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Okay so here is my story, I'll keep it brief:
(19, female, UK)I have always been prone to cystitis. I used to get UTI's after sex. However as I was gertin together with my current boyfriend (about 15 monthess ago) I got a minor uti even though we hadn't had sex. The sachets such as cystopurin that normally get rid of kit didn't wdork, so I got some anti biotics off my doctor. I ended up having a small alergic reaction to them, so I was given a different type once the others had left my system. Those cleared up my uti, or so I thought until a few days later it came back. Since then, I've done constant urine samples, seen urolgogists who appear to be clueless, dome flow tests, ultra sounds, been on all kinds of anti biotics with only one type working (on a one off). All we know is that my cystitis is non bacterial and now, the waysnthat used to relieve my symptoms have stopped working.
So, I need advice.
My cystitis mainly flares after I have sex, its so incredibly painful (burning, urine frequency, fever, tired, depressed) that I can't brinfmtself to have sex. My boyfriend is so amazing patient but after over 6 months of no sex he's getting...a little frustrated, and so am I. Does anyone else have this problem? Any tips on how to stop it?
Any antibioctics that work best? I've only been on amoxicillin (the one that worked once), trimithprin (I cant remember the actual na!e its something similar) and one other that I can't remember. Any advice on ones to ask for?
How do you cope with flare ups?
Do any of you get itching? I got tested about 8 months ago for thrush and it was negative. I havwnr been given any creams and the itching has got worse and worse, its driving me crazy!!!
Do any of you feel tired? I feel tired all the time since developing this problem.
Even similar stories will help me, I would just really really appreicste some advice as I am new to this and feel so hopeless.
Doctors have given up on me and, without seeming over dramatic, it really is ruining my life.
(Sorry about typos and thank you for reading my ramble!)
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