Does anyone experience the same as me

Posted , 4 users are following.

i have been going to the doctors for seven years of my life i only just turned 19. it all started with severely bad chest pains that was making me feel as though i was going have a heart attack, i kept going to the doctors and hospital had countless ECG checks everything was fine thats when more pain started to arise id get twitches in my neck, tingling in hand/legs/fingers and toes, i get severely bad cramping all over, i cant lie in certain positions as it feels super uncomfortable almost as though my body cant handle the weight as well as any type of pressure on parts of my body, certain days are worse than others and some days are that bad i can barely dress myself from being so weak, constantly dizzy. they told me it could be acid reflux but that did not help any, then it was supposed to be a pulled muscle, more months down the line it really could not have been a pulled muscle and then it was all down to anxiety and depression i feel as though i am only sad because of this pain i used to be a very happy person . i felt as though they were never going to get to the bottom of it. spending day in day out with a hot water bottle to help the pain. although i have the chest pain everyday now that i have kind of got used to living with it for so many years its almost as though my pain radiates through my body one day its my back, legs, arms that are sore then the next it could be everywhere. it feels as though i am getting chinese burns on different parts of my body from the inside (i know it may sound strange) starting from last year i have had really bad problems with my weight no matter how much i eat i cant seem to put anything on. i also get the most horrendous stomach cramps along with switching from diarrhea/ constipation within hours , which i know now that both fibro and IBS are linked which makes me think even more so that this could be the cause. i could go on and on as the pain is endless. i still go to the doctors and only today have i got as far as to get an appointment with a specialist, so i hoping to get i tiny bit further as i am getting rather fed up of this all now. feel like after 7 years i am still going to be typing up all my symptoms trying to find out whats wrong with me. at my whits end

has anyone else had these same problems any help is greatly appreciated

thanks so much in advance

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  • Posted

    This all sounds quite horrendous, what other tests have you had apart from the ECGs? Have they ever done a muscle biopsy, or poo test or anything else?

    The range of pains you describe, along with the amount of time you've been experiencing them, don't sound like they're nothing so it's good that you've got a specialist appointment - finally!

    Have you kept any kind of diary of what's been happening with you? It will help you and the specialist to see what problems you've had and when so try to write some kind of record if you haven't kept one.

    Have you parents been supportive of you as you must have been quite young when all this started? Sometimes people dismiss things because you're young, or a girl (girl problems!) or something but the chinese burn pains and the weight loss and stomach problems all sound a bit worrying. Hopefully your specialist will be very understanding and do some thorough tests to try to sort out what your underlying problem is. And hopefully it's something that easily sorted out with the right kind of diet or supplements.

    Good luck - come back and let us know how you get on.

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