Does anyone know of a UK support group for vertigo (BPPV)?
Posted , 7 users are following.
I am a doctor suffering from BPPV. Successfully treated 18 moths ago I am having problems again and hoping to manage another successful Epley soon. However, I think I am hypersensitive and the associated anxiety is as bad as the real symptoms. I am doing VOR exercises which helped last time and I hope will help again. Despite hoping I will be completely better again soon, I am finding this period extremely difficult and would like to find a support group, ideally local, though this seems rather unlikely. Does anyone know of a group? I am based in Swindon/
0 likes, 7 replies
yosef
Posted
eaglewatcher
Posted
linnet
Posted
mark238
Posted
I think I have had BPPV for about 5 years now but its occurrence has been once every 6 months or so usually relatively mild symptoms. Then on 2 August had a three day attack of dizziness. I still haven't recovered my balance properly so off to see a specialist for further info in Sept. see what they say but it's an absolute pain. I commute to London, busy job and a fair bit of pressure.
In fact not sure if stress has something to do with it
Interested in a support group. So any ideas on format or structure if we do one ourselves?
Take it easy
workingmom Guest
Posted
Amushka Guest
Posted
eaglewatcher Guest
Posted
First I must stress that I have no medical training but have heard from sufferers of BPPV (which is different to Menieres) that there are exercises which their GP had them do in the office when they attended for this complaint. Basically it involves a series of head movements and usually fixes the problem. Do not do this without a GP or medical practitioner to supervise and instruct.
As for any organisation for Meneries etc. perhaps the best way is to create our own chat forum - via this website maybe. I don't like Facebook as a forum.