does anyone have these symptoms with CFS?

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Recently been diagnosed with M.E suffer with pretty much all the classic symptoms along with painful urine and kidney infections and cronic mouth ulcers, does anyone suffer with fissures down below? I feel like my bodys completely shutting down sad

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8 Replies

  • Posted

    painful urine i drink 2 pints more water and stay clear of gasie pop / cronic mouth ulcers only when i had tooth acke . tips is fresh air helps/ sea air best / little meals helps . 
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  • Posted

    that must be so miserable. I am sorry. Worth treating it separately in case it is an independent problem. No rule to say that you cannot get CFS/ME. and something else.
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  • Posted

    for got make a list of the problems before u got doctors on a day to day . as if u are in the start the brain fog ( memory loss ) . i take a list of new to gp when i go . ebay as a few books on for less then £3 ;-) .
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  • Posted

    Hi Jessica,

    It sounds miserable. I agree with GeorgeGG, I would the doctor and treat it seperately. I had some simular problems early on in the first days of CFS. I was wrongly diagnosed with herpes and took medication for it - several years later my new gp. did a biopsy and it was not herpes. So many things can go wrong when you have cfs.  I found keeping a short journal helpful - many symptons have passed for me, and then occassionally they return in times of additional stress. Good luck to you.

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  • Posted

    Hi,

    I am sorry to hear that you are suffering. I experience these symptoms periodically and have been told that it is part of my CFS. Equally it would be remis of me to not suggest getting it checked. As GeorgeGG said there is no rule to say that you can't other illnesses.

    Making a list of symptoms is always useful for the doctor. I have found it useful to rate my symptoms out of 10 once per month so that I can keep an eye on how my health is doing over the months.

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    • Posted

      Yes, I do endorse Helen's practice of keeping notes . I have found my memory too open to bias, too easily influenced by my current situation. My notes have sometimes been quite a 'surprise' to me.

      I like Helen's idea of rating symptoms. I already have in mind a table with my symptom names down the left hand column and dates across the top of multiple columns for the scores/ratings. That should be quick, easy and informative.

      Thank you Helen.

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  • Posted

    You're Jessica and therefore female? There is a condition called Lichen Sclerosis that can cause genital fissures amongst other things. I only know because I have it as well as ME/CFS and they are separate issues as far as I know. At least LS is auto immune related. You need to get your fissures checked out just in case because early diagnosis can be enormously helpful with LS 
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  • Posted

    I was diagnosed with ME, Fibromyalgia, CFS about 3 months ago. I had most of the symptoms for about 2 years. However, where I come from the doctors weren't able to diagnose it. I had been on medication for 2 months. Still had very little improvement. Right now I've got mouth ulcers due to stress rolleyes & it's very painful. I can't even concentrate on work.
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