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Cystitis

Also known as Interstitial Cystitis

All discussions in this group

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  • IC, urethral syndrome or just rotten luck?

    Sorry guys, this is a LONG story. Before 2011 I had had the occasional very mild case of cystitis. Maybe once every couple of years. Then on a family holiday in the US I developed extremely painful cystitis. You cannot imagine (or some of you probably can) the burning sensation and urgency. We had a...

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  • I am an ex-sufferer of Interstitial Cystitis

    Hi, thought I would pass on my 'cure' for IC. After suffering for many years and my GP treating me for cystitis which, of course, us IC sufferers know it is completely different and never works I started investigating. I read on an American IC page that a certain Aloe Vera extract was giving...

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  • A few things that helped me with interstitial cystitis

    I was diagnosed with IC/painful bladder syndrome about 5 years ago and there were points where I literally was struggling with every day life.. and although I have no cure and am not necessary saying these things will work for anyone but they have definitely helped me lots.. I don't suffer half as...

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  • new treatment ?

    Hello I am a 62-year-old male with interstitial cystitis, confirmed by my consultant a few weeks ago, he as offered me a course of treatment of “intravesical hyacyst” once a week for 6 weeks then once a month for three months, as anybody had this treatment? what’s it like, and does it work michael

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  • Unexpected bladder issues.

    Hi. I was wondering if someone could help me out with issues which I'm having with my bladder. It all started with an intercourse induced UTI. That cleared up and was taken care of. But it has happened thrice now that I have intercourse, and if its even mildly frictional, I start having bladder discomfort....

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  • Scented toilet tissue

    Hi I have just read that someone was cured from their uti by changing the brand of lol roll. I have suffered for over 10 years with UTI and bladder pain so if something so simple as changing my toilet roll could be the answer I'm elated!!!! Has any one tried this and how do you know what toilet...

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  • D Mannose - too good to be true

    Hi After another UTI I have read that D Mannose is a miracle cure. Surely this must be too good to be true and why have I never heard of this cure before. I am currently taking Azo (three weeks this persistent UTI has lasted) I have ordered some d Mannose but was wondering in the meantime if anyone...

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  • UK cystitis sufferer

    OK it's 2.54 am Ive been sat in agony on the loo for 3 hours but after suffering from cystitis since I was 12 years old I am used to this. I have had several tests including ultrasounds, cytisccopys and also radiation testing, Mri scans but no answer have been found. The main concern was my kidneys...

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  • blood in my urine

    Ive had blood in my urine for years.  Whenever I saw a report it would say  2+.   Today I went to my gyn (i am having a procedure called PTNS) and she did a routine urine analysis.   She said I had a trace of blood in my urine.  I asked her what the count was and she said 5 to...

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  • Interstitial cystitis

    I have had an irritated bladder for 6 years, but they can't find anything wrong, I keep getting cystitis I feel better taking antibiotics but as soon as I stop it comes back again. Does anyone else have this?

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  • Do i have interstitial cystitis?

    Doctors keep telling me that 21 is too young to have IC, although i display some symptoms. Urine samples with no bacteria, just blood; a constant feeling of discomfort in my urethra; pressurised feeling on my bladder; urination frequency. How do i stop doctors from dismissing me with another course of...

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  • Recent IC diagnosis - not sure

    I was recently diagnosed with OAB but still have pain when my bladder is full/ filling at times. It helps a bit when I drink more but sometimes it still occurs. I brought this up to my gyno and she suggested that I may have IC and I did my first bladder install. Could you all elaborate on your pain...

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  • Any home remedies for cystitis?

    I am 20 years old and I have suffered from reoccurring cystitis for 3 years now. When I first had it, it was due to me not urinated enough as I was scared to use the toilet at my boyfriends house - I'm silly I know! I went on antibiotics and drunk a lot of water. The second time was New Year's...

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  • Can you get interstitial cystitis from getting really drunk??

    So I got really drunk a week ago and have been having symptoms of a UTI but no pain when I wee , and it showed up negative when I went and got my urine tested But ever since I just have a dull ache in my bladder and keep feeling like I need to wee loads when my bladder isn't completely full??

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  • Recurring UTIs

    I am currently in hospital with a uti and kidney infection. It is my first time being hospitalised with this. I am absolutely petrified of having to come back and keep being admitted to hospital. I am also scared of being immune to antibiotics as I am already allergic to penicillin, which rules a lot...

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  • IC or urethral pain, Could it be caused by vibrator?

    Just a thought. How many of you who suffer from IC or urethral pain use a vibrator during sex? TMI question, I know. However.. what if it is damaging the nerve endings? I've suffered from flare ups that docs can never explain so we assume it's IC. I do use toys when my husband and I have...

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  • Any males suffering with IC?

    Hi all, Just wondering if there are any males who have been diagnosed with IC and if so what are your main symptoms. I have been suffering with BPH, and all of the associated trouble with that, for about 5 years now and was given Tamsulosin, initially, and then Finasteride in combination.  When...

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  • the things that never get mentioned

    I'm new to this forum, and love it. Have had countless UTIs /cystitis, one kidney infection, urine specimens sent off, pelvic ultrasounds, etc.  I'm trying to manage and have been doing well, without a UTI for 8 months -  until last week. I've made a concerted effort to dothe following......

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  • Cystitis and topical estrogen?

    Hi, Fellow-sufferers, I've recently read a magazine article that suggested topical, vaginal estrogen for the prevention of post-menopausal cystitis. Does anyone have any experience of using this?

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  • I don't know how much more of this I can take

    HI everyone I don't even know where to start. I'm 37 and on day 6 of cystitis and seriously considering just moving into my bathroom! I have had water infections on and off for the last 4 years. They tend to occur when my IBS flares or after sex. I have been to the doctors so many times some...

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  • New update

    Hi everyone here is the latest update... I went in to surgery for a third time to remove all the kidney stones, that they still can NOT tell me how or why they happened... This was the worst surgery of them all, they told me they removed them all and I would be fine... Two days later I passed 4 small...

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  • CYSTITIS WITH A NEGATIVE URINE CULTURE

    I am 47 years old and I have been suffering on and off for almost two decades with bladder inflammation.   Yes, on occasion I have had Urinary Tract infections....I do know what those are, but througthout the years I have questioned my pain after many negative urine cultures time after time.  ...

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  • My journey to being diagnosed with IC

    Thought I would tell my story and perhaps it may help for anyone who is suffering the same symptoms and not sure what to do. At the end of 2014 I was informed that my routine Cervical smear came back showing abnormal cells. Within a few days I was in hospital and getting treatment for stage 3 CIN (abnormal...

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  • recurrent Cystitis? What is going on with me...

    Hi everyone I'm a 24 year old female and I honestly don't know what's going on with my UT, please help me! In 2013 december, I had my first bladder infection. I felt bladder pain during the end of urination process and I was given seven days of macrobid by the doctor without doing the culture...

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  • Refused antibiotics for cystitis

    I have suffered cystitis and kidney infections since in my teens which eventually killed one of my kidneys. I was referred to a specialist when the infections became frequent again in my late 30s but he told me the infections were psychosomatic! He decided this because my urine samples rarely showed...

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  • Finding the cause of recurring cystitis

    Hello all, I am unfortunately a sufferer of recurring cystitis. I have had every kind of pain when i get this - extreme burning sensation during and after I go to the toilet, a sudden urge to go straight again after I've been, and really bad abdomen and back ache, so I know how bad it is! Every...

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  • New to IC Land

    i am new to this latest version of hell and have been researching for the last few weeks. I've had my symptoms with little let up for about six weeks now. I've seen two docs, most recently my gyn and have had an ultrasound which proved to be clean. Next will be a urologist. I've studied the...

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  • Please can someone help? Not sure if I'm in the right place?

    Hi everyone I'll try and cut this short...back in August I had a terrible water and kidney infection I was urinating what looked like fresh blood and I was in agonising pain to the point where I could hardly urinate and it felt like a contraction! Never experienced anything like it...anyway I was...

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  • White bump on penis

    I have a white bump on my penis that just appeared a few weeks ago. its been getting bigger recently. it is hurting when touched. What could this be? What should i do?

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  • Ear Problem

    I had a pimple on the back of my ear. I popped it and i thought it was going away and it turned into a bigger bump that has a hard skin over it and it won't pop or anything I had this problem for 1 or 2 years. What should I do?

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  • Biopsy appears to show I C what questions should I ask

    Hi looks like I have IC. Had cystoscope 10 days ago after several bouts cystitis culminating in one in November which lasted over a fortnight on and off apparently a super bug called pseudomona possibly picked up in a Jacuzzi whilst on holiday. After trimethoprim nitrofuranton kefatin tried ciprofloxacin...

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  • too many UTI's at my wits end

    Hi all I am a 60 year old 9 year post menopausal woman and these last couple of years I have been battling uti's at least 3 in a year maybe more...this last one they found bacteria ecoli and put me on cipro for 5 days after finishing the meds two days later the symptoms of feeling like I need to...

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