Posted , 9 users are following.
Hi
I've noticed every day I wake up and feel angry, I guess it's just being tired of being sick worrying so much. Do any of you just feel angry? Feel like your life is not your own anymore? Just feel irritated angry all the time. Do you ever do is cry?
0 likes, 29 replies
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kieran03144 patty818
Posted
I have been suffering with vestibular neuritis for around 7 months now and i still have my bad days where i feel like im never going to be the same but I can assure you will! Although i am not 100% better i feel i have come leaps and bounds from when i first started suffering with this. Its one of those things that does just take a while to recover from but it will happen and i completely understand your feelings as i used to feel like i was never going to get better, however im now extremely confident i am going to make a full recovery and confidence only speeds up recovery. Drop me a message or reply on here if you or anyone here needs to chat. I am 19 years old so i did feel like i was missing out alot in life due to this but it does get better. All the best!
royalty kieran03144
Posted
It's lovely to hear that you are coming on now in leaps and bounds Kieran must be awful and so young to be suffering with vestibular neuritis I'm sure you did feel you were missing out on such a lot may your recovery continue and best wishes
patty818 kieran03144
Posted
Hi Kieran
Goodness I'm so sorry your going through this at such a young age, I can only imagine how you must feel, missing out things with your friends because you just can't do them. But it sounds like your feeling better, which is wonderful. I hope you do make a full recovery and can get out there and find your life. Thank you so much for your reply, it helps knowing someone is recovering and gives me more hope.
tasha_98841 patty818
Posted
YES. Especially when doctors have no clue and seem to not care and your friends family and co workers think you're on drugs or just lazy. The constant fear which replaced a vibrant active happy woman who was an engaging and fearless mother has now become a single mother who needs people she doesn't necessarily want to have to depend on for usual daily tasks. Its tiring and disheartening to say the least. I cry when I need to and expect the emotional outbursts to be tolerated by those around me. I have a policy I live by now and it goes "ALL SKEPTICS WILL BE SHUNNED " . I have turned to essential oils, chakra healing meditations and self loving things and don't care who thinks im crazy. This want who I was before and i will continue to be positive and let the emotions flow no matter what those emotions may be. We have nothing to apologize for including being angry this is happening to us. It will be alright and I even admit to feeling jealousy at times if I see someone never taking care of themselves immensely overweight and they don't feel like we do. Drink tons of good filtered water and rest whenever you need to. The world was too heavy and its now time to put some of it down for ourselves. This is a sickness and healing takes mental and emotional tolls. Roll with it baby. Anyone who doesn't understand doesn't deserve to be in your healing yet emotional bubble. We will be alright. We will.
patty818 tasha_98841
Posted
Hi Tasha
I remember you also replied to my post on the propranolol board the other day. I think or hope that might be leveling out some, at least the nausea has gone and today I don't have that awful headache I had. Been keeping up with the blood pressure as well. I see you may also have hypothyroidism, I have that as well, have had it for 16 years. Its been crazy with those levels over the past year with all this MAV stuff going on. Now i'm finding out the propranolol also can lower the thryoid levels, especially the T3 level which is the hormone that causes pain in the body, so i'm wondering if the neck,shoulder and head pains could be that or just plain ole stress.
But I understand when you say, let go of those people in your life that can't be supportive. I guess i"ve been very lucky there, because all my family and friends even my co workers are very supportive and helpful. I just don't let the emotional side be shown to much with them, they have enough to deal with I think when it comes to my dizzy days. But i do find i'm irritated a lot more when i'm stressed and that of course comes out, but I try not to take it out on anyone.
But this MAV disorder is quite a tough bird to deal with, one day or even one hour you can be fine and then the next your on some crazy dizzy ride and you don't know when it will end. So it gets a bit depressing. Today was one of those days and I just needed to talk to others who can understand and not get upset because i"m upset.
I thank you for listening and your understanding.
tasha_98841 patty818
Posted
patty818 tasha_98841
Posted
I'm hoping this propranolol works and I don't get some side effect 6 months from now. If you don't mind my asking, why didn't you like the med?
I also have xanax for the really bad days and it seems to work pretty good.
I'm hoping the levels of the thyroid hormone are okay, at least with that I can usually tell the effects when the levels are off, I've been dealing with it for so long.
I do rest when I can esp on bad days, I've even started not coming to work if its bad enough, I figure I can't work and be like this so I mine as well rest so I can recover sooner.
Lindadizzy patty818
Posted