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Cystitis

Also known as Interstitial Cystitis

Can you help? Discussions needing a reply

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  • IC and Urethra pain?

    I have been having pain off and on since October 2017. The last doctor I saw in April said he thinks I have IC since all my tests over the months come back fine. My biggest complaint of pain is in my urethra area. I am wondering if any of you who have IC also experience pain in this area? I am …

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  • LAPAROSCOPIC HYSTERECTOMY & IC

    Has anyone gotten a hysterectomy while being diagnosed with IC? If so, how did it help? Or not help? I'm nervous about them having to cut the cervix from my bladders outer wall. 

    Posted
  • Follicular cystitis... Can anyone help?

    Hiya, can anyone help? I was recently diagnosed with follicular cystitis, I have had water infection symptoms since I was a child, but as I have got older these symptoms have got worse. I am now 26. The hospital are baffled and I am waiting to be referred to a specialist. I the meantime I am in so …

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  • partial laparoscopic hysterectomy with IC

    I am scheduled for a partial laparoscopic hysterectomy. My question is...... Has anyone else had one while diagnosed with IC? did it effect your symptoms? Better? worst? same? I have watched a few videos of the procedure and cauterizing the sides of the bladder scares me! 

    Posted
  • Ic or something else?

    I was recently diagnosed with ic, but after taking a few meds and being brushed off I decided to get a second opinion. However, the new doctor does not believe I have ic. The reasons being is I only urinate 3 to 4 times a day because I hold it constantly because it makes it worse when I pee. The …

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  • Hydroxyzine medication and IC

    Hi,  I have suffered with IC for several years now. One of the worse symptoms I found was getting up several times in the night for a wee so disturbing my sleep. Since taking hydroxyzine (Atarax) medication I sleep through most nights without going to the toilet. Has anyone else found this …

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  • Literally cannot take any more of this pain

    Pain so bad that I cannot move my legs until I have passed the tiniest amount of Urine Pain between my legs that is only relieved if I pass urine Crying in the bathroom because you cannot empty your empty bladder that is telling you its full...being sat there for up to 30 mins straining to get …

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  • I have a cyst down there and I don’t know what to do.

    Hello. I have what I think is a cyst on my vagina right above my clitorus. It has been here for about two weeks and when I think it’s about to get better it doesn’t. I’m getting really frustrated with it. I’ve been putting a warm washcloth on it when I can and I recently tried to put aloe on it but …

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  • Cystitis

    I’ve been suffering with this for years. Last year I had it for well over a month and had several types of antibiotics and they did nothing. I tried something which got rid of the pain instantly which my family kept telling me to take from the start but I had never heard of. I went into my local …

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  • Hi I'm new and fed up

    Hi have just joined this forum to hopefully get some help and advice on how to deal with IC/PBS. I am still having tests on my bladder but my consultant has pretty much said I have IC/PBS . I have been suffering with my bladder since I was 18 and now I'm 39. It has however got so much worse …

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  • Advice on bladder pain

    Hi all, I came across this article as I've been experiencing pain when passing urine for 2.5 year. I started taking d mannose a year ago and it does help. However I still get pain daily. Certain foods make it worse, anything acidic, alcohol and chocolate. It's so difficult to live with this …

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  • Top best things you have done for your condition of IC

    Since I am new to this site and having IC I have learned so much from all of you already.   I  have only had it for six months so have a lot to learn about diet, medications, treatments etc..  I was wondering if all possible for you all to list the best treatments, foods, …

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  • Regarding test strips for bladder infections

    Hi again I bought some test strips of amazon and they tell you if you have leukocytes, nitrate and ph.  The problem I have is how do I know which one tells me I have a bladder infection.  I don't like going to the dr every time I think I do and thought this would help.

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  • IC and urgency to pee!

    Hello, I am new to this discussion board, but I hope to find someone who may know what I am going through so I can hopefully find a solution. I am 30 years old and been dealing with a urgency to urinate constantly. I cannot think of nothing else and feel totally depressed and miserable dealing with …

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  • About HRT and IC

    The gynocologyst has given me HRT,  I was lucky enough to find this site and that was recommended by on of the ladies here for her IC.  I was given premarin and pyogestrone.  I would love to know how long it will take to work and how it will help my IC.  The only thing I could …

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  • Interested in buying a tens machine could use some adivice

    I have been reading about ptns not sure what that means and the tens machine that I can get on amazon wondering if that with help with badder pressure and if so what machine should i buy I saw a good one for 50 or so dollars. that has pads do i need to keep buying new pads and how would I use the …

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  • Stomach pain and frequent urination

    I've had OAB for years and tried everything imaginable. The last thing I did was have a pessiary put in for prolapse and doing PTNS. This seemed to work well for a few months. For the past few weeks I've had some good days, but most bad days. Pressure and pain in stomach and always …

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  • IC Medications?

    I am newer to IC and have been dealing with the pain since October 2017. I was diagnosed about a month ago after seeing 6 different doctors and pushing doctors to do different tests until I found a knowledgeable urologist who diagnosed me without me even mentioning IC. My urologist told me to try …

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  • Cystocalm

    I always take cystocalm along with meds to get rid of pain x discomfort from UTIs.get from your chemist.

    Posted
  • Urge to pee all the time after Cystitis!

    Im a 23 year old female and i have the constant urge to pee. Its been going on for 2 months. This all started when my boyfriend was touching me and put his fingers in the wrong hole and then immediately in my vagina. Which is big no no obviously but we were both drinking and got lost in the moment. …

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  • PTNS

    Hi, has anyone tried PTNS (percutameous tibial nerve stimulation) for their IC?   It’s a 12 week course and I’ve started it but just wondered what experience others have had with it?  Many thanks!

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  • Could use any adivice I could get.

    Last time I posted a few weeks back I was having a really hard time with the CI.   I started the diet, have done the DMCO clinic treatments nothing helps.  My dr treats me like I am insane that my pain is in my head.  I am at my wits end now not only my bladder hurts, feels tons …

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  • Cranmed forte

    Hiya, I have been having problems with recurring UTI’s and was wondering if anyone had tried cranmed forte?  I want to try it but was wondering if it was safe to take with the contraceptive pill.

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  • Abdomen pains/Cramps

    Anyone else that gets BOTH lower and upper Abdomen pain and cramps with IC? Every patient varies with different symptoms, curious that anyone else deals with it to? Because this is what I deal with during flare Ups.

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  • Bladder pressure

    I've had overactive bladder for years. Have tried everything. I recently had PTNS and it worked pretty well. Sometimes I had a bad day but mostly good days. I've been on maintenance but recently have had terrible bladder pressure. The only relief is when I'm off my feet. Is …

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  • Serrapeptase

    Someone posted about being healed by taking Serrapeptase & I found it & started taking it but would like more information! Has anyone tried this? Dosage, etc. 

    Posted
  • Oregano

    Hi everyone, I have ic, have been diagnosed last year. Just a quick question. Has anybody have a problem with oregano. I had some on my dinner today and it just put me in a flare. This is weird because it's on a ok list for people with ic. I was just wondering. I know this isn't a …

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  • Awful pain, fullness, pain above pubic bone

    Finding all your posts may be what I have, IC. Its been 6 weeks of vaginal/anus pain, urgency and having trouble voiding, fullness and negative UTI and CT scan. Im terrified and going to uro/gyno on Wed. The throbbing in my lower parts is bad. I feel the fullness in my bladder and shortly …

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  • Confused about what foods cause flares?

    So I haven't clinically been diagnosed with interstitial cystitis, however my GP is confident I have it. I am seeing a urogynecologist this Thursday for further analysis but in the mean time I thought it would be wise to explore diet options. I just have a question for those of you that are …

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