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I’m 21 years old and I just recently got diagnosed with henoch-schonlein purpura. This started in December with severe joint paint that almost completely immobilized me. My mom took me to the ER and they tested my SED rate and it was elevated so they referred me to a rheumatologist, prescribed me steroids and sent me on my way. Steroids helps the joint pain and in a couple of days I was back to normal. A few weeks later I developed this rash on my right foot, I thought I must be allergic to something so I stopped everything that I thought could have caused the rash. It kept getting worse and moving up my leg. Didn’t hurt or itch it was just annoying to look at really. Then my right foot started swelling and i was hardly able to walk on it and I felt exhausted and drained all the time. Finally got in to see my primary care doctor and he ordered a skin biopsy (keep in mind it is mid January at this point) for my rash along with a buttload of other blood tests. Skin biopsy showed that I have HSP so my doctor ordered some tests on my kidneys to make sure the HSP hasn’t caused any damage to them. Tests came back from that normal. So he prescribed me more steroids and told me to come back in four weeks. The rash has cleared up from my foot-butt and was rash/joint pain free for about a week and a half. Fast forward to today, the rash is now on my left foot to my calf and my left foot is so swelled that can’t walk or move it hardly. And he wants to check my kidneys every two weeks. He said that this will eventually clear up and I will be better but is that true? I thought autoimmune diseases were life long? I just want to know if I will be dealing with this rash and joint pain and constant exhaustion forever. I’m thankful my kidneys are fine so far but is there a chance they could start to go bad? Or am I in the clear? When/if I ever go into “remission” will I have to worry about this flaring up again? Also my doctor said that the HSP was caused by me having strep throat at the beginning of December. I live in a very small town so the chances of me finding someone here in town with this disease to ask for advice is very unlikely
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