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  • Goldie2016 2

    Solution for Recurrent Cystitis NO antibiotics

    Dear all, I have been going through hell with recurrent urine infections up to a point I did not have any available antibiotic in the market anymore that would cure me. Preventive antibiotics right after sex would not avoid the infection either. The antibiotics would lead into a vaginal yeast

    9 replies 0 votes Last reply
  • tansy cupcake 2

    the things that never get mentioned

    I'm new to this forum, and love it. Have had countless UTIs /cystitis, one kidney infection, urine specimens sent off, pelvic ultrasounds, etc.  I'm trying to manage and have been doing well, without a UTI for 8 months -  until last week. I've made a concerted effort to dothe drink a

    7 replies 0 votes Last reply
  • TheCatWoman 1

    Cystitis and topical estrogen?

    Hi, Fellow-sufferers, I've recently read a magazine article that suggested topical, vaginal estrogen for the prevention of post-menopausal cystitis. Does anyone have any experience of using this?

    7 replies 1 vote Last reply
  • kim90481 2

    UK cystitis sufferer

    OK it's 2.54 am Ive been sat in agony on the loo for 3 hours but after suffering from cystitis since I was 12 years old I am used to this. I have had several tests including ultrasounds, cytisccopys and also radiation testing, Mri scans but no answer have been found. The main concern was my

    9 replies 0 votes Last reply
  • laura55079 2

    I don't know how much more of this I can take

    HI everyone I don't even know where to start. I'm 37 and on day 6 of cystitis and seriously considering just moving into my bathroom! I have had water infections on and off for the last 4 years. They tend to occur when my IBS flares or after sex. I have been to the doctors so many times some

    12 replies 1 vote Last reply
  • louise01611 2

    Recurring UTIs

    I am currently in hospital with a uti and kidney infection. It is my first time being hospitalised with this. I am absolutely petrified of having to come back and keep being admitted to hospital. I am also scared of being immune to antibiotics as I am already allergic to penicillin, which rules a

    3 replies 0 votes Last reply
  • t6ixty 2

    New update

    Hi everyone here is the latest I went in to surgery for a third time to remove all the kidney stones, that they still can NOT tell me how or why they This was the worst surgery of them all, they told me they removed them all and I would be Two days later I passed 4

    0 replies 0 votes Posted
  • annabelle195 2


    I am 47 years old and I have been suffering on and off for almost two decades with bladder inflammation.   Yes, on occasion I have had Urinary Tract do know what those are, but througthout the years I have questioned my pain after many negative urine cultures time after time.    I

    20 replies 0 votes Last reply
  • samilia 2
  • Clair123 2

    My journey to being diagnosed with IC

    Thought I would tell my story and perhaps it may help for anyone who is suffering the same symptoms and not sure what to do. At the end of 2014 I was informed that my routine Cervical smear came back showing abnormal cells. Within a few days I was in hospital and getting treatment for stage 3 CIN (

    2 replies 2 votes Last reply
  • sandy2323 1

    recurrent Cystitis? What is going on with me...

    Hi everyone I'm a 24 year old female and I honestly don't know what's going on with my UT, please help me! In 2013 december, I had my first bladder infection. I felt bladder pain during the end of urination process and I was given seven days of macrobid by the doctor without doing the culture

    2 replies 0 votes Last reply
  • kelly03883 1

    IC, urethral syndrome or just rotten luck?

    Sorry guys, this is a LONG story. Before 2011 I had had the occasional very mild case of cystitis. Maybe once every couple of years. Then on a family holiday in the US I developed extremely painful cystitis. You cannot imagine (or some of you probably can) the burning sensation and urgency. We had

    17 replies 2 votes Last reply
  • kaydi 3

    Refused antibiotics for cystitis

    I have suffered cystitis and kidney infections since in my teens which eventually killed one of my kidneys. I was referred to a specialist when the infections became frequent again in my late 30s but he told me the infections were psychosomatic! He decided this because my urine samples rarely

    6 replies 0 votes Last reply
  • rebecca99923 2

    Finding the cause of recurring cystitis

    Hello all, I am unfortunately a sufferer of recurring cystitis. I have had every kind of pain when i get this - extreme burning sensation during and after I go to the toilet, a sudden urge to go straight again after I've been, and really bad abdomen and back ache, so I know how bad it is! Every

    9 replies 4 votes Last reply
  • LuvMyBichon 1
  • Marylh 2

    New to IC Land

    i am new to this latest version of hell and have been researching for the last few weeks. I've had my symptoms with little let up for about six weeks now. I've seen two docs, most recently my gyn and have had an ultrasound which proved to be clean. Next will be a urologist. I've studied the nasty

    29 replies 0 votes Last reply
  • leanne22972 2
  • johnwayney 2

    White bump on penis

    I have a white bump on my penis that just appeared a few weeks ago. its been getting bigger recently. it is hurting when touched. What could this be? What should i do?

    3 replies 0 votes Last reply
  • colbyadkins 2

    Ear Problem

    I had a pimple on the back of my ear. I popped it and i thought it was going away and it turned into a bigger bump that has a hard skin over it and it won't pop or anything I had this problem for 1 or 2 years. What should I do?

    6 replies 1 vote Last reply
  • mary30314 1

    Biopsy appears to show I C what questions should I ask

    Hi looks like I have IC. Had cystoscope 10 days ago after several bouts cystitis culminating in one in November which lasted over a fortnight on and off apparently a super bug called pseudomona possibly picked up in a Jacuzzi whilst on holiday. After trimethoprim nitrofuranton kefatin tried

    1 reply 0 votes Last reply
  • paisleygirl 3

    too many UTI's at my wits end

    Hi all I am a 60 year old 9 year post menopausal woman and these last couple of years I have been battling uti's at least 3 in a year maybe last one they found bacteria ecoli and put me on cipro for 5 days after finishing the meds two days later the symptoms of feeling like I need to

    11 replies 0 votes Last reply
  • Lion Heart 2

    Not sure if this is the right place - please help

    Hi everyone. I recently had an issue where I cannot stop the feeling of wanting to go to the toilet. This also happened back in September where after many negative UTI results I ended up going into the emergency and they gave me an IV of antibiotics and bam it went away. Fast forward to a month

    5 replies 0 votes Last reply
  • sarah84630 2

    Urine Frequency After Cystocopy

    Hello! On Monday I had a cystocopy done where they found that I had IC and preformed a procedure to expand my bladder so it could holf more and also got rid of ulcers and bleeding. Well, it's almost a week later and the frequency to pee is WAY worse then it was before the procedure!!! I have to get

    1 reply 0 votes Last reply
  • sarah84630 2

    New to IC!

    So just today I had a cystocopy due to pain and my bladder not emptying fully. The preforming doctor found ulcers that he got rid of and then expanded my bladder so I could hold 600 mL instead of 200 mL of urine. In doing so, he confirmed that I have IC. I have to wait until I have a follow up with him,...

    9 replies 0 votes Last reply
  • anne54405 2

    End of my tether

    I have had a cystoscopy and now awaiting a CT with contrast, but in the meantime am just left in pain with serious UTI/Cystitis symptoms. There are traces of blood in my urine and raised white blood cells and I have been told that my triangle area in my bladder is a little inflamed (but this

    1 reply 0 votes Last reply
  • Emma2003 2

    Recurrent Cystitis (HELP!)

    Hello, i am a 20 year old female and have suffered with cystitis since i was 16. It was only when i started dating my current partner who i have been with for a year and 5 months, that i noticed my symptoms were more recurrent. I deal with recurrent cystitis on a day to day basis, even when i don't

    86 replies 0 votes Last reply
  • Marylh 2


    I was hoping to hear from someone who has/is taking the above antidepressant for the pain associated with IC. I've read where there are some dicey side effects associated with this heart arrhythmia and weight gain to thinning hair. Also, I know it can take awhile to feel any effects at all,...

    12 replies 0 votes Last reply
  • christine 56 2

    Ic and the menopause.

    Hi I've been struggling with ic and back pain for years, now I have the menopause to content with as well. I'm 57 I just wondered if there's anyone here in a similar position? I feel so lost and alone, I can't imagine things getting any better. Thanks for listening.

    1 reply 0 votes Last reply
  • emily53132 2

    How to start investigating recurring cystitis

    Hi everyone I'm 23, and I've had on/off cystitis/UTIs for the past 7/8 years, but in the past 6 months I have had at least 6/7 proven infections of just cystitis. (It's currently 4am and I've been awake needing to go every 5 minutes! Very frustrating when I have work tomorrow) I've been

    2 replies 1 vote Last reply
  • Janelovesdogs 2

    Cucumbers and asparagus to stop a flair

    Hi everyone, I haven't had a flare in months until recently. Well I shouldn't say not at all, because there's always that ache in the low pubic area if you eat the wrong thing. I'm referring to a full blown flair that knocks you on your feet for a couple of days. I put some lemon on chicken,

    2 replies 0 votes Last reply
  • terri44446 2

    Feeling better lately no sign of cystitis

    I am now 60yrs and have suffered from cystitis or what I thought was the above water infection for the last 10 years. My GP originally gave me a mild antibiotic then went on to taking nitrofurantoin 50mgs which worked but would have to take a course approx 3 times a year. I was then advised to take

    1 reply 1 vote Last reply
  • gilly10 2

    Continuous urine infections

    Hi I have just come out of hospital after having my second cystoscopy and biopsy in a year for this problem. I had the opening to the uretha stretched in the hope that my bladder will empty completely to avoid me having continued infections, and taking antibiotics continuously. After each of the

    2 replies 1 vote Last reply
  • Guest M

    Had tests - still getting Cystitis

    I have been suffering with repeated bouts of cystitis since the menopause. Each time I have to take about 6 rounds of antibiotics before it goes. I try to wait for the test results but sometimes can't as it makes me really ill. I wonder if starting one antibiotic and then switching to another

    1 reply 0 votes Last reply
  • kat80890 2

    Stiffness in tops of thighs and back with IC

    Hi i am new to this forum and have never posted anything in a forum before but felt compelled to after reading the posts. I've had IC since I was a teenager, had a myriad of gyny ops and problems.  It's sad to hear so many of you are suffering but also kind of reasuring as I feel I have a much

    3 replies 0 votes Last reply
  • Alie1234 2

    Think I've got ic

    Hey all. I've been suffering with pelvic pain for about 6-7 years. I've been to the docters and they never seem to know whatshe wrong. It's hurts more when my bladder is full. I often get it a few days after intercourse or the day after exercise. It hurts to sit and bend and when my two year old

    2 replies 0 votes Last reply
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