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In October last year, I was diagnosed with HSP, Im a 17 year old girl and I'm on a college course which involves A LOT of physical activity. When I was diagnosed, it was only small spots on my lower legs which over a short amount of time turned purple as they're supposed too, there was nothing wrong with my blood tests, my urine tested for trace amount of blood and protein and apart from very sore ankles, I was fine. I've never really had any trouble with this disease, when I was being monitored at my doctors every week, he was finding very little blood and protein but I got sent for an ultrasound on my kidneys just incase, again everything came up clear, there was no damage whatsoever. However, last week I contracted tonsillitis, I was really ill for someone with just tonsillitis and I was allergic to the penicillin they gave me to clear it up but what really shocked me was my urine, it was red, bright red. I thought that I must just have my monthly but then there was nothing there.. I thought right okay, I'll see what it's like in the morning. I woke up the next day and went to test it (we have dipsticks at home) and that's when I saw my urine was dark brown, straight away I thought, HSP flare up. My mum told me to go straight to the doctors and tell them to test it, I explained everything including the hsp and it was brushed off as a urine infection even though I knew it wasn't. After that I saw various nurses and doctors telling me the same thing even though I knew there wasn't something right. That's when the rash started to develop, it started as normal, a load of red spots on my lower legs and I wasn't phased but the next day i woke up and it had spread, the whole of my lower legs, ankles and feet are covered and I mean there isn't a part that isn't covered, my legs are swollen and sore. We went to the hospital yesterday because I had a lot of blood and protein in my urine but no infection and now the rash but there's nothing that they can do for now. Today the rash has spread all up my legs, my bum, my arms, my hands, my back and my stomach yet the only part that's bothering me is my lower legs. The rash is so bad now that I can't walk and I can't sleep (that's why I'm posting this at 4 o'clock in the morning) I'm in so much pain; I've tried taking antihistamines like piraton and loratadine because the doctors said it takes the edge off but it doesn't. Can someone please help me? I don't know where to turn for advice anymore thank you.
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