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Does it help?

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hazel70459
hazel70459

Hello , Just had a copy of my discharge notes summary , there in black and white says I have NEAD and tells my Doctor I will benefit from having  neuropsychiatry input. I accept all of this , Just interested if any one else has seen one and does it help reduce them?. I also have fibromyalgia and silent migraines. would have to have two symptoms that dont seem to be taken seriously well thats what it feels like, as if you want to put yourself through pain and seizures I am not an attention seeker." Its not all about me darlings ha ha " rather be able to return back to my job and climb the stairs without stopping. Happy days smile

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  • mary50992
    mary50992 hazel70459

    Posted

    Dear Hazel,

        Cut a cheating husband's dangling parts and use them for  earings  sounds good to me ha ha...That is where my x-husband's brain is. 

         My daughter was once afraid of me going out alone. Just don't know when a seizure will happen . Can't live life in a bubble. I injoy going here and there. It's great to be alive each day. Life does have it's dung to step over. Sometimes we step right into it. I can wipe my own shoes clean of it. Yesterday I was having more than a few moments of crying. I was in hospital with a asthma attack caused by my work place. Workers were removing ceiling tiles from the hall ways and residents rooms and I walked right into the dust cloud. Now my nurse manager must book me for when those workers are not on the unite.  There is no love between me and my managers ( nurse manager and building manager).

        My daughter and I have booked a cruise for September out of New York sailing to Berumda. No cooking or cleaning for a week.

         One month no seizures. I hope I have no more. What a nightmare they can be.

          It is spring time. Isn't it great?         

           Thanks for caring. Mary

    • hazel70459
      hazel70459 mary50992

      Posted

      Hello Mary,

                            Sorry for the late reply, I have been back at work less hours than i was doing but It gets me back in the swing of things for now. I am still having the odd one but they dont seem as bad, thankfully not at work. My boss is really good, worries it will happen in work understandably I get a warning. My doctor told me not to tell my boss , but she needs to know. What lovely weather we are having, I have been washing all day putting it on the line. One month thats great Mary , do you drive?. I got told to stop but as yet i am not on any medication bizzare!!!!. I mean how can i stop them if i am not on medication, beyond me. I have to go and see the Nuro next month. Its true my family dont like me going out by myself but like you say cant live in a bubble, I wear a medi braclett just incase. I like going out and about I feel staying in control of yourself is very important. OOOOOh a cruise you lucky lady , soooo deserved. how nice to create memories for the pair of you. Well i am off to get my washing in. Big hugs. keep in touch.cheesygrin

  • mary50992
    mary50992 hazel70459

    Posted

    Dear Hazel,

        So happy to hear that you are back at work. Keeps the brain busy.It's good that you get a warning before a seizure to get your self in a safe place, position. In the past I sometimes did not get a warning. Good news , one month and eight days no seizure. I must say there are times when I feel as if but I try to just close my eyes and let the feeling pass. Go with it. I try to get a good night rest of at least  eight hours and  drink lots of water during the day.My days are over taxed with my work etc. because I want to do the best I can. If I make mistakes I try not to take myself too serious.

       I like hanging clothes on the line too, saves money in hydro. The weather today is windy and raining. I'm going to my daughter's work place later to met her after she done her shift. Well I am going on night shift for awhile. I can still reply to you.

        Yes we are cruising to Bermunda from New York. We love cruising. I take a vacation once a year. Always need it in the worst way. It's a time that I forget work etc. Just enjoy ourselves. My daughter said maybe in six more months I might not have another seizure and I may not have seizures on the plan. Any how if I don't try flying by September I wouldn't know it I would still have sezures during left off or landing. I see it this way if I do , I do. Taking a train is 13 hours long to get to New York. Flying is 1 hour and 35 minuts.

        Let me know if you are O.K. at work. I think I needed this past year to heal my brain from the overdose of iodine. There is most likely some damage to my brain from the ioding allergy. Playing the piano once more is helping to relearn what I lost when I had seizures.

         You sound like a wonderful lady who enjoys life to the full. Hats off to you. Take care for now.

  • mary50992
    mary50992 hazel70459

    Posted

    Dear Hazel,

        

        Hello there. Hope you are fine and seizure free. One month and two weeks no seizures. I'm on night shift and I don't like it. My sleep is terrible. My brain is having a bad time adjusting. My interal clock is a mess. Got to do what you gotta do. I'm a bite worried that my seizures may start up agan from the stress of it all. Painted my inside front door this morning, white. Raked my front lawn. It's my  day off work. I don't know why but when I lay down to sleep and close my eyes I see shades of green. Sometimes I get slight feelings as if a seizure is about to happen but doesn't. I don't want to tell my daughter about this. Working night shift puts you into a strange daze. I hope I get use to it. I was told I will be on nights for at less a year. Life. Going to do my income tax today.

        Spring is here. I worn only a light coat outside. Email soon. Sleeping my life away on days zzzzz ...zzzz. Mary

    • hazel70459
      hazel70459 mary50992

      Posted

      Hello Mary, Feel sorry for you working nights takes it out of you, do you have to do them or could you explain due to health reasons it doesnt suit you?, daft question If you are like me you most proberbly work hard to convince your employer everythings ok, used to work nights but I never really slept in the the day did housework . I am concerned about you having slight warnings, thats how It all started up again with me , maybe your body is trying to tell you somthing , you take it easy you have your cruise to go on. Your daughter will most proberbly pick up on a change in you. I hope you remain seizure free. Well my friend I went back to work was enjoying being around people again but Thursday last week i had one and this Saturday morning and last night went down on the laundry floor legs halfway out the back door plus my fibro pain escalated  not a happy bunny as I realise maybe my job is not for me at this point in my life , my worry is who will take me on !!!. My boss is really good about it but even she has said its a physical job and noticed i am struggling. Visious circle isnt it Mary. but i am not one to give in besides I want to get a puppy, a puppy will help me alot keep me motivated on my days off miss walking a dog. I am trying to persuade my husband its our daughters 18th in june so i am making it a goal to work to. We lost our beloved dog a few years ago to old age, my husband said never again so i have my work cut out have to work my magic hee hee. He did say however if i can earn a steady wage then i can, so thats not a no just feels like a tall order at the min I think he doesnt think i can due to health. Dont you just love this weather does you good to be out. Take it easy mary enjoy our chats now. Its good to share. Hugs cheesygrin
    • mary50992
      mary50992 hazel70459

      Posted

      Dear Hazel,

            Sorry to hear about your resent seizures. They can happen so suddenly. Out of the blue. Don't live in a bubble! When I went back to work, I was so scared about having a seizure. I'm still scared. I need to work for my living. Hazel it has been two months now since I had a seizure. I hope it will be the end of them. I do get strange feelings as if I might get one. A daze comes over me. A feeling of not quite being in the moment. I think this is happing because of my disturb sleeping . Working night shift. Not sleeping a full eight hours. I was told I would only be working night shift for less than a year due to renovation on my work unite floor. It is to protect me against dust and chemicals that would be used during the day shift to get the renovation done. Oh such is life. If I have any more seizures it will just be a relive.

          Are working full time hours or part time at your work? My job is a physical one and I like that way. I go at the pace that I'm feeling at the moment as long as I get the work done. It is a visious circle. I hope you get a puppy. My cats always did seem to know when I was ill with my seizures. They all wanted to sit on me. I think they know when your not your self.

          It is cold today, 2c. It has been raining. I live in Ontario, Canada. Do you live in the U.S.A.?

          Tell me about your fibro pain. I'm looking forward to my cruise with my daughter in Sepember. We got a good deal, $1,700.00 each for everything. You must try a cruise some day. No cooking or cleaning. I enjoy our chats too. I hope the best for you.  

    • hazel70459
      hazel70459 mary50992

      Posted

      Hello Mary , I live in UK . Just sitting in work at the moment start in half an hour. Its very sunny here at the min. Fibromyalgia is somthing i have had for years but only diagnosed this year. Its like a burning fluey pain all over body with certain parts of the body more intense like neck/knees/pelvis . In pain today but need money ha ha especially if i want to get my daughter a puppy, husband is slowly coming round to the idea hee hee. Big hugs and take it easy. Have to go now.
    • mary50992
      mary50992 hazel70459

      Posted

      Dear Hazel,

           You live in the UK. From the news reports it seems like everyone there is waiting for the royal baby to be born any day now. I think it well be a baby girl. Thank  you for telling me what Fibromyalgia is. Very painful. I hope you get your puppy. Still seizure free. When I'm over sleepy I get a strange feeling like not being in the moment and than after a few minutes I get forcus back . Do you ever get this? In September it will be the true test when I fly with my daughter to New York City when we go on our cruise. Taking off and landing will tell me if I'm truly free of seizures. I think it will somewhat brave of me. I have to know. Are you having beautiful weather? My father was born in England. His last name was Weymouth. I hated the name growing up because other children called me big mouth. Me , I hardly spoke due to my English and Irish accents mixed together. My mother was Irish and French and both my grandmothers were Irish. My grandfather was proper English if you know what I mean. The weather here today is beautiful. Hazel, tell me if you know this, a Canadian dollar is equal to how much English money?

         The best.

    • hazel70459
      hazel70459 mary50992

      Posted

      Hello Mary , You were right she did have a baby girl. And we now have a puppy called Charlie hes a labrador cross with a collie soooooo cute. I have moments where i go vacent my mum said iv always had them. I kind of zone out for a couple of minuets. I go and see a nurophycologist on Fri see what he /she says. The doctor at hospital is saying its catamenial aswell as Nead!!!!. I have been getting alot of dayjarvou ( cant spell it )at the min bit weird. I havent had a seizure for two weeks now but feel sometimes i might have one but dont. They have definately reduced since coil fitted. Want to drive again. My husbands great but can also moan abit at the fact he has to do all the driving. Miss independance, i like looking around shops where as hes in a rush for know reason so its not fun feeling i have to rush around. How are you? . Not sure about canadian money will google it. You could have relatives in Irland then how exciting. My dads dad was from America but he never met him. His nan and grandad adopted him. Grandad was irish And nan was welsh. intresting isnt it. We all like to know our history. My maiden name was Byrne and i used to get called bum, bryn, burney bum and bird ha ha. Weather was great last couple of weeks and now its raining typical bank holiday weather. Hugs take care and dont over do things. If you like i could private message you my email add leave it with you.
  • mary50992
    mary50992 hazel70459

    Posted

    Dear Hazel,

        How do you private message? I would very much like to give you my email.

        I'm so happy you got your puppy. Cheers! No seizures for two weeks, great. The weather here is damp and chilly. I have had no seizures for two months now. I do get the feeling, moment of a daze,out of the moment with lime green colouring but I wait to see if it well pass. I don't tell my daughter because I don't want to upset her. Night shift is tiring. As humans we are not meant to be awake at night. I'm trying to loss some weight for my cruise.

       I rent a car to go visit my other daughter in the country. I seem to be O.K. with driving. You might be too.

       Have notice there are more people on this forum in the last little while? Hazel tell me how we can private email each other without a ton of people do it to us also.

        Take care. Going to watch Dancing with the STars on the TV at 8pm.

    • hazel70459
      hazel70459 mary50992

      Posted

      Dear Mary , Do you Know I havent a clue ha ha , someone sent me one once but I have just been trying to figure it out. when I do or if anyone knows please let me know, Yes I love Charley ( puppy) soooo much already , but boy can he tinkle & poo wink dont know how he does it. Training him daily, soon he will be aloud out on the streets to walk still has to have a couple of injections. Thats fantastic you are still seizure free, I am to but like you still get that feeling i am about to. I am sure driving would be ok for me to as i get warnings , I asked about it when i went to see Nurophycologist last fri oooh let me tell you what she said.I went to the Walton Centre in Liverpool England where they specialize in Nurology ect lovely place. She was really nice and focused, Informed me that I was Diagnosed in 2007 !!!!!!! Know one ever told me , had they done so it might of caused me less worry, nothing i can do about that now. Any way I was very open about my childhood ect ect. Part of my condition is Catamenial and some from trauma , since having coil fitted seizures have subsided which is very positive. I said its a very hard pill to swallow that I have NEED but I am learning to accept it so that i can move forward which is what all of us want. I have to go back two more times then an evaluation is sent to my Doctor. I feel so positive and keep a sense of humour which has been my strongest strength. She gave me a booklet that i can understand , so I have shown my Husband and Children. List of a few points:

      * Its important to remember that seizures arent fake / put on

      * Extreme stress can cause illness and Disability

      * Can suffer Fibromyalgia / chronic fatigue & Irritable bowel syndrome.

      * Other symptoms:

      Numbness & tingling

      Pain

      Poor concentration

      poor sleep

      Blurred Vision

      Dizziness

      Frustration and anger

      Worry

      Bladder problems

      Fatigue

      Headache

      Memory Problems

      Difficulty speaking

      Feeling distant

      Limb Weakness

      Low mood

      Panic

      Bowel problems

      eek eekeekeek not much to be happy about ha ha.

      Also says to help yourself is a good way to think about Non epilepsy is that " you are not bringing seizures on by yourself  but can help to get yourself better. There is light at the end of this cra**y tunnel , its just alot of self help and good understanding from real friends. i have lost a few just dwindle off but i dont resent them , they have lives. right Mary i best get on. ooh Dancing with the stars , i watch that now and again. hugs xxx 

    • hazel70459
      hazel70459

      Posted

      Hello mary, i still cant figure out to private mess you. Well i spoke to soon i had a seizure last night and woke with a horrible migraine cant shake it, hate it. My aunty is helping me to see if i can get PIP. Not sure, just cant carry on with struggling. Had to let my boss down today and i hate that already cut back on my hours. good job i was off thur & fri anyway need to recover. Thought i was on the way to becoming seizure free. litterely is taking each day as it comes With this. Trying to remain positive thats all we can do. How are you?.
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