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Does quality of sleep or depth of sleep affect PMR

Posted , 4 users are following.

Kimster
Kimster

Greetings from Leicester - hope you are all as good as you can be!

I am wondering if there is something about sleep quality or patterns that affects PMR, my reasons are below.

I woke at 4.30 one morning this week, the usual horrid stiffness was hardly apparent, I made a drink, went back to bed, woke at 7 with the horrid stiffness all there, as usual. So the stiffness had arrived between 5ish and 7am.

This morning I woke at 6.00 am, that is early for me, again, minimal stiffness, I didn't go back to bed, have been active since then and wondering if this is going to \"catch up\", if I sit still for more that 15 mins I feel stiff, I would normally anyway.

Audster

0 likes, 5 replies

5 Replies

  • BettyE
    BettyE

    Posted

    Hallo Kimster and all

    Lovely sunny day here; I must beware. Last Sunday I was boasting about cutting lots of grass and feeling no ill effects and on Monday, after a really goo sleep I was still boasting. Tuesday night I kept waking and dozing all night and on Wed felt iserable and more pain than I have had for ages. Last night, slept well, only waking once and have just got back from weekly market shop feeling fine. So, yes, I think sleep does have an effect on PMR. Trouble is, what is it that affects our sleep?

    I used to be one that died every night for five hours and was full of energy and always ready to go all day long. What's different?. Well, I am older, no denying that but at 68, when PMR first struck eleven years ago my sleep had not changed since adolescence; it's only happened since then.

  • Guest
    Guest

    Posted

    Hello Kimster. I find that, if I have an almost sleepless night, I feel, not so much stiff, but generally unwell the following day. One other thing I would be interested to know. Before being diagnosed with PMR, I suffered terribly from vertigo, which was with me all the time. Since being on Prednisolone the vertigo has almost vanished. Could vertigo be one of the symptoms of PMR. It is such a strange disease that seems to have a mind of its own.
  • Mrs_G
    Mrs_G

    Posted

    Hello

    yes I to am awful the following day if I havent had enough sleep and tend to feel just generally unwell rather than particular aches and pains

    I have had a busy week with gardenning and out a few nights and have a cold so really feel I need a good nights sleep tonight I also find if I keep moving for an hour or so when I get up I am better than if I sit down

    Best wishes

    Mrs G

  • BettyE
    BettyE

    Posted

    Like you, Mrs.G. I find that \"taking it easy\" hardly ever pays dividends. One of the most troubling Pred side effects for me has been this hyper feeling. When I get it I just have to find something to work it off. Not difficult when you do all your own house work and half the gardening but hard to reconcile with recommendations to pace yourself etc. Still I suppose sometimes a fast pace is right but I know that, because full steam ahead is my natural pace, I do overdo things more often than I should. What a minefield this illness is.

    Lovely to hear from LizzieEllen and Queenbee that they are near the end of the line in the best possible way.

    Down to 7.5 next week so fingers crossed. BettyE

  • Dublin,_Ireland
    Dublin,_Ireland

    Posted

    Hi all,

    As someone who regularly wakes between 3 & 3.30am courtesy of the steroids, I am never as stiff and sore at that hour as I am after dozing for a few hours then waking properly at about 8.30-9am smile .I get up at that stage and take all my meds, but it takes me until about 11am before I am fit to face the world....so maybe I ought to get out of bed at 3am and try taking the steroids then!!!!....but I would forget I had done it and take another lot, as memory is not what it was since I got this illness :roll: I find that I have about 4-5 days that I wake up in the ungodly hours & then I am so exhausted that by the 5th night I sleep like a baby for 12 hours, yet never feel truly rested !! I think that is one of the things with this I find hardest to cope with-I could manage the pain if I just had a bit more energy and stamina..but as I STILL haven't managed to put on weight, despite eating as much as I can physically manage, I suppose it is inevitable that my energy levels are going to stay low sad . I know those of you who have put on weight with the steroids must be thinking \" what's her problem\"....but I am 5ft 3in and only weigh 7st 7lbs now and none of my clothes fit and my bones are sticking out....not a good look on a woman of 51 !!! I never EVER thought I would hear myself saying that I was too thin...but would dearly love to put on at least half a stone now as i think I might just have that added bit of energy to aid my recovery...but thats steroid's for you....don't know from one person to the next how you will react :doh: Hope all are keeping as well as possible. best wishes, Pauline, Dublin.

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