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does anyone have several seperate hemiplegic migrane attacks over several days

Posted , 6 users are following.

markl80806
markl80806

Hi everyone I started getting hemiplegic migrane attacks last year but the last 2 weeks I have had  9 seperate attacks in 8 days pretty much one every day.

Has anyone else experienced this?

Im in constant worry when the next attack Is going to strike and it's really effecting my life.

im seeing a chiropractor and I'm booked with a neurologist for a couple of weeks time 

Many thanks 

Mark

1 like, 9 replies

9 Replies

  • PinkMuffin
    PinkMuffin markl80806

    Posted

    Do you get the dizzyness and visual disturbances as well as the headaches? Make sure you get some mri scans of your brain if not done already to rule out all the serious stuff. I have been on medication which is slowly working but I'm feeling down as it's such a slow recovery. I know how you feel as it's difficult to do daily things when your in such a bad way. Expect a long waiting times to see neurologists and make sure you are seeing a good one as you don't want to be fobbed off. There are many medications out there but I'll warn you, most of them are either anti depressants, anti seizure or beta blockers which all have side effects. Hope it all goes well for you.
  • markl80806
    markl80806

    Posted

    Hi thanks for your responses I am on proprannalol beta blockers 60mg a day and simatripan when an attack occurs. I don't get headaches but I get dizziness, aura, numb face in left cheeck and numb left arm.

    once I see neurologist hopefully he will sort an MRI scan.

    I'm seeing a chiropractor as I heard they help plus my back was always in pain.

    ive geard vitamin b2 and magnesium is good I think it's getting the right medication for you as everyone is different.

    there just seem to be no help or advice every web site states the same thing that's what I like about this age s people's real stories which you can relate to 

    good luck everyone :-)

    • A303101
      A303101 markl80806

      Posted

      Yup doc told me try magnesium , but I'd feel better about they tup if stuff if he had done blood work.. it gave me dry mouth,,, not dealing with that ontop if everything else.lol
  • StevenRose
    StevenRose markl80806

    Posted

    Hi,

    In my experience hemeplegic migraine is both unpredictable and misunderstood, by many Drs and even Neurologists too.

    Yes, I agree with PinkMuffin, do insisit on MRI scans for obvious reasons and ask about Flunarizine.  I see a headache specialist at the national neurology hospital in London and he says this is the gold standard for treating hemaplegic migraine.  Which in my case seems to be working well MOST of the time!

    Good luck Mark in dealing with this, but remember you are not alone, we all suffer from this on here and happy to listen and support you.

  • A303101
    A303101 markl80806

    Posted

    I also get wkly massages.., and chiro, was by chance i went to a neurologist for my carpel tunnel and he specializes in headaches also....and first he had switched my nightime sleeping/migraine meds says may be a side effect of amitriptyline,  and switched to nortriptyline but been 2 wks and not helping..   i have bad neck pain... imatrix helps with brights lights And getting nausea thu. 
  • bryony33348
    bryony33348 markl80806

    Posted

    Hi everyone,

    I'm struggling. About 7 weeks ago I woke up fine in the morning. By lunchtime I had the beginnings of a headache. By 4 pm by headache was so bad and I had also lost the ability to use my right arm. Walking was very difficult and my team leader said my right side of my face was drooping. I went up to a and e where I was taken to resus as they initially thought I was having a stroke. I can honestly say I was petrified. They decided it was probably a migraine and kept me in for 24 hours. Walking was difficult and I felt so weak. My headache was the worst I'd ever had. Discharged the next evening with diagnosis of a viral infection. Following the week of sleep I went back to work. I did 2 days on reduced hours and ended up in a and e again. My go signed me off for 7 weeks while she did tests. All have come back normal. I feel tired, drained and most afternoons I have needed a lie down. Gp has given me migraine information and I think it is hemiplegic migraine. I am terrified I'll have another attack. Does this sound like hemiplegic migraine? I'd be grateful for any advice.

     

    • markl80806
      markl80806 bryony33348

      Posted

      Hi Bryony it does sound like hemiplegic migrane although don't take my word for it. 

      I've been suffering now with attacks for the last year and I'm still trying to understand this illness I am

      Currently off work as we speak as I had 9 attacks in 8 days but no migrane just the numb face and other symptons. There isn't a lot of information out there as the symptons cover nearly everything. Just keep pressure on the dr and write a diary of your sleep times. What you eat. I go to a chiropractor and hat helps as my next pain was really bad I couldn't even fill out a form as i couldn't look down for long.

      My main triggers are stress and tiredness as my job is very stressful as is my home life with two young children 

      Try and avoid coffee. Chocolate, cheese, fatty foods and alcohol, all the good things in life try and avoid :-)

      Keep a diary of your attacks and symptons it is hard as even I get scared at every attacks thinking maybe this one isn't a migrane maybe it's a stroke 

      You need to learn to deal with your migranes and ride through them easier said than done as I'm still trying bit keep positive 

      All the best :-)

      Mark 

    • bryony33348
      bryony33348 markl80806

      Posted

      Hi mark

      Thank you very much for your advice. I'm allowed back to work on friday, but seeing my gp again in 2 weeks time. I hope you can get back to work soon by the sounds of things there's no let up for you at home or work. 

      I will do as you suggested, i have been given a migraine diary which i will take with me.  I generally don't drink, but i do eat chocolate so will avoid that and fatty foods and see how i get on.

      Hope you get better soon smile

    • StevenRose
      StevenRose bryony33348

      Posted

      Hi briony,

      I agree with Mark that it could be hemeplegic migraine, but if course only proper diagnosis from a neurologist can say this. So you should have ct and or mri brain scans to rule out anything which is nasty. Once these come back all normal, at least you can feel a little bit better.

      I also suffer from this aweful condition and at first it is just as scary as you describle, but as I say, once I knew it was a migraine and not anything sinister, I didnt feel quite so bad, even though the left sided paralysis is annoying to say the least!

      Thank fully I dont get quite such severe pain, except stabbing eye pains.

      So the national neurological hosp london is where I go and the specialist there says flunarizine is best meds to prevent this.

      Hope this helps, good luck Briony and always here for support

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