1. Community
  2. Women's health
  3. Endometriosis

Does anyone get pain when exercising/running or on long walks?

Posted , 4 users are following.

CSparks
CSparks

Hi all,

I've been to see my Gynae today. I've got an endometrial cyst which is now 2.3cm on my right ovary and a 'normal' cyst which is 3.3cm on my left ovary.

My doctor seems to think the severe pain I'm getting is due to endometriosis and not my new Mirena cook or the cyst.

I can no longer run (I used to run between 6-8 miles 1-2 times a week) as I end up in a crippling pain, light headed and dizzy. I also end up in pain after I go to the gym. I've started going on long dog walks as I've put on weight through lack of exercise but after 45 minutes I start to get pain too.

When I asked my gynae about this today he couldn't explain or even guess what this pain was due to.

Has anyone else had pain when exercising/running/ long walks?? I'm not convinced this is just my endometriosis as he keeps saying it is!

0 likes, 8 replies

8 Replies

  • laura-lee86160
    laura-lee86160 CSparks

    Posted

    Yes! It took me a long time to figure it out actually. I was doing aerobics/running and weight training.....and kept getting cramps and pelvic pain after working out. I didn't associate the two because they always told me that exercise is great for endo. But after cardio, running or circuit training, anything with vigorous motion/jumping, I get cramps and back pain. I googled and asked my specialist and he said that some people have endo flare ups from certain actitivies. I do not get this reaction from low impact walking or yoga. It only happens immediately after vigourous exercise. So yes......I would say it very well could be endo!

    • CSparks
      CSparks laura-lee86160

      Posted

      Hi Laura, 

      Thank you for this. When my doctor was saying he had no explanation for why this was happening, it made me think maybe something else was going on and being overlooked. 

      Do you just do low impact exercise and yoga instead? I've gone up a whole dress size since this has all been going on and im finding it really difficult not being so active! 

    • laura-lee86160
      laura-lee86160 CSparks

      Posted

      Hey! I am on visanne right now which is helping.......but I am still getting flare ups after doing exercise. Still trying to figure out what bothers my endo and what doesn't. Right now walking and yoga seem to be okay but when I combine with heavy intensity or aerobics, it gives me cramps and back pains. I am hoping the visanne will allow me to do whatever exercise I want! I have also gained weight and am extremely bloated from the visanne, so getting some good sweat sessions in would probably make me feel better smile

    • CSparks
      CSparks laura-lee86160

      Posted

      Its hard to know isnt it, exactly what triggers it. Im having literally the same problem, but the walking just isnt helping me shift the weight ive put on and my shape has changed as im not doing the weight training and cardio. 

      Whats Visanne and what does it do to help? I've not heard of that before, but happy to look into anything that may help at this point! 

      Thanks for all your help with this! smile 

    • laura-lee86160
      laura-lee86160 CSparks

      Posted

      Visanne is dienogest which is a class of progestins that act like progesterones in the body. It was just approved in Canada (where I live) a few years go. It's not yet approved in all countries. It's helping but the side effects suck.....extreme bloating, weight gain and breast enlargement/tenderness, headaches, sleeping issues, etc. I feel like exercise would make me feel better but I am not having much luck with that right now. I did a really light workout last night but still had a pain flare up! So annoying. Going to try again tonight. xo

  • dee35669
    dee35669 CSparks

    Posted

    I had endrometriosis of stage 4 and believe me , they are really painful. I had a total hysterectomy at the end and am finally painfree. Be careful as endrometriosis could spread , mine was on my ovaries and part if my bowl ! So be careful, have it checked out/ treated quickly.

    Apparently endrometriosis cannot be seen by any scan , IRM or Xray. Its only by doing a Laparoscopy, it will get confirmed.

    Xxx

    • CSparks
      CSparks dee35669

      Posted

      Hi Dee,

      Thanks for this. I had endometriosis previously and had it removed by laporoscopy, but it just wasnt anything like this previously. But maybe this time round it is worse and thats why its affecting me so badly. 

      My Gynae has put me on the waiting list for a laporoscopy but its not an urgent referral, despite the amount of pain and problems im getting, so i dont think ill be seen before December. I hope it doesnt get worse/spread before then! xxx

  • jana1984
    jana1984 CSparks

    Posted

    I have the same problem and also get frustrated when I read everywhere that exercise is the best thing for endo. I get nasuea,lighthedad, dissy and I feel like my breathing is to heavy considering that I usually run long distances. And I also get pain of course. It is really hard to realise that I have to give up so much because of this damn disease. 
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.