does anyone know what eases the rash

Posted , 2 users are following.

I have recently been diagnosed with SS having broken out in a red, itching, hot rash. It has covered the back of my head, ears, my back , arms, legs, I am so uncomfortable, it wakes me at night, I also have a very itchy nose.

Can anyone help...Please......l feel at the end of my tether with the itching.

0 likes, 6 replies

6 Replies

  • Posted

    Hi ,I don't know if this helps but that happened to me 3 years ago , being tested for SS at moment ,had a bad reaction to lack of antibiotics after a root filling, been told had reactive arthritis ,then rheumatoid arthritis ,then had lupus antibodies but not been given that label yet ,now been told SS but when the rash happened it was

    really scarey ,get to your doctors they can give you strong antihistamine good luck

  • Posted

    Thanx for the reply Christina, How long did the rash last?
  • Posted

    Once they got me on the meds which they had me on for about 5 weeks it went as quickly as it came but I was on the antihistamine for about a month I think ,and once came off them it hasn't touch wood come back ,it was all a bit of a blur as my whole body was effected inside and out,am off work at moment been off this time for 9 weeks but no rash this time.
  • Posted

    Do you get that awful" out of energy" feeling? I ache everywhere too! Are you very poorly with this for you to be off for so long. I hope you pick up soon sorry to be personal but do you get financial help when sick with SS ie benefits? I am not on any contract that would pay me, if I were off .
  • Posted

    Hi I normally work full time and had 4weeks full pay for that ,am looking into pip at moment so I could go back part time , have someone looking into benefits for me on other levels ,just been to ill to work got very

    breathless back in jan if I just walked across a room have had ,chest X-ray, E C G, lung function test , asthma test ,

    CT scan,waiting on lip biopsy,and eye specialist at moment been a bit scared at times but have been trying to make a quilt for my son to keep me from thinking to negatively , I work for a national supermarket chain ,very

    demanding ,and I know I can't do the job at moment the first 4 weeks I was off all I did was sleep, and

    because they had to take me off my meds cause of my eyes ,the pain has kicked back in this last 5 days big

    time so I take it hour by hour if I feel I can wipe down a work top I do it if I can't well it will be there when I can ,as far as the money goes I can't think about it if I work I might not be here as long as I want to be I , have

    Struggled to try and carry on for the last 3 Years and I am not going to put myself in an early grave for

    minimum wage .i want to be here to see my grandchildren when I eventually get them ,does that make sense

    This all kicked in 3 years ago I was fit healthy would ride bikes fly kites walk my dog now I can't do any of that sorry if this is a bit of a rant but get well before you think about the money speak to the CAB if your well you

    Can wrk ,but don't push yourself before your body's ready you make things worse ,look after yourself be kind to yourself and take it slowly and you and I will get there remember the story about the hare and the tortoise .

  • Posted

    Oh my dear girl, money is not the b all and end all as we both well know, but bills have to be paid nevertheless. ?..I am so terribly sorry to hear about your experience and I can only wish you all the best and the offer of the hand of friendship.

    Take care x

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