Does anyone feel weird in open spaces?

Posted , 73 users are following.

So ive been complaining about this for so long but with little support or answers to what it is i just get told its all anxiety. Anyway when im in any open spaces mainly in supermarkets or shopping centres and even in my house, i feel panicked in open spaces like i feel detached from my body and numb and loss of control so i feel on edge because i feel like i need to hold on to something. The strange thing is if im pushin a trolley, or the pram or holding on to someone i feel fine. I just feel like i cant feel my body when im walking unaided in open spaces. Does anyone get this? I cant remember the last time ive went to town on my own because of this feeling, its almost a feeling of unbalance like i feel like i could fall x

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  • Posted

    Hi

    I am wondering as anyone had a diagnosis?

     

    • Posted

      No one I consult seems able to help.

      With me it may be Complex PTSD.

      I saw a psychiatrist for a year. He just praised me for getting through

      difficulties so well and said that the vertigo would disappear.

      He said it was repressed anger.

      I still think it ay be middle ear.

      When I have time I will follow this up again.

    • Posted

      That would be great,I'm struggling massively with my symptoms.

  • Posted

    glad im not the only one always makes me feel useless as i have 2 young children so im fine normally when taking them out but also feel funny when im near any tall buildings or in an open town centre has anybody had any help from your gp or anywhere else as ive tried therapy before with therapy for you but that didnt really help
  • Posted

    I have been this way since I was 5. I hate it!!!! I'm 26 and still trying to get over this. I work at the airport to help me get over it but it's not working as much as I need it to. I also took anxiety medicine but that did not work. It's hard to pursue your dreams because you feel trapped. I'm going to try klonopin and see if that helps. Does anyone else have any valid suggestions?

  • Posted

    Yes Moo I have had this for forty odd years the bright lights doesbt help and the flooring mekes it worse! I dont know why but tiled flooring sends my brain into overdrive x
  • Posted

    Hi everyone. I saw this forum and joined just to reply to this post! While I can't diagnose any of you, I would suggest you look into dysautonomia. Dysautonomia is an umbrella term covering disorders affecting the autonomic nervous system (basically affecting every automatic function in your body). The most common type is POTS (postural orthostatic tachycardia syndrome). It is very commonly misdiagnosed as anxiety, as blood tests and scans are usually normal! It causes a raised heart rate (tachycardia) when upright and causes many symptoms such as dizziness, digestion issues, temperature regulation problems, fainting, chronic pain, visual disturbances, sensory overload, sleeping difficulties, tremor, shakiness, abnormal drops or raises in blood pressure, migraines, headaches, fatigue, palpitations, shortness of breath, chest pain, etc (and many more). not everyone will experience all of those symptoms. Most doctors don't know what this is!!!! It can go undiagnosed for many many years in some cases. I know of people who didn't get a diagnosis for 20 years! It is usually diagnosed by a cardiologist, but you would have to find one who is specialised in dysautonomia, as some cardiologists don't even know what it is. Please see www.dysautonomiainternational.org for more info. They have information on all of the specific types of dysautonomia, what the symptoms are, how to get diagnosed, etc. and they have a list of dysautonomia-knowledgeable specialists around the world, according to area. I hope this helps some of you to find answers, so that you don't have to feel like you're going crazy anymore!!! P.s. Shops are the worst symptom triggers, with the light, noise and heat, it triggers off symptoms badly, and people feel much worse. I have a type of dysautonomia called hyperadrenergic POTS

    • Posted

      Thanks, Andikay. I am definitely going to look into this. My son still doesn't really like being in open spaces or places with high ceilings and my instinct tells me that this is more than just anxiety. I will let you know how we get on.

    • Posted

      You're welcome, and now good luck! Another thing you could look into is sensory processing disorder. There can be many causes for these types of symptoms. Don't get me wrong, sometimes it can be an anxiety disorder, but many times there is an unknown underlying cause. I shared about dysautonomia because there is still limited awareness of it, yet it's estimated to affect 70 million people worldwide, and 1/100 teenagers will get POTS. Unfortunately these people often get told it's anxiety, or all in their head and that they're hypochondriacs. Often chronic fatigue syndrome, fibromyalgia, IBS, etc comes as part of it, or coexisting with it too

    • Posted

      What is the cure?   How do we get better if we in fact have Dysautonomia?  Where do we start, does one need  a referral to a cardiologist or are there steps we can do on our own? 

      Thanks for you intellect and input.

  • Posted

    I used to experience that too.. but i realised that once i get used to the place , the detached feeling goes away also.. like i need to go to that place a few times and get used to the surroundings and then i feel better.
  • Posted

    I'm so happy to have discovered this chat. It's so good to hear from others but unfortunately, it seems there is no solution sad. It started for me after i had my second son 5 years ago, but it wasn't this bad. Lately, it has become worse. Ive had a brain CT scan, an MRI, blood tests, seen a neourologist and also seen an Ear doctor. Everything is normal. Based on these chats, it seems that this is anxiety. I will follow up with my doctor and maybe she can refer me to a psychiatrist.

    I'm okay walking on carpet and on concrete (if it is not wet)... curious if anyone feels the same.

  • Posted

    Hi everyone...just an update. I still get these symptoms sometimes its managable though. I was told by ENT that it is a balance problem so I do balance exercises daily. Still no major improvement since starting them 4 months ago but i guess it can take a long time and also may never go but i can only hope. The balance therapist basically said to keep as active as possible and to do exercises which require you to use your eyes a lot like passing a ball etc... she said most of her patients with the same symptoms say the same thing ie its worse in supermarkets, shopping centres and open spaces. She said theres no guarantee that this will go but I had this as a child briefly and it did eventually go. She recommended i see a therapist as she thinks although there is a problem there that it is increased by my anxiety and constantly worrying and thinking about it. Also i have been tested for POTS by having a tilt table test and it came back normal along with various other cardiology tests such as an echo, event recorder monitor, bp monitor etc...
  • Posted

    I feel dizzy only when I walk around and am around, sitting and laying down I am fine. I also feel dizzy at the grocery store, or around a large crowd. This has been happening for about 6 months. Lately almost every day. Please give me some feed back. Thank you
  • Posted

    Hi I know that this discussion was posted a year ago, but I have to say I am having the same problem. I have felt weird in open spaces since my freshman year in college which was like 2010. That was when I used to drive myself to school. The first time I felt it was when I was heading to my car after a night class. It was the only car in the parking lot and it was in the middle, which was just great. I was terrified. I started feeling lightheaded and felt like I wanted to fall. I wanted to call my mom, but I forgot I left my phone in the car. I tried to look to see if somebody else was around, but I was afraid to move. So I decided to try to walk to the car, horrified as I was, trying not to think about it, crying. I finally managed to get to the car, releived. The next day I had my mom drive me to the doctor. I tried to tell them what happened and they thought it had something to do with my vision. So I went to get my eyes checked and I got a pair of new glasses later that year. Still didn't help. Trying to get some excerise and taking the trash out is like a chore now trying to cope with this thing. Now its like I have to be with someone in order to get across my own parking lot. I have never had a fear of open spaces, but now it just keeps growing.

    I think I should also mention that I love playing video games, playing on the computer, and watching movies. I also suffer from anxiety too. I don't know if any of these things might be playing a factor in this so called dizzyness/ lightheadedness feeling, but I kind of wish that it would go away. I feel like Im afraid to step outside now, so Im spending a lot of my time in my room and I hate thatsad

    • Posted

      I just don't understand why I feel fine sitting and laying down. It's only when I walk around. I to have anxiety and I'm sure that contributes to the situation of being scared and not wanting to be around a lot of people. I can't describe it. I have a doctor appointment next week. Do you feel dizzy all the time? I go a day and feel fine or even hours. Maybe 5 hours of the day are just unbearable. Thank you so much for talking to me.

    • Posted

      Hey Amanda. It's interesting you bring up the point about gaming and computers, etc. I've always been the same way and I can't help it wonder if this contributes to it. I usually notice if I've been staring at a screen all day, especially gaming, it makes my symptoms worse.

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