Does CRPS reoccur after every injury?

Hi.

I'm so sorry that you have been diagnosed with CRPS and have had so much pain.

Some people do develop lesions with CRPS. Internally or externally.

It is quite possible that your other experiences were CRPS related.

I have it in my right foot and leg. When I first was diagnosed I had twitching and spasms in my leg, foot and toes. They got better and I hadn't experienced spasms for months until a couple of weeks ago. I started having twitching in the toe next to my little toe and in the tendons connected to that toe. It would come and go. Now they have stopped, for the past week. I had originally experienced paralysis in that toe. I have no idea why the twitching and spasms in that tie started up again.

I have Fibromyalgia too. The CRPS is like Fibromyalgia on steroids.

I think CRPS and Fibromyalgia are both autoimmune and neurological diseases.

The symptoms are very like those of MS.

Many many years ago my mother was diagnosed with MS but they could never find lesions on her brain or spinal cord. But her symptoms presented as MS. So, that is how they diagnosed her. This was years before Fibromyalgia was even thought of. She actually had Fibromyalgia. I think from the pain she described in her feet that she my have had CRPS too.

I have heard of people with full body CRPS and from the symptoms they describe it sounds like Fibro but much more painful than the full body Fibromyalgia I have. Also I have seen an interview with a lady who has full body CRPS and she has lesions on her brain.

I'm not trying to scare you. Just letting you know what I have read, seen and experienced.

If it will make you feel better to look into other possibilities than go ahead.

Don't read about all of the worst cases and scary stories. They aren't helpful at all and will just freak you out.

We are all different and have different symptoms and respond differently to different treatments.

I have spent two years dealing with CRPS and dealing with Fibromyalgia since I was a teenager. I am 50 now.

It has been trial and error for me to find what works for me.

I did research on reliable sites and avoided anything that would scare me. Knowledge is power.

Contact me whenever you want.

I wish you all the best. Take care as best you can.

Gentle hugs.

Tracy

And your question about does CRPS occur after every injury?

I feel I developed CRPS in my leg and foot because I already had Fibromyalgia when I had my accident.

I was in an ATV accident that crushed my right foot and hyperextended my right ankle. Another injury during physical therapy for that foot and ankle caused the CRPS to spread up my leg.

I have CRPS type 2, there is a confirmed nerve injury.

I am very careful what I do now. I do not want another injury that develops into CRPS.

Now with the Fibromyalgia, I did experience intensity in pain in places I would hurt myself.

I pulled my shoulder and that became a problem area with increased pain and tenderness to the touch.

I had a root canal and experienced pain in that tooth for months even though the dentist had killed the roots.

I twisted my ankle and the pain migrated there and hung around for months.

I learned with the Fibromyalgia that if I hurt myself, the Fibromyalgia was going to move to the area and cause increased pain and stiffness. Even with an elected surgery like the root canal and just getting another tooth capped caused me more pain. My weirdest Fibro symptom, my teeth felt swollen up and huge, not the gums, my teeth!

Needless to say I will not be getting lasik eye surgery.

I think the reason the injury to my foot and ankle became CRPS instead of just migrated Fibromyalgia pain is because the ATV accident was a traumatic injury. It broke my foot in three places and just crushed the crap out of my whole foot. And the experience of the crash was traumatic.

I was thrown 25 feet and the ATV came flipping towards me and then landed on me. It weighs about 800 pounds. I was pinned under it for a minute or two until my husband came along and got it off my foot.

I got off lucky. I could have crushed my whole leg or my whole body if it had kept on flipping.

The original Fibromyalgia became CRPS.

I will never ride an ATV again!

I was unable to walk for a year, I was on crutches. The pain was horrible! I had spasms and had sleep difficulties.

I already had sleeping problems due to the Fibromyalgia but the CRPS made them worse.

But I found a protocol that works for me. I am walking again. My pain hasn't risen above a 5 in a year. The spasms have subsided except for 2 weeks at the beginning of this month. But only in that one toe.

I go hiking, boating and fishing. But I am so so careful not to injure myself again. For me high risk behavior is not worth an injury that could very very well end in CRPS.

But as I said before, we are all different.

You have noticed that when you have had injury occur to your body it results in intensified pain. Whether it was surgery or an accident. This is a good indicator that any injury you experience may result in increased pain and other problems.

It is your life and you must live it the way that you want to.

Take care.

Tracy