Posted , 14 users are following.
I have had PMR for over 2 years, and am now on a low dose of pred. The last few weeks my fingers really hurt. I know there are other possible reasons for this, but just want to find out or eliminate- has anyone else with our condition had this? Thanks
0 likes, 29 replies
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Daniel1143 Herbo
Posted
What I learned on this site was that PMR very definitely does affect the hands. People came out of the woodwork to comment on the pain and swelling in their hands. So yes, your condition is well known and well understood among those suffering with PMR.
maurice1962 Daniel1143
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EileenH Herbo
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As Daniel says - yes, PMR can and does affect the hands. The leeds rheumatology group did a study and found there were many patients with hand problems and they found the signs of inflammation there. Feet too.
I had quite severe tendonitis and synovitis in my hands in the first 5 years of PMR - the years I wasn't on pred. It took some months but once I was on pred it all faded away. My feet were also very painful - it felt as if I was walking on a mix of sharp pebbles and broken glass. It too faded once I was on pred. There are many patients on the forums who describe similar foot problems.
maurice1962 Herbo
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amkoffee Herbo
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I've recently been diagnosed with PMR. I haven't even gotten to see a rheumatologist yet. They're very over scheduled in my town. But that was one of my first symptoms was my hands well specifically my thumbs. Of course I also had the all over pain too.
jo42444 amkoffee
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jo42444 Herbo
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EileenH jo42444
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linda17563 EileenH
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EileenH linda17563
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The Leeds group has - and are working (with the support groups too) on getting it more widely known. But a lot of the problem is that PMR is the poor relation, doctors think they know all about it and don't bother reading new work/thoughts. And many are downright arrogant in believing THEIR version is the right one. A lot will only read work done in an English speaking country (a lot is done in Spain and Italy) and in the USA some doctors in office-based practice tend to dismiss UK work - one patient was told by her rheumy when trying to discuss the use of pred over a minimum of 2 years when he wanted her to reduce over a few months "Oh, they do things differently in Europe." Office-based specialists and GPs anywhere do tend to be behind on up-to-date work - it isn't surprising, they have less time - but they won't hear the patient either because we don't know anything, they are the experts.
The blasted disease is the same, cause, course, effects and response to steroids, whether you are in the UK, Spain or the USA.
joey_12298 Herbo
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Hi herbo. I am suffering from hand & feet pain on left side of my boody but I am on Prednisone. Must ne the RA.
EileenH joey_12298
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Not necessarily at all - if the pred dose is too low then the inflammation will return and build up. My hands are always the first place for a flare to show up - my feet have not yet joined in but then, I never force a reduction once the "usual suspects" in a flare appear.