Does anyone with PLC or PLEVA have any autoimmune conditions?

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Can anyone who is willing to share their information please post here which (if any) other health conditions that you have along with Pityriasis Lichenoides? Even if they don't seem relevant to you, they may still be relevant!

For instance, myself, I have severe "seasonal" allergies, at the point of taking Zyrtex ALL YEAR ROUND now. 

I am going to see an allergist next week for the first time in my life (30 years) to have an allergy test performed to find out the specific culprit(s).

I have a few suspicions but nothing confirmed.

I was also "diagnosed" recently with Fibromyalgia for my consistent all-over body aches and pains (which I am contesting and seeking a second opinion for, because I believe symptoms of fibro at times can falsly present when truly relative to another condition)

Lastly, I have pre-hypertension. Nothing to be alarmed by just yet but my doctor has been keeping an eye on my blood pressure. But I'm overweight also so that is significant. 

My point of this post is that I am curious if there are any other relationships between this skin condition and other topical or internal conditions, among us PLC/PLEVA sufferers.

 

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  • Posted

    Hi, my name is Joan.  I was diagnosed with biopsy October, 2015.  I have Rheumatoid Arthritis.  First break out was preceded by virus in February 2015.  Head tingling, itching;  arms broke out with red spots, itched and hurt?  First dematologist blew it off as winter skin, did not make cense to me.  Went to dermatologist who treated immunemiatiated skin problems. Stopped my Orenzia, in case allergic reaction.  Rheumatoid flared up had two steroid shots to control till started   I have break out of a lichen like on face(peal bleeds) and breakout on scalp last four months.  So glad to have found this site.
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    • Posted

      Thank you for your reply. Interesting that you have RA along with this condition. My dermatologist immediately ran some bloodwork for a few things and recommended I see a Rheumatologist. The Rheum immediately tested me for RA because of other symptoms. The blood tests he ran came back negetive.  

      My blood tests from the derm came back with Epstien Barr Virus antibodies (I had the virus about 20 years ago) and the derm also found a large amount of Strep at the time (which was strange, because I did not feel sick at this point in time) 

      The common link that I am seeing is that the "flare ups" happen when my body is fighting ANYTHING ELSE at all. Even a common cold. 

      My symptons of PLC/PLEVA immediately followed a bad virus/cold as well when they first began. Also I had them on my arms the same way, itchy and painful, but this was a few months before the strange patches I started getting.. I just thought it was my laundry detergent at the time. 

      I just started having a really bad flare up over this past week. Mine come in the form of papule-type little spots (they almost look like pimples, but can show up randomly on my body)  and then I also get small circle patches that look similar to nummular eczema or ringworm.  I havent had the circular patches in a while, they are just kind of mis-shapen now.  

      This is just such a strange condition. I cannot wait to see the allergy/immunology doctor on Thursday. Can't wait to hear what(if any) input he may have about this. I will DEFINITELY post a topic on here about whatever my take-away is from that visit. 

      I've been through hell and back for a year now, and I refuse to accept that because this condition is idiopathic, that is not tied to something else. 

      Its *strictly my non-medical theory* that PLC/PLEVA is a sympton and not a condition, and I believe that once we find the cause, we can work toward treating the ailment, and not just quelling the symptoms.

       

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    • Posted

      As mine progressed became a red spot with clear covering.  Spread all over my body; chest, breast, shoulders, arms over under, stomach, bottom, back, thighs, legs, hands and feet.  When I had a steroid shot in each but tucks to treat Rheumatoid systems cleared for a while and came back in about month or so with vengence.  Treated with steroid cream and then stronger steroid cream and went on Doxycyclene (it has anti inflammatory action)  for a month.  Rash cleared slowly.  Reappears in small pappule and lichen ? Like face does not itch. My first scared with rough cover and dark spots. Must admit you feel like something from outer space at times. I have checked into research no findings of cause.  Is much better not so bothersome.  Just on face, scalp,arms, chest. Not at all like first stages.  Do not think you will find a connection.  Sorry, I know the feeling.
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    • Posted

      Hi, I've been off this site for a few months.  I've had PLC for 6 years now and it is totally frustrating.  I have to cover up when I visit my family in North Carolina and resent that enormously.  

      Talk about trying everything:  light treatment 52 times didn't help, various medications, etc.  My dermatologist has me on Dapsone now, and I get a blood test every month.  There's something called MAD - multiple autoimmune disorders - and I have two of them - this skin disease and under-active thyroid.  I also have osteoarthritis which started after this ugly skin condition.  

       Because only 1 out of 2,000 people have PLC, not much research has been studied unfortunately.  The white blood cells have to be re-directed somehow to stop attacking the skin and that has been futile.  I have finally learned to live with it.  It IS a condition and dermatologists seem to be at a loss about any cure except pills that suppress the immune system.

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  • Posted

    Forgot to give age, 78 - told very rare at this age.
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    • Posted

      Thank you. I cope. I am sorry that you have this as well. I hope you have clear days ahead!

      The aesthetic aspect of the condition pales in comparrison to concerns I have about what other ailments lurk beneath the surface.  I worry about sepsis, as I suffer from many symptoms of the more rare form of Mucha-Habermanns.

      I need to get back to my primary doc and get some more referalls soon. One appt at a time. Holding out hope for the allergy doc's pronosis, or any relative information I can get out of it. 

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    • Posted

      I have worried about Pleva the stage that attaches many organs.  Have found if you have symptoms you will be referred, if not change your primary care giver.  I worry because so rare some may not be familiar with problems, I do understand what you are saying.  Rheumatoid has same ability.  I had places on my lungs about 4 months ago my cardialogist got me  immediately  to Pulmeologist.  Ran a lot of test and diagnosed and treated. Inflamation in lungs and small tubes. Probably caused by Rheumatoid. Treatment is working. So hope you get answers, really know how you feel.  My Rheumatoid has been a real challenge past four years, have been doing better.  I am on Orencia and Mycophenalate.  I am happy, have loving husband and family. 
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    • Posted

      Although I'm sorry that you also have to deal with pityriasis lichenoides, it is comforting to know that someone out there can relate.

      I'm glad your RA management is working for you! Wish you the best of health to come smile

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    • Posted

      Reread 1st message, mine clustered all over my body and some were single.  My third biopsy was taken on thigh and was fresh break out.  Came back PLC, like you age rare.  I have dry, dry, dry skin. 
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