Does anyone share these symptoms? Any help is appreciated!

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I. Lactic acid “burning" sensation (muscles are easily exhausted) in EVERY muscle in the body with simple tasks (brushing hair, talking/singing for a long time, swallowing, walking up the stairs). Progressive.

II. Persistent brain fog/cognitive decline. (head pressure when thinking hard for more than 30 min)  

III. Periods of various symptoms like, come & go for brief period of time (lower left kidney flank back pain, burning sensation peeing, constipation, occipital neuralgia, burning sensation in neck).

IV. Chronic Prostatitis (Lower back ache, urine incontinence, rectal pain, lower right back flank sharp pain/ache; possible triggered by certain foods)

V. Skin is extremely sensitive (easily ticklish everywhere)

VI. Crepitus (joints crack, gravel, grind). Ex: bicep curl w/o weights, sitting down and leaning. Progressive

VII. Sternum tightness (inhale, exhale).

VIII. Hands and feet can experience pins/needles or coldness if a certain position is held for a short amount of time.

*14 yrs old: Frequent urinary symptoms, Frequent constipation, 2 week flu, eye twitch began.

15-17 yrs old: Progressive muscle exhaustion, brain fog. I did play sports, but I noticed I wasn't feeling "normal". I tired out easily.

I'm a male in my early 20s and have dealth with these symptoms (gradually some new symptoms get added) for the past 7 years of my life. Doctors don't know what's wrong with me except to diagnose me with CFS. neutral

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  • Posted

    I also had a chronic H Pylori infection, that's now gone. Even though my activity levels are reduced 50 percent, I can still walk around and go to work full time, but these symptoms, especially the muscle fatigue is bothering me so much. I was an active boy before 15 years old, doing so many things.

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  • Posted

    I get pins and needles, muscle exhaustion, brain fog/cognitive decline, plus many other symptoms. Your last sentence indicates your doctors have diagnosed you with ME/CFS, but you also seem to be expressing skepticism about whether you really have it. I assume you've had bloodwork that all came back normal. Have you seen an infectious disease doctor or rheumatologist knowledgeable in ME/CFS? Those would be the appropriate specialists to see. Many of the symptoms you list ring true for ME/CFS. Go to the "solve ME/CFS initiative" website and see if the symptoms resonate with you.

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    • Posted

      Thanks Jackie, I appreciate the input. Yup, normal everything. I've had cameras stuck almost everywhere in my body and scans; it's just unusual for me to experience these symptoms at this age. And it frustrates me. I've eliminated all other serious illnesses: MS, ALS, etc. But I'm going to search further and request a Lyme disease specialist and a sleep apnea test. neutral

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  • Posted

    I have several of your symptoms, the burning muscles with any activity, the kidney pain, the brain fog and a few others along with some different ones. CFS/ME has many different symptoms and I don't think any one person has them all. The only one that we all seem to have in common is the exhausting fatigue and even that varies in degree from one person to another. I would suggest having food allergy testing and vitamin d and b12 testing as well. Once I eliminated all of my foods I was allergic to, I started to get some better. You are so young, maybe you can find something that helps before you get any older and any more damage is done to your body. Hope something in this information helps you. Best wishes, Diana

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    • Posted

      smile Thank you! I certainly wish the same for you as well. My Vit D is 31 ng, which is supposedly in the norm. B12 is high and normal too.  Could you be more specific on the allergy testing, do I need to seek an allergist for that and get a simple blood test done?

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    • Posted

      On the allergy testing, it was a simple blood draw and they tested for 92 different foods and things such as yeast and gluten. I had a regular general practitioner do the order, but an allergist would certainly be able to do the same and might be a better way to go. They can order the test for more foods as well, I think up to 144 or something close to that. It really helped me, as I was consuming almost everything I was allergic to on a daily basis. Good luck and don't ever stop looking for answers. 🙂

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    • Posted

      How obvious were your food allergy symptoms? Like, did you have headaches or fevers or chills when eating specific food?
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    • Posted

      It depended on the food. For example, dairy products would make my heart race violently and I couldn't breathe and my blood pressure would go really high. They also caused me to have a lot of anxiety. Peanuts just caused me some breathing issues while eggs would cause some blotching on my face and neck. I saw many doctors over the years (I am 57) and they diagnosed me with panic attacks and eventually a panic disorder. They put me on Xanax and blood pressure pill. I think in the long run the blood pressure pill has caused me some damage. The Xanax made me feel awful as I really didn't need it. If I had had a doctor that was half-way smart and ordered the food allergy testing, I would have faired much better. Instead I spent many years being miserable because the Xanax and blood pressure pills did not help, as you can imagine, one bit because I was having allergic reactions instead of panic attacks. Some were so bad that I went to the emergency room and THEY didn't pick up on it either because I didn't have hives. I have since learned from experience that the classic symptoms of an allergic reaction varies from person to person. Another thing I have learned is dairy is not good for humans, especially grown humans. The lactose in milk causes all kinds of stomach issues and they use lactose as a filler in medications so that's a problem too. I hope you can find a good doctor that will help you. ?

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