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Does anyone suffer pain on one side of their body relating to CFS.

Posted , 4 users are following.

rose02814
rose02814

I have been suffering from CFS for the last four years and I have been struggling to cope with every day life. I feel irritable and upset when people do not understand how I feel. I once had a physio therapist tell me the pain is all in my head which made me fee awful. My pain is usually on my right hand side of the body that can move around. It's extreme muscle pain, like a burning sensation. Does any one also get similar symptoms. 

0 likes, 18 replies

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  • sylvia17461
    sylvia17461 rose02814

    Posted

    Yes rose I had a flu type virus which lasted about 3 months eventually went but left me with a sore throat and pain in jaw and ear . Then 4 months later I felt I had been hit by a truck. . Elle all my blood tests came back normal for years. The trouble is GP s seem to ask for the run of the mill tests and if your TSH is normal that's an end to it . Over the years I was told all the illnesses that could be connected to my symptoms had been done . I have just recently been told by my endo he had looked up all my medical records and was shocked to see I had never been tested for autoimmune antibodies, so you se when you are told by your doctors every test has been done it is not always the case. Ellebee, your full blown whack of ME /CFS symptoms could possibly be full blown hashimotos symptoms they are very much the same ! The blood tests you need are thyroid peroxidase antibody and thyroglobulin antibody . If you would like more information to see if this could be your illness go to " I am hashimoto disease, a letter" this describes it in full also lots of comments from sufferers. I am sorry to say there is no cure for autoimmune only treatment and ellebee the treatment is thyroxine ( T4) and triothyronanine( T3 ) so since you are on thyroxine it is probably helping with your symptoms. Getting the correct dose of T4 andT3 seems to be the difficulty ! Hope this helps some of you to do a bit of research on this disease and go  to see your doctor armed with some info. Best wishes to you all Sylvia 
    • elliebee
      elliebee sylvia17461

      Posted

      Thanks, Sylvia, that's really good to know! Will follow up on the Hashimotos thing, definitely. Is a diagnosis of autoimmune disease different from that of M.E? I'm wondering if the symptoms are so closely aligned that M.E might also eventually be found to be autoimmune. Certainly I can trace my first significant problems to the weeks following a three week bout of very nasty swine flu. Thanks again for the info, Sylvia. 
  • sylvia17461
    sylvia17461 rose02814

    Posted

    Hi ellebee, there are no tests at all for ME/CFS as you know only a conclusion after all other illnesses have been eliminated . When there is awful tiredness or fatigue as a symptom doctors mostly " diagnose" ME/CFS this usually satisfies the sufferer as this is what we want , an answer to our health problems . Hashimotos disease needs the specific blood tests to diagnose . If you have looked up" I am hashimotos a letter- for patients , family and friends" you will note a flu type virus seems to be the start of the illness but gives other causes , a trauma or a bad accident stress or habitual abuse. Rose you say don't know if you have been tested for antibodies like myself you probably didn't know there was such an illness or tests for it. You need to bring it up with your GP forewarned is forearmed!! Any one reading this and coincidering it as a possibility you need to see an endocrinoigist or thyroid specialist . Good luck Sylvia 

     

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