Does anyone have shrinkage im 46 i was diagnosed about 4 years ago. Its very embarrasing to go throu

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  • Posted

    TORSHA- By shrinkage do you mean narrowing of the vagina or disintegration on the labia and clitoris?

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    • Posted

      yes i notice it a few months ago. My doctor said it was normal but it don't look normal down there. I have so depressed about LS i have so many products and nothing is helping.

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    • Posted

      yes i will can you recommend anything for the itching and burning. I have the steroids cream and other creams nothing is helping. I had to let my job go personal reason and when i have flare up its just to bad.

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    • Posted

      this is probably going to sound a bit off the wall but have you tried CANESTAN CREAM ? IT IS ALSO KNOWN AS CLOTRIMOXAZOLE . some times i cant tell the difference in the itch with having thrush / yeast infection. excuse the capitals , cant be bothered to retype ! There is also a prescription available which mixes the two, i.e. canestan and hydrocirtisone. my gynaecologist prescribed that for me a few weeks ago and it did the trick. so if you cant get the prescription yourself , you can buy them both seperately over the counter , using one then the other. or indeed mix the two. it is literally a case of what gets you through the day at times when you have a flare up. good luck x

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  • Posted

    i have vaginal shrinkage . until recently i didnt even realise that this was a thing. all i knew about was the potential for vulval cancer. the shrinkage explains a huge amount on hind sight. i.e. the excruciating smear tests. the painful sex when i used to have it !,

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  • Posted

    I have no inner labia now and find i am more prone to infection. X

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    • Posted

      Rowley, I'm not sure where one draws the line between atrophy and LS when it comes to shrinkage. I started using hormone cream 9 months ago (for AV) and that made a definite difference in terms of plumpness, but I would say there is sort of less of what I used to have in general. LS can cause what is referred to as "architecture" to essentially disappear. I'm noticing some of that. The term fusing is also used re the vagina getting smaller and the urethra fusing so that urine can't properly leave the body. Some women have mentioned this. Requires surgery.

      Were you diagnosed with AV & LS? How long have you had either?

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    • Posted

      I have LS i was diagnosed about years ago. My clitoris area seems as though it is shrinking. It doesn't look the same i have no fusion at this time. But vulva lips are flat no plumpness. The only problem right is the itching, burning, and the white patches it seems like I'm on fire down there. When shower or get in the tub the water just water burns so bad. This is worst flare up i have had I'm just so depressed about it and thank you for chatting with me it really helps.

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    • Posted

      Beverley, you can use dilators before you resort to surgery. They might make things ease up a bit. I use mine three times a week it takes less than 5 minutes, I've gone up 3 sizes and can now wee more comfortably. I'm not fully unfused, but it's much better.

      I'm not on here much now, and have a ferocious deadline looming, but others may chip in with advice. You can buy them on amazon or, if you are in the UK, can get them prescribed by your doctor.

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    • Posted

      Bridge, I think you may have intended that info for maybe ...pamela? I don't think dilators can do much for the effects of LS which is what is concerning me. I use hormone cream now for the atrophy. (I'm constantly confusing who is who myself).

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  • Posted

    Torsha- I am 48, still get a period every 28 days so I do not have atrophy that we hear of with post- menopausal women. I do have architectural loss from LS- Right labia is nearly gone, but left one is normal. My clitoris has receeded, shrunk- whatever you want to call it, in size significantly. It used to be a plump fun button- sorry ladies! and GYN says its still there, but sensitivity has gone from a 10 to a 2. ORGASMS hv also gone from a 10 to a 1-2, it sucks! I get no clitoral stim from being on top during sex, and my husband usually uses his hand to make me come before intercourse since it takes much longer to " rev my engine". NO PAIN with intercourse and he is very large, but I miss the thrill of clitoral engorgement. It makes me sad, we used to hv a great sex life, now 1-2 times a month. I hv not had any vaginal narrowing, but have heard this is common. There are graduated- sized vaginal dialators you can purchase online or on AMAZON TO HELP GENTLY STRETCH THE VAGINA OUT AGAIN TO HELP WITH VAGINAL INTERCOURSE. Sorry for all caps, on my phone and it got stuck!

    I use emuaid when I have a sensitivity to the wrong food ( usually sugar), and daily moisturize with V- magic or VULVA harmony, or plain coconut oil, or Yes moisturizer.

    If I GET AN ITCH I SOAK IN WARM BATHWATER WITH BAKING SODA.

    Hope this helps! GOOD LUCK!

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    • Posted

      Thank you nice to hear your not the only one to have theses issues. My sex life is fine i have a high sex drive now i don't know but i can't let no man see me down there its so embarrasing to go any further that sorry ladies tmi.

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    • Posted

      Your sex life is fine despite the itching and burning? That sounds unusual. If you're still able to enjoy sex I wouldn't worry about changes in how you look. Doubt if men will care or are even that expert in what they are looking at. Everyone's genitals look different anyway. Doesn't seem to be a standard.

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