest

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