Does anyone else share my symptoms?

Posted , 5 users are following.

This discussion has been locked due to a period of inactivity. Start a new discussion

This forum is great and I've learnt so much, especially about the borax, been helping a lot with infusing. What I would like to ask is anyone just suffering from white skin and fusing on the perineum/fourchette bridge area? My Dermatology Consultant said it was LS, but I had to have silver nitrate treatment on my vaginal cuff up inside a few months after a hysterectomy in October last year, and the white skin and fusing started right after that. Any ideas/advice would be much appreciated.

0 likes, 5 replies

Report

5 Replies

  • Posted

    ?My LS is just like yours.  Im sorry you have had to have other "Gynae" treatment other than LS.  I do know that LS is never in the vagina itself (different type of skin surface, i think), so possibly its just a coincidence, or Ive read that LS could be an auto-immune problem, so the huge surgery could have put your body under a great stress, and sparked it off???

    Report
    • Posted

      Thanks for your reply Caz :-) Tbh I was so hoping it may not be LS after all...... don't we all?!?! But of course, no two people with the same condition will suffer all the same symptoms. My fusing is improving a lot with the borax, but may ask again about surgery at my next appointment in March if I'm still too tight in that area to have sex without splitting a bit. My consultant mentioned a double Z-Plasty with v y advancement for future consideration. I live in Cornwall myself. Have you been seeing a dermatologist who specialises in vulva problems? Have you considered surgery too? It's good to hear from someone who shares my symptoms, thanks again x

      Report
    • Posted

      I'm in Wales.  Ive got my first Gynae appointment at the hospital in the morning; my GP diagnosed me a couple of weeks ago.  My adhesion seems to be only little, so havent considered surgery.  It will be interesting to see what the hospital says tomorrow.

      Hopefully it will be "carry on with the cream and see you next year!"

      Report
    • Posted

      Oh I see, glad for you Hun. Two GP's I saw didn't think it was LS, but I opted for a referral to a dermatologist rather than a gynae and it was actually the Vulval Clinic I ended up at for my first appointment early October. As you said earlier, I also think the hysterectomy/menopause etc last year probably triggered my LS. I'm 57, on the usual Clobetasol, oestrogen cream externally, Vagifem internally, emollients etc, but using oils and borax solutions too. There is definitely improvement, thank God. I can now see my vaginal lips emerging again around the fourchette area. I am trying to take positives from some women who say the LS can be successfully managed and not impact life too much. I do use dilators etc but hope to enjoy sex again at some point. Good luck tomorrow Caz x

      Report

Join this discussion or start a new one?

New discussion

Report as inappropriate

Thanks for your help!

We want the forums to be a useful resource for our users but it is important to remember that the forums are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the forums is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.

newnav-down newnav-up