Does anyone share my symptoms

Posted , 6 users are following.

Does anyone share these symptoms and can help me work out what may be going on?

About three months ago I started to feel very dizzy around my period. It lasts around 7-10 days, comes and goes. I’m not so dizzy that I can’t stand or feel like the room is spinning, it’s more subtle than that but very uncomfortable and disturbing. I also feel extremely tired during these times. It then goes away mostly and returns around my period again. I’ve had iron and bloods taken and all are clear.

I also suffer from migraine auras which are very unpredictable and occur often. I haven’t noticed a link between the two. I’ve seen a doctor and a neurologist (for my migraines) and neither seem worried about it but can’t tell me what the dizziness if from. It’s very upsetting not having a clear diagnosis or any idea on how to make it stop.

I’d love any stories of similar symptoms that might help me work out what is going on. Thank you.

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10 Replies

  • Posted

    hi possibly yes. I suffered those symptoms with an auto immune disorder. when you had blood tests was esr crp and ana included. It usually isn't but may be helpful to have these done.

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  • Posted

    has your doctor spoken to you about vestibular migraines? you should look into this. do you have a dizzy clinic near you? a regular nuerologist isnt going to help you. nor will a PCP. you should have vestibular testing done to rule out things. you may need medication such as norotrytiline to reset your brain. a regular ENT- also doesnt know much. look up otolaryngologist. this is the doctor where i live who is the specialist. some will also say neorotologist. hormones can bring this on, diet, migraines, ect. most doctors only know about BPPV. what are your auras? do you notice a correlation with the aura or migraine and the dizzy feeling. do you have confusion, brain fog too at times?

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    • Posted

      i have wondered if it could be vestibular migraines. do they last 7-10 days long though?

      i suffer from auras, bright flashing lights that lasts 30mins and after them sometimes have a headache. i have not noticed a correlation between the two no.

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    • Posted

      sure they can. depends on the person. my symptoms were constant dizziness, the severity differed. vertigo, severe. headaches, which i hadnt realized i was having. confusion, brain fog, unsteadiness, aura, hand went numb for months before i had treatment. also aura of excessive urination, i really thought i had been just retaining water after my period, ya know? now i know differently. it took me months to realize i was having migraines. my symptoms never went away, but would be less, then a headache would come on and they would be severe. because of my confusion it was hard to put together. i realized one day at work i was ok then i was looking for tylenol and my symptoms had worsened, the confusion, the dizziness. i read something on this site that made it all click. if you have vestibular migraines, you need medication to reset your brain. i am better now because of it. i still get migraines but the vertigo, dizziness, confusion is not there. i still have trouble in crowds or a passenger in a car. but migraines can last a long time. they can be silent too. you may need to direct your doctor with this one, i did. ask to try treatment for it. i take norotryptiline. what you are describing is possible vestibular migraines. it really wont just go away on its own, says my specialist. but you need the proper testing to rule out everything else. i had the testing and my doctor was able to eliminate the other things and properly diagnose me.

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  • Posted

    hi dear

    me too feel dizzy and fully tired before 7 or 8 days of periods.....i feel off balance too..sometimes strange vibrations in head , headaches and heavy head too..😭

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  • Posted

    Its same as Perimenopause symtoms...how old r u dear ?

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  • Posted

    I have also been dizzy during PMS -- I'm 47 and actually haven't started menopause symptoms but have found that PMS is getting worse with advanced reproductive age... I had a sympathetic ENT doctor who found nothing wrong with the vestibular system and it's a bit of a mystery what is going on, but he put me on a magnesium therapy which I think helps me. During the week before my period I build up day after day to take a large amount of magnesium (dissolved in water) which helps the dizziness and PMS. He gave me sachets of 121 mg each and I build up from 2 per day to 6 per day over the course of a week. I believe as long as you're taking magnesium and aren't getting diarreah it's a sign that you are deficient and need to take more.

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