Does anyone suffer HS and Mutliple Sclerosis

Hi. I most definitely know your pain. I was diagnosed with multiple sclerosis going on 2 years ago and have had 7 surgeries in the same 2 years after diagnosis to try and correct my hidradenitis. I don't see a dermatologist for the hidradenitis, I see a reconstructive surgeon and a colorectal surgeon because my hidradenitis is located at the sacrum and coccyx. They've told me it's very rare to develop it in these areas and equally rare that it's so aggressive. Before the surgeries I had seen an infectious disease doctor who had pretty much setup the whole surgical team for me and have recently stopped having to go to him. The infectious disease doctor has SOME expert knowledge about multiple sclerosis however it's not his area of expertise since it isn't an infectious disease and my neurologist only has basic knowledge about the hidradenitis but loads of compassion for me so I give her many applauds. I currently am taking Copaxone as my disease modifying therapy for the multiple sclerosis and Provigil for the chronic fatigue it causes me. The infectious disease doctor had given a prescription with refills of clindamycin and I was instructed to only use it when my 10 large/open surgical wounds become inflamed and painful. Neither disease is caused by an infection though so he was only treating the infection that developed from having open surgical wounds for such a long time. In the worst cases of hidradenitis the affected tissue needs to be completely removed and replaced with healthy tissue by means of either skin flaps or skin grafting which is going to be the solution to my disease but is a slow process. The Copaxone I take for multiple sclerosis doesn't suppress the immune system like the other meds available but it does modify its function. You have to consider many things when you have multiple sclerosis. I say that because my neurologist is straying away from the other meds available since I have a high index of the JC virus which is extremely common but dangerous for patients with multiple sclerosis because if it activates and crosses the blood brain barrier you have a risk of developing what's called progressive multifocal leukoencephalopathy or PML and that my friend is a death sentence with no reversal or cure. Basically I manage multiple sclerosis very actively and have put the hidradenitis in the hands of a surgical team and try to enjoy my every painful day. I hope this has helped and wish you much luck on your journey to better health and its management.

I toodon't have HS. I am suffering from a lot of symptoms of MS. I am not sure if it's because of my really bad anxiety or what. If you can babymurph please add me on Facebook. I would really like to know your symptoms. Jennae NaeNae Brookover. Thank you and I hope things get better.

Yes! And it sucks! I was finally diagnosed with Hidratenitis after dealing with several doctors and a few dermatologists. 10 years after diagnosis, I still have flare ups. It seems very much stress related for me. I have not figured out how to avoid stress in order to avoid the flare ups. They are infrequent but it would be so nice if they were non-existent. My main trouble areas are my armpits. The flares sometimes alternate and on bad days they are in both, so I walk around like the incredible hulk. Very classy. Super clean diet helps but I'm not sure that's the total answer because stress can mess with everything. My MS had been managed for the last couple of years with LDN. Low dose Naltrexone. For me, that has been an answer. No trouble walking and no more numbness. A little unsteadiness at times but rarely. Hope all this helps. Good luck on your journey!