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I've been taking Topirimate for InterCranial Hypertension for around 12 months now, originally posted on this site for information about the tablets because I was having a lot of bad symptoms with them. However I continued with them as the only other option was a shunt of some sort so I have decided to continue with the tablets.
The memory loss, hair thinning, weight loss, tingling in hands and feet and quite a few other symptoms have continued but they have dulled down, even though my dosage got higher (100mg morning, 100mg evening) but the headaches are still there. The swelling on my optic nerves has reduced and kept stable but I'm yet to have another lumbar puncture. The main concerns for me are the headaches still being there, occasional neck pain and the weight loss that is coming up to 5 stone in around 12 months.
Has anyone had a similar experience or know what happens along the way? I just feel a bit lost! I feel a bit pathetic really but when you speak to the neurologist it's not always as reassuring as you'd like it to be and I haven't spoken to anyone with IIH as yet. I just feel like a bit of advice might help me a little bit at this point
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