Does anyone with endometriosis have daily pain not just painful periods?

Endometriosis so I know how you are

Feeling

I had the pain all the time and it

Was worse before and during periods

Looking back it controlled my life

And I missed out on many things

It was also on my bladder bowel cervix

I had to be admitted every year to have it removed under a general this was painful

I tried many medications but nothing

Helped

I know other people who have tried

Prostap and they have found relief

So could be worth a try

I had an hysterectomy in the end and

This worked for me I still have bladder

And bowel problems due to the

Endo I wish i had been able to have

My hysterectomy sooner but

It took years of me asked to find

A hospital to agree

I hope you feel better very soon and find

A solution that works for you

b: I have been on leuprorelin (Pro stap) The 3 month shots are heavier as it is a longer "cycle" than the 1 month shots. I did not manage well on them, and it got worse with time. It is not a long term solution, but some manage better on them.

Surgery, bowel-resection helped me with the pain, but it has it`s risks, which can be serious. 

If you go for Pro stap, I would do the 1 month shots. The first months you may not notice so much..but by the end of the second/third you probably will. It is also known by the name Lupron, and if you google it, you will find many warnings. 

Even if I had read all the warnings, I decided to take the shot, because it was supposed to be for just a few months, it turned out to be much longer.

I was on it a long time, in the end my short term memory was so impaired, it was like what I imagine alzheimer to be like. I was like a zombie in a fog, I could not get out of bed..and I have never been like that before in my life.  It was not like a depression, even if it can be experienced like one. I simply had no emotional/hormonal energy to mentally motivate myself to get out of bed. I could not think ahead. I could not think from point 1 to point 2 in the end.

Now when I am off that medicine, I can get out of bed again, my memory is restored and I`m functional again, like before those shots. 

The brain is filled with receptors for hormones, affecting our cognitive function. Without any hormonal production the brain`s signals slow down. This affects some worse than others, also depending on their life and work/study situation.

The first 6 months I kept thinking it was going well compared to many patients horror stories..I kept thinking that with increasing doubt over the next 6 months too. But eventually it was so bad, there was no doubt I had to get off the meds. 

I now use provera, I adjust how much myself. So if I feel more pain, I can take a little extra and it keeps the pain under control. For me it is far better, and I should have gotten off the shots sooner than I did, I know that now.

If you are doing the shot as short term treatment, then I would not worry so much. But in the long run you will need some kind of treatment.

Even if you take the shots, you can always stop taking them if you react badly.

Always keep in mind that you are on a medical treatment that may affect you, so that you can separate between what is you and what is the medicine.

Bowel surgery is not usually so bad, if all goes well, sounds worse than it is. Depends if the Endo has grown into the bowel or if it is only on the surface. If its on the surface, then they shave it off. If it has grown into the bowel, then they do a resection. But there is a small risk of a (usually) temporary colostomy. And if that happens, you can get severely ill a while. But it rarely goes that wrong. 

The pain I experienced from bowel endo was horrific, I could not crawl a few feet to get pain meds. under a cramping attack. So for me the bowel surgery gave me my life back.