Does anyone know the warning signs of your crps is spreading to another limb?

Posted , 14 users are following.

I have had crps 9 months now after a right wrist and hand injury at work, and it has already spread from my right hand and wrist to my shoulder, chest, back, neck and the side of my head and face. It's scaring the hell out of me. No one really knows a dam thing, they are just fumbling about trying to find the fastest way to get you off their insurance books, I think it's disgusting! They have no idea what they are doing to us with all the stressing and pushing. I'm sure we have all discovered stress just amplifies the hell we are physially and mentally in. They have pushed me into severe depression and anxiety according to my psych... which is just making things worse as you can imagine. I have for some time been getting an intermittent mirroring pain in my left arm, but it's getting stronger and more often and a clumsy weakness to my left hand. A "doctor" supposedly familiar with crps assessed my left arm and said it hasn't spread there....well I could have told him the clinically "excepted" symptoms for diagnosis are not present. But they said the same thing about my right hand and wrist 2 weeks before all hell broke loose!...does anyone have any adviI have had crps 9 months now and it has already spread from my right hand and wrist to my shoulder, chest, back, neck and the side of my head and face. It's scaring the hell out of me and I completely agree with RogerB, no one knows a dam thing, they are just fumbling about trying to find the fastest way to get you off their insurance books if you are injured at work and I think it's disgusting! They have no idea what they are doing to us with all the worrying and pushing. I'm sure we have all discovered stress just amplifies hell. They have pushed me into major depression and anxiety disorder according to my psych... which is just making things worse as you can imagine. I have for some time been getting an intermittent mirroring pain in my left arm, but it's getting stronger and more often and a clumsy weakness to my left hand. A "doctor" supposedly familiar with crps assessed my left arm and said it hasn't spread there....well I could have told him the clinically physical excepted symptoms for diagnosis are not present. But they said the same thing about my right hand and wrist 2 weeks before all hell broke loose! ...Does anyone know if it sounds like it is spreading to my left arm? As I have only experienced it spread along the same limb and side. I'm trying very hard to dismiss it, but I have also noticed my right leg get a tingling feeling from toes to calf quite a bit lately, surely that is in my head? I honestly don't trust them here. Thank you for taking time to read this. I pray you are all well and finding peace.

1 like, 20 replies

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  • Posted

    Look into taking low dose naltrexone really put a stop to my spread
  • Posted

    Yes, we all feel your pain. Literally feel your pain.

    My CRPS is also a result of an on the job injury. Injury was in May 2015 and since I'm also dealing with an insurance company, it took until October 2017 to get diagnosed with CRPS. Of course it's just gotten worse and they have declined all medications as well as a nerve block procedure.

    Living in California I'm fortunate that I can purchase Cannabis products including a medicated rub that I use on my legs. It helps with the pain, but as you know it's temporary.

    It is spreading and I suspect it will get worse

    Insurance company also refuses to pay any compensation at this time so I've had no income for over 2 years. The stress of everything is overwhelming but I have a great attorney who is working on a settlement so I can start meeting with my own doctors and hopefully get some relief both physically and mentally.

  • Posted

    I ended up with CRPS from an EMG. Had it done June 28 this year and come July 7th I woke up in extreme pain with the shocking going up and down my left hand and arm. I also was diagnosed with fibromyalgia back in 2013. I finally tell the pain specialist who brought the guy in to do the EMG that that's what caused it and I know for a fact. of course he blew it off' that's why I never bothered to say anything. My next visit 4 weeks later he tells me he's leaving the practice and can't say where he's going. Not that I trusted him anyway but how do you just leave someone high and dry? He says you can find someone or see someone else here. Now back to square one. The ganglion nerve block made me worse and I haven't stopped working. I'm a manicurist and it's my dominate hand. Now I'm not sure if I have a pinched nerve in my neck or if this is going to my neck with the shocking pain and swelling thats been going for 3 and a half weeks now. I also have degenerative doc disease and arthropathy in my neck, a hemangenoma(benign tumor) in my t10, really messed up blood counts and apparently the left love of my thyroid is missing not from surgery either. I can't afford all these Dr's and mris and test so not sure what to do so I just go to the pain dr who just seems to be procedure happy and after this last eng that messed me up and the nerve block that made it worse with no response from the Dr yeah little trust on anything.

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