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Cystitis

Also known as Interstitial Cystitis

All discussions in this group

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  • New Testing

    Hi,  I suffered with Interstitial Cystitis for over 20 years of my life. Constant running to the bathroom, burning and lots of pain with urination, and more meds than I could count. I struggled with my doctors for years on this. They would guess and give me treatments that did little to nothing...

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  • Advice on bladder pain

    Hi all, I came across this article as I've been experiencing pain when passing urine for 2.5 year. I started taking d mannose a year ago and it does help. However I still get pain daily. Certain foods make it worse, anything acidic, alcohol and chocolate. It's so difficult to live with this condition...

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  • Hi I'm new and fed up

    Hi have just joined this forum to hopefully get some help and advice on how to deal with IC/PBS. I am still having tests on my bladder but my consultant has pretty much said I have IC/PBS . I have been suffering with my bladder since I was 18 and now I'm 39. It has however got so much worse over...

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  • Top best things you have done for your condition of IC

    Since I am new to this site and having IC I have learned so much from all of you already.   I  have only had it for six months so have a lot to learn about diet, medications, treatments etc..  I was wondering if all possible for you all to list the best treatments, foods, medications...

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  • Regarding test strips for bladder infections

    Hi again I bought some test strips of amazon and they tell you if you have leukocytes, nitrate and ph.  The problem I have is how do I know which one tells me I have a bladder infection.  I don't like going to the dr every time I think I do and thought this would help.

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  • Follicular cystitis... Can anyone help?

    Hiya, can anyone help? I was recently diagnosed with follicular cystitis, I have had water infection symptoms since I was a child, but as I have got older these symptoms have got worse. I am now 26. The hospital are baffled and I am waiting to be referred to a specialist. I the meantime I am in so much...

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  • IC and urgency to pee!

    Hello, I am new to this discussion board, but I hope to find someone who may know what I am going through so I can hopefully find a solution. I am 30 years old and been dealing with a urgency to urinate constantly. I cannot think of nothing else and feel totally depressed and miserable dealing with this...

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  • About HRT and IC

    The gynocologyst has given me HRT,  I was lucky enough to find this site and that was recommended by on of the ladies here for her IC.  I was given premarin and pyogestrone.  I would love to know how long it will take to work and how it will help my IC.  The only thing I could get...

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  • Interested in buying a tens machine could use some adivice

    I have been reading about ptns not sure what that means and the tens machine that I can get on amazon wondering if that with help with badder pressure and if so what machine should i buy I saw a good one for 50 or so dollars. that has pads do i need to keep buying new pads and how would I use the machine?

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  • Stomach pain and frequent urination

    I've had OAB for years and tried everything imaginable. The last thing I did was have a pessiary put in for prolapse and doing PTNS. This seemed to work well for a few months. For the past few weeks I've had some good days, but most bad days. Pressure and pain in stomach and always feel...

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  • IC Medications?

    I am newer to IC and have been dealing with the pain since October 2017. I was diagnosed about a month ago after seeing 6 different doctors and pushing doctors to do different tests until I found a knowledgeable urologist who diagnosed me without me even mentioning IC. My urologist told me to try an...

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  • Cystocalm

    I always take cystocalm along with meds to get rid of pain x discomfort from UTIs.get from your chemist.

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  • Urge to pee all the time after Cystitis!

    Im a 23 year old female and i have the constant urge to pee. Its been going on for 2 months. This all started when my boyfriend was touching me and put his fingers in the wrong hole and then immediately in my vagina. Which is big no no obviously but we were both drinking and got lost in the moment....

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  • PTNS

    Hi, has anyone tried PTNS (percutameous tibial nerve stimulation) for their IC?   It’s a 12 week course and I’ve started it but just wondered what experience others have had with it?  Many thanks!

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  • Could use any adivice I could get.

    Last time I posted a few weeks back I was having a really hard time with the CI.   I started the diet, have done the DMCO clinic treatments nothing helps.  My dr treats me like I am insane that my pain is in my head.  I am at my wits end now not only my bladder hurts, feels tons of...

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  • Cranmed forte

    Hiya, I have been having problems with recurring UTI’s and was wondering if anyone had tried cranmed forte?  I want to try it but was wondering if it was safe to take with the contraceptive pill.

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  • Abdomen pains/Cramps

    Anyone else that gets BOTH lower and upper Abdomen pain and cramps with IC? Every patient varies with different symptoms, curious that anyone else deals with it to? Because this is what I deal with during flare Ups.

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  • Bladder pressure

    I've had overactive bladder for years. Have tried everything. I recently had PTNS and it worked pretty well. Sometimes I had a bad day but mostly good days. I've been on maintenance but recently have had terrible bladder pressure. The only relief is when I'm off my feet. Is there...

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  • Serrapeptase

    Someone posted about being healed by taking Serrapeptase & I found it & started taking it but would like more information! Has anyone tried this? Dosage, etc. 

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  • Oregano

    Hi everyone, I have ic, have been diagnosed last year. Just a quick question. Has anybody have a problem with oregano. I had some on my dinner today and it just put me in a flare. This is weird because it's on a ok list for people with ic. I was just wondering. I know this isn't a major...

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  • Awful pain, fullness, pain above pubic bone

    Finding all your posts may be what I have, IC. Its been 6 weeks of vaginal/anus pain, urgency and having trouble voiding, fullness and negative UTI and CT scan. Im terrified and going to uro/gyno on Wed. The throbbing in my lower parts is bad. I feel the fullness in my bladder and shortly thereafter...

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  • Confused about what foods cause flares?

    So I haven't clinically been diagnosed with interstitial cystitis, however my GP is confident I have it. I am seeing a urogynecologist this Thursday for further analysis but in the mean time I thought it would be wise to explore diet options. I just have a question for those of you that are experienced...

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  • Allergies

    Hi everyone, got a question. Has anyone experienced a uptick in their ic symptoms when allergy season. I was diagnosed with ic last year. During the winter months I was almost symptom free. But its spring time, my eyes are watery and I know it's the tree pollen, with this my ic decided hey don't...

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  • IC, urethral syndrome or just rotten luck?

    Sorry guys, this is a LONG story. Before 2011 I had had the occasional very mild case of cystitis. Maybe once every couple of years. Then on a family holiday in the US I developed extremely painful cystitis. You cannot imagine (or some of you probably can) the burning sensation and urgency. We had a...

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  • Urinary issues

    For the past year I have been having constant UTIs but the last couple months my uti test were coming out negative. So I went to see a uralogist and he didn't do any kind of testing and told me I have painful bladder syndrome. He said I have symptoms of a uti without having one.... but can it be...

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  • Butter ????

    Hello everyone, was wondering if anybody got a flair from either butter or basil. Today I had a flair and the only thing that was different in my diet was butter (gluten free) noodles garnished with fresh basil. It was yummy but now I'm flailing. After going through this ic problem for a year ,...

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  • Diflucan / fluconazole causes flare

    33/f 10 plus year chronic urethral pain and burning most of the time (negative UTI screens) w trace blood in urine.  as well as chronic oral thrush (not vaginal). Symptom free 2-3 months until taking a single diflucan tablet for oral thrush.  A few months back I did 3 things that worked, not...

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  • Need urgent help sooo sick with pain cant eat now

    Hi, new here I have been to every hospital in my area for IC for help, I get pain med's that don't do anything gone to two urologists. 4 hospitals and always sent home to rot.  my bladder spasms all day, constant urge to urinate, my bladder burns, my urethra burns like mad. No relief ever, ...

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  • Need Advice think I could have interstitial cystitis

    Hope this isn't to long and someone will read all the way through to give me some advice I thank you in advance! Started in October 2017 I started feeling pain in the urethra/bladder. I have had UTIs before so I thought it could be one but deep down I knew it felt different. Went to my primary at...

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