does it ever end??

Posted , 6 users are following.

after i had mono in feb 2022 i still don't feel like myself, it literally took me months to feel some what normal & my symptoms are starting again. i have been to the doctors non stop and everything seems fine. & im pretty sure at this point they dont know what to even tell me. i am going to make a appointment with a infectious disease doctor because im literally losing my mind!!

my current symptoms are

  1. burning/sore throat
  2. breathing on & off
  3. major fatigue
  4. depression/anxiety
  5. pain in lymph node

    6 feels like flu symptoms or allergies i dont even know any more

    7 hot flashes/ cold

    8 brain fog

literally im so scared of this thing and dont know what to do ,it literally feels like im losing my mind or i think the worst case scenario! does anyone have the same problem or any tips? i would highly appreciate it!

0 likes, 11 replies

11 Replies

  • Edited

    i feel same i rekon its my thyroid

    • Edited

      no just waiting for appointment x

      got to be it though im sure of it.

      heres my stuff

      weak hands especially in the mornings

      lymph node pain in neck and under arms

      hot neck

      sore throat occasionally

      excess saliva

      dry throat

      thinning hair

      hooded eyes

      weight gain of two stone when ive been same weight since 18 although im not overweight

      cant use hands in cold

      urge to clench teeth and crack fingers

      shoulder blade pain after hard day at work

      gut is all over one min cant go then go loads

      started to smell different when sweating like an onion smell


      muscle twitches for years

      depression and panic feelings for no reason!

      god when i spell it all out its a wonder i havent gone mad haha

    • Posted

      i hope you feel better! it sucks going through all of this, have you seen a infectious disease doctor? thats my next step

    • Edited

      i feel you . i feel like they dont take me serious sometimes but i still keep trying. my advice is take a bunch of vitamins bc i noticed that helped me

  • Posted

    hi if you got an appointment did the infectious disease specialist help?

  • Posted

    Hi, ive tried literally every supplement and tactic under the sun and am having the same symptoms as you since april 22

    • Posted

      I am 24 month into mono. around 8 months after unset, I had noticeable progress for around 2 months, until I overestimated my progress and returned to exercise, and that set me back to the first square. I also had some Covid infections afterward.

      Only in recent 3 months I am again seeing some progress.

      I think it is most important to not exceed you energy envelop, and at the same time you need to have activity daily. This is what has helped me to progress again.

  • Edited

    Sorry you're going through this, I'm going through similar.

    Woke on 4th Nov 2021, feeling ill. Blood test on 11th Jan 2022 confirmed I had Glandular Fever. I haven't felt completely well since.

    I have days where I feel like I'm better and I manage to potter and catch up on a few things but then I'll feel wiped out again and my throat will hurt again.

    It's difficult because I do have CFS, so when I spoke the Dr last time and he said "it sounds like CFS to me" I felt completely dismissed. Yes, maybe my CFS has got worse but don't just assume that!!!

    My sleep pattern has also gone completely barmy. Sometimes I'm awake for a day or 2 and then I'm asleep for a day or 2. Sometimes I sleep for say 3hrs and feel like I'm better.

    I have had to cancel so many things i.e family visits, going away with my husband, appts I need.

    It's ridiculous and no one understands.

    I hope this is not my life now, nor any of yours 🤞

    • Posted

      i have exactly the same and its so difficult to be positive sometimes

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